I am so tired of pursuing a diagnosis. I am tired of being in pain. A roller coaster everyday, never knowing how bad it's gonna be. I have a few good days then wake up in some kinda flare and hurt for a week or more. Some times it's everyday and every night for weeks on end. This is been going on for 10 or 12 years. I don't even know anymore.
Pain in first 2 toes on each foot and ball of feet
fever sometimes daily of 99+
feel like I am getting the flu
achy all over
lymph node pain from under chin/jaw, armpits, breasts, collar bones, back of neck, ribs
lymph node tenderness, can't even stand to lay on a pillow
all lymph nodes painful and swollen after being exposed to cold
severe fatigue like someone has slipped me a mickey
fatigue not relieved by rest
joint pain in first 2 fingers and thumbs on each hand
knees painful to the touch
knees too painful to bend
stiffness upon waking and inactivity
elbow pain and stiffness
hip joint pain
my spine feels too short for my back
pain along spine from lower back to base of skull
rice crispies popping in spin and neck
pain in and between shoulder blades
inability to think of words and difficulty recalling things
woke up with pain in knees for at least a month straight feeling as though I had "carpet burn" on them-warm and painful and swollen
That is the short list. There are many issues that come and go or are very subtle and most I have forgotten (or put out of my mind). The above list is the main ones. I have been tested for everything under the sun. Negative everything except occasional elevated SED rate. One doctor found I carry the HLA-B27 gene. He did nothing with that. I take shots for B12. I am 40 years old, over weight by 40 lbs, cannot for the life of me lose weight. I know that being over weight causes health issues but there are many people I know that are heavier than me who do not have even one of these symptoms.
Are you in the same boat with no diagnosis and no where else left to turn????
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