Hi everyone! I am going to try to make this as quick and painless as possible! Here goes!
In september my (now) 16 month old Joshua got his first of 8 "fevers of unknown origin". He has NO other symptoms. NO flu, cold, vomit, anything to speak of. He has had his blood drawn during these fevers 3 times, and every time everything is NORMAL. NOTHING in his blood looks funny. White blood cell count is normal, no infection is being fought. These fevers are usually about 104, and last 5 days with NO relief from meds. He has been hopsitalized with dehydration. They have done spinal taps also. Nothing. During the first 6 of these he turned purple, hands, feet, lips, nose... the last 2 he hasnt.
So here it is february, and he is in his 8th fever. We went in again last night, and today, and I have seen 4 doctors the last 2 days and everyone has told me NOTHING.
I should also say he is anemic. We found that out in August, they cant decide what kind of anemia it is though. It is either beta thalosemia minor (not treatable) or dietary, which I dont buy because when we found out he was on 40 ounces of iron fortified formula a day, and still severly anemic (8 hemoglobin).
He has seen a hematologist for his anemia, but now they want me to go back to him, and talk to him about these fevers. She wants a bone marrow biopsy done for leukemia. Ive looked up the sysmptoms and the only 2 major ones he has are anemia and fevers, which are BOTH the top sysmptoms.
Also, I was told when looking for leukemia in a normal blood test, that the white blood cells will be abnormal, which his arnt. They also look at 2 other blood makeups, red platelets and something else, and those are BOTH abnormal on him, but this also runs along with the anemia thing.
He is huge weight wise, growing fine. He is pale, tired alot, which can be signs, but also goes along with anemia. So I dont know what to think.
I should also say the twins have never caught this "fever". 8 times, and believe me, if something comes here, we ALL get it.
Now, because I have been back and forth with doctors, probably seen close to 10-20 since this started, I need to think outside the "box" for treatment.
My MIL became epileptic at 11 years old, after having fevers of unknown origin since she was a baby, her first seizure at 11. I told the doctors, could this be predisposed to that? They said "No, Ive never heard of someone becoming epileptic like that, and if they did, it wouldnt be hereditary". Joshua has the same mood swings daniels Mom did. She died last year of a siezure at 44 years old. Anyone think this is a possibility?