Discussions By Condition: Infectious diseases

Rmsf

Posted In: Infectious diseases 0 Replies
  • Posted By: Anonymous
  • April 3, 2011
  • 08:20 PM

i have been having problems for a long time now, do not remember getting tick bite but did have a rash a while back that i attributed to moving in to new place that had well water with that funky smell (sulfur?) and ignored it, shortly after that i started having increased fatigue and migrane headaches and finally went to Dr. They did routine bloodwork and said my thyroid levels were too low and my cholesterol too high and my vitamin d too low, so was put on thyroid medicine, cholesterol medicine and told to take vit d every day as well as medication to take when migranes came....well, then came the severe stomach cramps, and nerve pain going down legs, they said it was coming from sciatic nerve and did cat scan which found multiple cysts on my ovaries and cervix (all non cancerous thank god) but because i am so tiny (99lbs) they said the cysts were probably pushing on nerve causing pain so did a complete hystorectomy, i felt a little better after that for a while ( probably due to the pain medication i was on following surgery) then when nerve pain continued and knee pain was so severe it sent me back to dr, they sent me to a specialist that said i had bursitis and gave me cortisone shot that made it worse....then tried physical therapy which also didnt help and multiple mris were coming up not showing anything, then the did a nerve conduction study which showed it was coming from central nervous system and sent me to neurologist to look for MS ...all the while the pain in my legs and migrane headaches were getting worse, at one point headache was soo bad i could barely even see for a week and my left arm and face kept going numb and tingly so more mris and still nothing showing, then i started to vomit blood and have constipation or couldnt make it to bathroom, finally my primary doctor started doing blood tests for everything under the sun and rocky mountain spotted fever came back "equivical" so am on doxyciclin and am trying to find any info i can on if the pain and gastrointestinal problems will ever go away, i have been out of work for 6 months and my short term disability has ran out so now i have now insurance or income and am hoping for some good news about the possible effects the antibiotics will have, i have even called the cdc and no one seems to know if they will be permanent was hoping someone who has had it for a long period of time could tell me more of what to expect...from what i've read it does not look promising and i hope everyone on here is feeling at least somewhat better

Reply Flag this Discussion
Thanks! A moderator will review your post and it will be live within the next 24 hours.