Discussions By Condition: Kidney conditions

Blood in urine

Posted In: Kidney conditions 3 Replies
  • Posted By: Anonymous
  • September 7, 2007
  • 10:26 PM

Hi, my 11 year old son has had blood in his urine for almost 5 months now. He noticed it himself so I guess it's gross hematuria. He also leaves spots of blood on his underwear. His initial urine test came back as negative for bacteria so the doc stopped his antibiotics. He was eventually referred to a urologist for an x-ray and ultrasound both of which came back clear, he also has some protein in his urine. One urine sample he provided seemed to have what looked like a clot in it. He's had a bit of a cough for the past few months, which may or may not be relevant. For the past three nights when I've gone to check on him he's drenched in sweat.
Now we're waiting for him to be referred to a pediatric nephrologist. I have no idea what the problem could be, so if anyones had these symptoms please let me know if I'm worrying over nothing. Thanks

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3 Replies:

  • My 3 1/2 year old had blood in his urine yesterday. He is not complaining of any pain. I noticed your posting this morning. Did you ever find out anything about your son?
    Anonymous 42789 Replies
    • September 16, 2007
    • 00:44 PM
    • 0
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  • Hi,I just wanted to share my story with you. A year ago my son who was three had severe hematuria. He also had edema for about a week that resolved itself. He was otherwise extremely healthy, but like your son suddenly wet himself at night. After many labs, the doctors decided it was not post-infectious nephritis, and sent my three year old for a kidney biopsy. It came back inconclusive, and he was diagnosed as MPGN 1/post-infectious, though the doctor adamently told us it was not post infectious, and tested him about five times for strep and other viruses to make sure. Nine months of prednisone, his C3 and C4 levels were still very low. We were then switched to a doctor who decided that since his levels were not changing for the last four months, he would try and take him off of prednisone and see what would happen. A month later, last week in fact, all levels were finally in normal ranges. We go back in two months, and after a year of great stress and many hospital visits, may never know why or what happened to our son, but we couldn't be happier to have our healthy normal son back, and off medication.Good luck.
    Anonymous 42789 Replies
    • September 21, 2007
    • 04:41 AM
    • 0
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  • Just to update, my son has seen the nephrologist and had another ultrasound. His kidneys appear to be fine, which is great news. However, we still haven't found the cause of his symptoms. He has now been referred to a pediatric urologist. The nephrologist mentioned that the urologist will probably do a cystoscopy as he may have dilated blood vessels in his bladder. Think this is a bit of guesswork on his part. What could cause these dilated blood vessels if it is that, and how would he be treated?
    Anonymous 42789 Replies
    • October 13, 2007
    • 03:33 PM
    • 0
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