Discussions By Condition: Infectious diseases

Rocky Mountain Spotted Fever

Posted In: Infectious diseases 119 Replies
  • Posted By: Anonymous
  • September 12, 2006
  • 03:11 PM

Has anyone out there had this horrible desease? I was hospitalized for 3 weeks, 2 weeks in ICU. Having a lot of after effects. Need to know what you have been through since. Thanks for any help.

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  • I had it, went into a coma and nearly died. I've never been the same.
    Anonymous 42789 Replies Flag this Response
  • Has anyone out there had this horrible desease? I was hospitalized for 3 weeks, 2 weeks in ICU. Having a lot of after effects. Need to know what you have been through since. Thanks for any help.I also had Rocky Mountain Spotted Fever this summer and since then my whole body aches. Even have a hard time going up stairs. Skin still stings also. Do you have these symptoms? Thanks for your response.
    jacqueline suzanne 2 Replies
    • September 3, 2007
    • 01:04 AM
    • 0
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  • My wife was diagnosed with RMSF about eight years ago. She went undiagnosed for a few months before anyone thought of giving her atest. She was tested for everything under the sun (auto-immune diseases) first. She lost hair, had joint pain, muscle weakness, electrical-like shooting pain down her arms and legs. Once they discovered RMSF, they treated her, but she has never been the same since. She was later diagnosed as having Fibromyalgia. She has recently had a "relapse" with the same, original symptoms and pain. She was tested for RMSF again and the test came back positive. This is like being hit by lightning twice, so I am skeptical that she was ever rid of the RMSF. She also, strangely, has always had a very high platelet count since the original infection. Has anyone gone through this and, if so, any clues or advice on where to go? I am now skeptical of the Fibromyalgia diagnosis.
    Anonymous 42789 Replies
    • September 14, 2007
    • 10:35 PM
    • 0
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  • I can relate. I was recently hospitalized, 9 days in July. The doctors were terriable, a true miracle I believe that I am alive. I live in Fauquier County, VA. Where did this happen to you? I live in the country yet it took doctors 10 days and a lot of tests pain, fear...to figure out something even though I had every single symptom. I still do not feel right, very sick to my stomach, lethargic I have searched and searched about long term affects, nothing straight forward...has anyone else had luck? Also, what kind of doctor should I go to? I am literally scared to go back to my regular doctor. I am 34 with small children and I want to be "better" and have my energy back.
    Anonymous 42789 Replies
    • September 16, 2007
    • 03:35 AM
    • 1
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  • I had RMSF about 9-10 years ago. I was fortunate that the emergency room doctor had experience in RMSF cases and got a quick diagnosis. I was in the hospital for less than a week and was released. The local health dept kept "tabs" on me for one year.I hate to report this, but I have never been the same. I have constant and severe joint pain and a very low level of energy. As I get older, the pain and loss of energy seems to get worse.
    Anonymous 42789 Replies
    • October 2, 2007
    • 09:04 PM
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  • Thought i was the only one who still feels ill from Rocky Mountain Spotted Fever - so achy, lethargic, nauseous a lot, stomach not right. It's so hard to get info on the long term effects of RMSF!!
    jacqueline suzanne 2 Replies
    • October 11, 2007
    • 00:40 AM
    • 0
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  • I got RMSF in early August. Was not diagnosed until Aug. 27th. Took 10 days of Doxycycline(sp?) . I am still stuggling with headaches.
    Anonymous 42789 Replies
    • November 6, 2007
    • 06:31 PM
    • 0
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  • Yeah, I had RMSF back in Spring 2003 and luckily at only 17, my body was able to quickly recover with the right meds; EXCEPT even at my young age, afterwards, I noticed my lungs did not seem as strong as I had remembered-- also, whenever I get a cold now, instead of it being a head cold (which is how it always manifested itself in the past), it now sits directly on my chest and lasts twice as long--different, painful, I'm not the same. I agree that it's completely frustrating that there's not more info on long-term effects of people who've seemingly "recovered" from RMSF--- should I be concerned if my lungs are potentially damaged? At least I know I'm not the only one.
    Anonymous 42789 Replies
    • November 16, 2007
    • 06:33 PM
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  • I was recently diagnosed as having a "lingering" infection from RMSF and Fibromyalgia. I noticed that one post talked about this cross diagnosis. Have you been able to find any information on the relationship of RMFS and Fibromyalgia?
    Anonymous 42789 Replies Flag this Response
  • I got RMSF when I was 19 years old my freshman year of college up at Frostburg State. All I remember of it in the dorm over a period of about a week was body aches, the rash starting at my feet and spreading upwards, hallucinations, and waking up in my best friends arms on the floor of the laundry room after he apparently had to catch me cos I passed out. After that my R.A. took me to the emergency room and they thought that I was on drugs and just tested me for that! I told them that it might have been RMSF or a few other disease I had found online in the first few days of my rash. They didn't believe me at all and didn't test me because I could not produce the site of my tick bite. (I never ended up finding it anyway). Other then their ignorance it also concerns me that I went to a hospital in a mountainous region and they had no idea what it was. They perscribed me an extremely large amount of Prednasome and three other medications and didn't have me stay overnight or anything. It also concerns me that they would easily just perscribe a large amount of steroids and other drugs to me w/o knowing what I had. Since RMSF I too haven't been the same. I have had a general brain scan which turned up normal. But since I got sick I have alot of language problems. I used to speak French quite well with an almost perfect accent and now I cannot easily pronnounce my consanents. I am having less of a difficulty with English, but the slurring and mispronnunciation is still there. Also when I get out of the shower or any semi-hot water the "scars" from the rash are still there and last for quite awhile. I longer get into hot tubs or the like with other people because I am embarassed about the blotchy look of my skin. I have also had many blood tests since then and in every one my white blood cell count has been very high. To the level that my doctors ask if I had recently been sick with anything, which at the time of the tests, I had not been. There really needs to be more research into RMSF, historically it is seen as a disease of post-colonial America to the medical community but in reality it is the most common Ricckettus tick-borne disease in north america. With the more well known lyme disease less common then RMSF!
    Anonymous 42789 Replies Flag this Response
  • I actually just recently found out that I had been infected with RMSF. I went to college in Southwestern VA in the middle of the mountains and did a lot of hiking and the like my freshman year. I came down with a horrible "flu" and a weird rash all over my body including my palms. When I went to the student health center they told me that it was Syphillis. Since I was a virgin at the time I thought that was really funny. They had no idea. Luckily I must have had an amazing immune system because after being treated with a run-of-the-mill course of antibiotics I didn't have anymore "acute" symptoms. That was now 10 years ago and for since then I have been battling fatigue and a variety of digestive issues. My symtoms usually revolve around constipation and extreme flatulence but it varies. I was of course slapped with the IBS diagnosis which I didn't really accept. It was only after 6 doctors and a colonoscopy that I found a Lyme's specialist who thought to test me for RMSF. I was stunned that such a serious infection was missed completly. I was so lucky that I was able to fight it off but now I too feel like I have bever been the same. It's so hard to describe but my body just feels "off" For the fatigue my current doc has me take 100mg of CoQ10 a day. You can buy it over the counter its wonderful. Also find that monthly de-toxing is a must and I have to eat a very restrictive diet so as not to upset my stomach.
    Anonymous 42789 Replies Flag this Response
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  • last June i got RMSF . I have had a host of issues like pertistent stomach pressure, nausea, fatigue, diahrea, 97 temperature which makes me feel so sick. Has anybody heard whether this disease goes into remission and then recurs?
    jacqueline sue 6 Replies Flag this Response
  • Hello to all suffering with this illness. I was wondering who, other than myself feel that you are a defendant for yourself in court, rather than a patient at the dr.'s office? That is one of the most humiliating things about all of this. I sit begging them for a cure. I was bit by a tick last June, so it has almost been a year now. I tested positive for rmsf after having a fever for 4 days and flu symptoms not to mention this extremely weird array of symptoms ever since. I almost died in July battling this while dr.'s sat around not knowing what in the world to do. I have tested neg. to lyme disease 5 times and I don't know where to turn now. I feel like this illness is slowly snuffing my life away. A wife and mother of 6 (mine, his, and ours) I feel this illness making it very difficult to give what it takes. I was on antibiotics for 6 months-iv rocephin everyday for a month, doxy for months at a time, zithromax, omnicef, flagyl, amoxicillin, etc. I still have chills, burning sensation over my entire body, skin redness (looks and feels like a sunburn), disoriented (making it impossible to drive a car sometimes, chest tightness/pain, pressure headaches, dizziness, extremely painful muscles and joints, nausea, extreme fatigue, shortness of breath, sensative ears( sounds make me extremly ill sometimes), feeling of panic for no reason, very easily frustrated, weight gain, sleeplessness although I am exhausted, etc... these things calm down to at times also making you think oh...I must be finally getting better only for them to just return within a few days to 2 weeks with an out and out vengence. Anyone have these symptoms and have you had any luck with a treatment other than what I have had already? :(:confused:
    Anonymous 42789 Replies Flag this Response
  • HAs anyone here tried acupuncture and Oriental medicine for RMSF? I think it would help immensely,DOM
    acuann 3080 Replies Flag this Response
  • I got RMSF last June and for the past month have had persistent stomach pressure, stomach cramps and nausea. Took lots of tests, CAT scans, ultrasounds and all are normal. Does anyone out there also have this awful stomach pressure. What do you do for it?
    jacqueline sue 6 Replies Flag this Response
  • I got RMSF last June and for the past month have had persistent stomach pressure, stomach cramps and nausea. Took lots of tests, CAT scans, ultrasounds and all are normal. Does anyone out there also have this awful stomach pressure. What do you do for it?I have bloating stomache pressure and major fatigue. I was told today that I have RMSF and I need to go pick up some antibiotics. Have you taken them do they make you feel better?DD
    Anonymous 42789 Replies Flag this Response
  • they put me on doxycycline - i think that's the medicine they typically put you on, I was on it for 20 days and found it to make me feel sick. Actually, when i finished up the medicine, that's when i started to feel better. But i did hear that you do have to go on medication because RMSF can be very, very bad if you don't. Best of luck.
    jacqueline sue 6 Replies Flag this Response
  • they put me on doxycycline - i think that's the medicine they typically put you on, I was on it for 20 days and found it to make me feel sick. Actually, when i finished up the medicine, that's when i started to feel better. But i did hear that you do have to go on medication because RMSF can be very, very bad if you don't. Best of luck. It is not unusual to experience a worsening of your symptoms on strong antibiotic therapy, due to die off of the bacteria. Once you finish your course of antibiotics, it is crucial to get on a good quality PROBIOTIC to help rebuild the flora in your gut, as this helps to improve your immune system. If you find you have a lot of bloating after eating, get a good quality digestive enzyme with super high doses of protease, amylase, lipase and others...this can really help as people with chonic disease often have enzyme deficiencies. Best wishesDOM
    acuann 3080 Replies Flag this Response
  • I recently had a relapse that lasted about 1 month. Jayne, I got those sunburn looking blothches too -- thanks for letting me know this could happen. But I just don't look like myself anymore - very drawn and pale looking most of the time. So much pain in my legs, especially behind my knee. And lots of fatigue. Just an update. Thanks.
    jacqueline sue 6 Replies Flag this Response
  • I, too, am experiencing what must be lingering effects of RMSF. My infection in April also caused a reoccurence of Mono. I was starting to think I was suffering from depression and/or chronic fatigue syndrome with the joint pain, stiffness ,whole body aches and general depressed mood, but it has to be the RMSF because I haven't felt well since April. I will continue to read through these blogs and look for a solution to this misery! Good luck to you all.
    Anonymous 42789 Replies Flag this Response
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