Discussions By Condition: Infectious diseases

Lymes-like symptoms. Could someone please help me?

Posted In: Infectious diseases 26 Replies
  • Posted By: Anonymous
  • September 23, 2006
  • 10:35 PM

Hello everyone,
I am really worried about my sister and hoped some of you could possibly help us on this issue. In December of 2005, my sister and her family had the stomach flu. Afterwards, my sister started having more flu-like symptoms, like an upset stomach with some pain and fatigue. She didn't think much of it, just thought it was maybe a relapse from the flu she'd had earlier. As time went on, her problems kept getting worse and progressed to a terrible burning in her stomach and was unable to eat much. The burning in her stomach isn't constant, sometimes she feels perfectly fine during the day, and then all a sudden her stomach will just start aching/burning. It gets worse at night also. She's had many tests done by quite a few different doctors and no one can find anything wrong with her other than saying she maybe has irritable bowel syndrome. The only thing wrong with that is there is nothing wrong with her bowels and she doesn't have any problems there. She has lost about 30 pounds from not being able to each much. She can usually eat until about 3-4pm and then if she eats later than that, her stomach becomes much worse. Her stomach is also sensitive to some dairy products, but not really fried foods that much. Recently, her arms and legs started getting really achy and sometimes she can hardly walk on one of her legs. She was bitten by a tick last October and has been tested for Lymes, but it showed negative. Also, her joints don't really ache as in lymes, it's just her arms and legs. She does have some lymes symptoms and I just wondered if any of you could PLEASE give us some advice as I'm really worried about my sister! THANK YOU!!

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26 Replies:

  • has she been tested for lupus?
    Anonymous 42789 Replies
    • October 5, 2006
    • 06:25 PM
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  • did her doctor consider Crohn's disease (also known as regional enteritis or CD)?
    Anonymous 42789 Replies
    • October 14, 2006
    • 08:39 AM
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  • Y.enterocolitica?
    Anonymous 42789 Replies
    • February 20, 2007
    • 10:46 AM
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  • I've had lyme disease... i didn't have bowel problems at that time and the information on the internet; for instance: http://en.wikipedia.org/wiki/Lyme_disease doesn't show anything about bowelproblems too. I had problems with my joints; neck, back, legs, feet. Tingling and also painful. I felt very depressed and tired too. I also had fever, sleeping problems and a lot of other problems....so your sister has only leg and arm problems that look like lyme.so maybe it is another tickdisease or just something else than lyme. good luck!
    student 6 Replies
    • February 27, 2007
    • 08:01 PM
    • 0
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  • You are not going to like this answer, but ever consider anxiety? I had a severe pain in my upper stomach - just where the ribs meet in the middle. Very painful. I was on nexium for 1 year to no avail, now I am on Paxil and the stomach pain is gone. I think it is because your muscles inside are always so uptight that you may have muscles spasms and not even know it.~ Just a thought. It helped me!
    Anonymous 42789 Replies Flag this Response
  • Hi Johannasteph,Lyme disease testing is very unreliable so it is a clinical diagnosis according to the experts and the CDC. I'm sorry your sisters doc does not know this..many docs don't! Go to www.canlyme.com for a ton of up to date reliable info.There are hundreds of research articles, symptoms list, diagnosis and treatment info. There are several other good reliable sites as well...www.lymediseaseassociation.org (doctor refferals)www.ilads.org Unfortunately there is a lot of conflicting info about Lyme disease and co-infections out there. The Infectious Disease Society of America is NOT a good resourse right now as they are under a Civil Investigative Demand by the Attorney General for anti trust issues concerning their Lyme Disease guidlines.Good luck in your search!!Gracie's Mom
    Anonymous 42789 Replies Flag this Response
  • Has she been checked for the human parvovirus b19. It can have a very wide range of symptoms often resembling rheumatoid arthritis, lupus, and Lymes disease. It is diagnosed with a simple blood test and is often over looked by physicians. I had to go to a rheumatologist before getting the diagnosis.
    Anonymous 42789 Replies Flag this Response
  • Hi,Just thought you may want to consider going to an Alternative Physician or Holistic Doctor. These docs are actual MDs but give you a variety of tests normal docs wouldn't give, like checking for parasites, food sensitivities, adrenal abnormalities, etc. Hope your sister gets better.t
    Anonymous 42789 Replies Flag this Response
  • You mentioned that your sister is sensitive to dairy products. Perhaps she has a lactose intolerance, when it is hard for the body to digest the lactose in milk, which is actually the sugar in milk), and by the way can be treated over the counter. Have her cut out the dairy products for a while and if her symptoms go away you might want to look into it.
    Anonymous 42789 Replies Flag this Response
  • not sure if your sister has gotten better or diagnosised yet but i can tell you as a vet tech who is in the same kind of situation we all had flu like symptoms and never got better daughter is severly impaired with what would seem like lyme (but the ana can hide within the cells, spinal tap should be done for true negative) all be checked for TB it is on the rise again. i would love to know more about this case. i think after a year i just figured out what is wrong with my daughter and am having them test her for such. im pretty good at figuring out this stuff or at least pointing you in the right direction as far as clinically. let me know if i can help out more. i would have to know all her symptoms and much in detail if you have the time to give me any info. has she had any positive ANA testing do you know with low white blood counts?
    Anonymous 42789 Replies Flag this Response
  • Could be Fibromyaliga , I had lyme disease at same time as i was diagnosed with that , thru a test that came out positive , but there is no test for fibromyalgia, but has to do with alot of symptoms such as muscle aches , and stomach issues, kinda feels like flu symptoms at times.
    Anonymous 42789 Replies Flag this Response
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  • It is lyme I bet.. these are my symptoms.. I had a first test negative.she needs to do the $600.00 panel at Igenex in Palo Alto.. The aches in the arms.. then the legs.. I had the dropsey in one leg.. then both.. then I was completely paralyzed. Also mine started in my Bladder.. then stomach.. I too lost 30 pounds.. And could not eat..Or sleepReal easy.. get her to a LYME doctor.. get the right lab to test.Then get her on Doxy then get on Dr. Zhang's herbs . .he is in NY.. recommended by Dr. Andrew WeilI have been on his herbs for over a year and am almost normal.. and it was everywhere.. nervous system, heart, brain.. \Dr. Zhang has a book on his treatment of lyme.. he is brilliant and keeping me well as it is now chronic.. altho he says he can cure it.Good luck
    Anonymous 42789 Replies
    • August 21, 2007
    • 09:09 PM
    • 0
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  • Hi,Just saw your post about your sister and my 10 year old daughter had the same exact symptoms after a 24 hour stomach virus back in April. After that, her symptoms in her stomach did not go away. She started having the burning in her stomach, pain, bloating, constipation and then diarrhea. She was fine one day and then the next was sleeping 18 hours out of the day. She then started with neck stiffness, headaches, dizziness, joint pain, light and sound sensitivity, etc. Not wanting to leave the house for any reason for fear of getting stomach pains. She had a Lyme test and it came back positive. She is on her second dose of oral doxycycline, but to no avail. Her stomach problems have gotten worse (I believe from all the antibiotics). She was diagnosed also with irritable bowel syndrome, but we are trying to get rid of the Lyme symptoms first. Please get your sister to a Lyme specialist as soon as possible. The longer you wait to be diagnosed with Lyme, the harder it will be to treat the Lyme. I live on Long Island, but we travel to Staten Island to see her doctor because not one physician on Long Island is up-to-date on all the symptoms Lyme causes and how to treat it effectively.If you would like to e-mail me, my e-mail is Rosecommisso@optonline.net.Good luck and hope your sister is better soon. If anyone has any suggestions for my daughter, it would be greatly appreciated also.Rose
    Anonymous 42789 Replies
    • September 4, 2007
    • 03:25 PM
    • 0
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  • Try to test for brucellosis.
    Anonymous 42789 Replies
    • September 19, 2007
    • 01:20 PM
    • 0
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  • not sure if your sister has gotten better or diagnosised yet but i can tell you as a vet tech who is in the same kind of situation we all had flu like symptoms and never got better daughter is severly impaired with what would seem like lyme (but the ana can hide within the cells, spinal tap should be done for true negative) all be checked for TB it is on the rise again. i would love to know more about this case. i think after a year i just figured out what is wrong with my daughter and am having them test her for such. im pretty good at figuring out this stuff or at least pointing you in the right direction as far as clinically. let me know if i can help out more. i would have to know all her symptoms and much in detail if you have the time to give me any info. has she had any positive ANA testing do you know with low white blood counts?I am interesting in more information regarding your symptoms. I believe that I have chronic brucellosis. I am being treated with doxycycline. My lyme tests were negative. I have a low grade (100) up and down fever, painful lymph nodes, a strange minor dry cough, a little sweating at night, and some back pain. Those are my current symptoms. This is the second time I have had symptoms. Six weeks ago I had bad flu like symptoms for a few days and recovered within ten days.
    Anonymous 42789 Replies
    • October 19, 2007
    • 08:31 PM
    • 0
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  • Did the family travel before the symptoms started? I had the same problem for almost a year, a Doctor finally put me on Flagyl and with in 24 hours my stomach pain/ body pain was gone.Vit B12 deficiency can also cause problems.
    Anonymous 42789 Replies
    • December 16, 2007
    • 09:41 PM
    • 0
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  • There are a slew of tick-related bacteria that can cause issues. It's not just limited to Lymes. For example my Mother has Lymes and I was having some similar symptoms. Turns out I was lymes free but I had been infected with the Ricksetti bacteria. It took 5 years and 6 doctors to discover this. Find a Lymes specialist and at the very least you can rule that out with some confidence. Most doctors don't really know a lot about Lyme's disease.
    Anonymous 42789 Replies Flag this Response
  • Hello there. So sorry your sister is going through this. I am here to tell you I have been going through ***l with Chronic Lyme since 96! It is a medical nightmaire and an list of never ending symptoms.Stomache issues is one of them. It can mimic Divirticulitis, Autonomic Neuropathy and IBS symptoms. You will go from filling filling completely full and can't eat because you feel like you have a brick in your stomache one day. Then totally nauseated the next day. Then sick after eating the next day. Then go 4-5 days without a BM. Then It starts ALL over again. It's a vicious cycle! They sphyrocetes drill little microscopic wholes throughout your intestines. Which will NOT be seen on a colonoscopy!!! My best advice to you is to get on www.lymenet.comThere are so many of lyme's out there that will help your sister. They will help you find a LLMD.....Lyme Literate MD. They will be the ONLY one that will be able to help her get a proper diagnosis. I am trying to get myself one as well. I am in San Antonio,Tx and will have to travel a ways just to see one. Secondly most docs only run the usual test if they even do. These are the ELISA and Western Blot which can be negative. Especially the ELISA which is the anitbody. Mine was neg but the WB was pos. and was told I didn't have it. CRAP! They are bogus. Even the LLMD's will tell you that. They are INCONCLUSIVE! Most LLMD's send there bloodwork to IGenex Lab or Frye lab. They are the BEST! Also Lyme is not only disease. They have coinfections that they pass like babessa which is associated with ancephilitis. Which causes severe headaches , neck pain and stifness. Which I am dealing with now. Chronic Lyme can also lead to Neuro Lyme in latent stages. You may also want to go to www.biotoxins.infoI hope this was helful for you.I AM NOT A DOCTOR AND AM NOT HERE TO DIAGNOSE ANYONE. I HAVE JUST BEEN THROUGH 14 YRS OF MEDICALL ***l
    zephyr 10 Replies Flag this Response
  • Has she been tested for Whipple's Disease? I was diagnosed with irritable bowel syndrome about 5 years ago only because the doctor had already ran a bunch of tests that were all negative and had given up on me. But Whipple's disease starts out with simple bowel problems (i.e. diarrhea) and arthritis, then in the course of 5 years the symptoms escalate to more joint problems, weight loss, neurological symptoms, motor changes, sensory changes, skin problems and poor healing, eye problems, memory problems, depression, low-grade fever of unknown origin, anemia, weakness, insulin resistance (which can cause infertility or miscarriage), etc. Whipple's disease can ultimately cause death within 5-10 years of the first symptoms, but since it is so rare and infrequently diagnosed, it is often not considered by most doctors.Ask your GI doctor to perform a small intestine biopsy which is the diagnostic test for Whipple's. The treatment for Whipple's is a year or more of strong antibiotics, and it takes about 2 years to heal.I'm currently experiencing some of the same problems and am trying to get tested for Whipple's disease, but most doctors quickly dismiss my suspisions since Whipple's disease is supposedely so rare. At first I thought it was Lyme disease because of the skin problems, but the more I review Whipple's symptoms, the more I feel I need to be tested for Whipple's disease.Good luckP.S. Only go to a homeopathic doctor if you have an endless amount of money to spend, and the patience to listen to a bunch of bulls**t. If you really are suffering, then keep pressuring the real doctors to find a cause.
    Anonymous 42789 Replies
    • September 5, 2008
    • 03:14 PM
    • 0
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  • Your poor sister!I've just been diagnosed w/chronic Lyme Disease. I've had it for quite a while because it's been very difficult to diagnose (mostly b/c it's not common where I live). I have peripheral nerve involvement (vibrating legs, twitching). I DO NOT have the arthritis component either (joint pain, etc.) The thing to keep in mind is the inflammation aspect. Lyme Disease causes inflammation that can affect the heart, nerves, etc. I have read that it can (more rarely) affect the bowel and stomach. If your sister believes she has Lyme Disease, I would suggest she find an infectious disease specialist that specializes in Lyme Disease OR a doctor that did their training in the Northeast. Testing, if not done right or well, can result in false negatives (request a Western Blot or LUAT (sp?)). Certain testing labs also have a higher rate of false negatives AND the disease is good at "hiding". After two blood tests (positive) and a Lumbar Puncture (negative for CNS involvement), I finally have a diagnosis and am mid-way in my treatment!Good Luck to you and your sister!
    Anonymous 42789 Replies
    • January 7, 2009
    • 02:59 PM
    • 0
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