I am a 19 year old female and the weekend after Thanksgiving I started getting pain in my left wrist and left ankle. The pain progressed through December. By mid-December I would wake up with very stiff, painful joints and would be worse in the morning or after sitting or resting for some time. I woke up on December 20th with extremely severe pain in my lower extremity joints, with pain still in my left wrist, I had swelling in my feet, ankles, and knees. The pain was so bad that I could not walk out of my bed or move my legs with out severe pain. The only way to describe the pain when standing was as if my heel bones were on concrete with no padding (my floor is carpeted). I went to the ER and had blood work and an ultra sound done to check for blood clots. The doctor did CBC and ESR. Everything was normal. I went and saw my primary doctor 2 days later and she checked my CRP, ANA, and RF. The only thing that came back abnormal was the CRP (I cannot remember the number). I was referred to a rheumatologist because my primary believed I had sero-negative RA. The rheumatologist said she didn't think that was the case, she thought it was a form of sarcoidosis or an infection. After redoing my CRP and another lab test for sarcoidosis and checking me for a bunch of infections that could cause my symptoms the only thing that came back abnormal again was my CRP which had increased since seeing my primary (about a week between appointments) my CRP was 35 (with 5 or less being normal). I was put on low dose of Prednisone for just under 3 months. My rheumatologist told me to go on a gluten free, dairy free, no red meat, no pork, no caffeine diet, which I have followed strictly and also to take 3 grams of fish oil a day. After discussing a similar pain about a year ago that lasted only 2 weeks in my left knee my rheumatologist doesn't believe it was an infection. I also have atypical migraines which my primary prescribe Fiorcet (spelling?) but I do not take regularly, only if I cannot get my migraine to go away after trying napping or advil. I am very frustrated with not having a diagnosis. The prednisone decreased my CRP to normal and I have been pain free for the past month, but I do take 2 Aleve twice a day (rheumatologist recommended). My doctor said if the pain comes back it could be worse than before. I just want some real answers. I feel like my doctor has given up since the prednisone alleviated my pain and decreased my CRP to normal. If any one has had a similar experience or any suggestion I would love to hear from you! I'm 19 I shouldn't be worried about mysterious pain coming back. (sorry for any rambling and the length)Reply Follow This Thread Stop Following This Thread Flag this Discussion
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