Discussions By Condition: Infectious diseases

lyme disease

Posted In: Infectious diseases 13 Replies
  • Posted By: Anonymous
  • August 23, 2006
  • 06:00 PM

Dear All,

Once you have lyme disease do you always have it, does it go dormant, or will it go away with antibiotics. I am on my second round of amoxicillan and still extremely fatigued and have a host of other syptoms I have never experienced in my life. Including excessive sweating. No I"M not menopausal, rapid heart and others please help.

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13 Replies:

  • i would like an answer to that I got rid of mine 4 years ago and still suffer from fybro myagia.
    Anonymous 42789 Replies
    • January 8, 2007
    • 09:19 AM
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  • Many people feel that you do not get rid of all the Borrelia bacteria in your body, but that antibiotic treatment may bring the bacterial load low enough that your own immune system can handle what remains. In other words, you may still have Lyme, but you feel pretty healthy. There are people who test positive for Lyme disease, but have no symptoms.It may also be that the bacteria go into dormancy in the cells, perhaps to re-emerge at a later time to cause disease. There is some evidence that perhaps even the "dormant" cyst phase of the bacterium may do damage. The research is still emerging.Co-infections, other diseases that come from ticks, may also be a factor. For example, many people who have complained of sweats and chills have been diagnosed with babesia. Babesia is a protozoan, not a bacterium, and needs a different treatment, often an antimalarial/antibiotic combination, to treat it.
    Anonymous 42789 Replies
    • January 13, 2007
    • 05:10 AM
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  • Hello from a newbie!Hi out there. I wanted to introduce myself to everyone. I’ve been searching the web for info about lyme dissease and found this board. I’ve never thought about joining a board before, but after reading through some posts, I’m happy I did. I just want to say thanks to everyone for the support you offer here
    justdafacts25 5 Replies
    • February 5, 2007
    • 04:58 AM
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  • I have read that you need months and months of continuous antibiotic treatment to get rid of Lymes disease.Those nasty corkscrew organisms can screw their way into all parts of the body (including the brain) where they hide away from the antibiotics.So keep taking the tablets and I hope you get better soon.
    chrismia 159 Replies
    • February 7, 2007
    • 07:09 PM
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  • Thanks for the Support.I just joined this board and have been reading through a bunch of posts. I wanted to tell you all how much I appreciate all the support you give one another. I think it will be really helpful for me to read what other people are going through. So, thanks!
    justdafacts25 5 Replies
    • February 7, 2007
    • 07:46 PM
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  • I believe the antibiotics have been overused in our society, and my best friend is quiting the meat thing. she's now a vegan and believes it will enhance the performance of antibiotics. Something about, if you eat meat with them in there all the time, when you take them , they might not work as well.me, I just believe in not taking them usless I really really sick. since I started useing grapefruit seed extract, I havent used anibiotics for about 7years. After your done with your current dose of antibiotics, add the grapefruit seed extract to your juice and see if you dont feel like your old self again.Hope you feel better soon. May the Lord be with you.
    Anonymous 42789 Replies Flag this Response
  • I have been fighting the Lyme disease and co infection of Babeosis for about six years, I have had IV antibiotics via a PICC line for four months. I think that the lyme has been cured, but the babeosis seems to be a losing battle. I am presently on Malarone which starts making me sick after about six weeks and continue to get worse until I get off of it. The problem is I can't seem to stay on the medicine long enough to cure the babeosis, anyway I hope all of you with either of these or both diseases get well soon.
    Anonymous 42789 Replies Flag this Response
  • I have been fighting Lyme Disease for five years and and have been on three anitbiotics the whole time. I just recently was diagnosed with Babesia also. I can not find very much info on the internet on this because it is so rare and would really like to talk to the unknown person who posted that they have both diseases.
    Anonymous 42789 Replies
    • December 28, 2007
    • 10:44 PM
    • 0
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  • i think i may have lyme disease (see "I cannot get a diagnosis. please help" boards in my thread "Lyme Disease Possible?" i have had nearly 30 blood tests (sorry forgot to mention this in my thread) and all have come back neg for lyme and all other sorts of things they tested for, but just because no blood tests show signs of lyme does that mean its not there? or that it can be there.. but its just a false neg? if i continue to get false neg lyme tests will they rely on my symptoms to diagnose lyme or will they continue testing? sorry if this is making no sense but i am very tired thanks for all replys in advance
    LymeTime 65 Replies
    • February 28, 2008
    • 09:58 PM
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  • Hello all. I too was supposedly "cured" of Lyme disease about 5 years ago. Initially my neurologist discovered it...gave me doxycyclone for a month..but it was still there. Then went to the head of the infectious disease department of a major hospital far from my home and he refused to beleive I had it. Seeing how I am an "inner city" girl - how could a deer tick possibly bite me. Long story short, after numerous blood tests and 2 spinal taps (Yeowch!) he finally decided I had it. Meanwhile, 4 months had past. I got the Rocepherine antibotics via PICC line for about 28 days and then was deemed to be cured. However, here it is, 5 years later, and I would say my greatest complaints I still suffer from DAILY are migraine headaches and the brain fog/confusion. My current neurologist, God bless her, has tried so many different things just to get me functional enough to hold down a job. I even stopped working for like year & half to get myself together. But with today's economy, I've gotta make a living you know. My neuro says I have something akin to fybromyagia. She also summizes that the delay in initial treatment allowed the Lyme disease bacterial to seep through the blood/brain barrier and now they are in there wrecking havoc. My threshold for any kinda pain is like nil. I have to take a day off just to go to the dentist for extractions/fillings. My migraines are daily. Confusion, I can't even do simple math anymore without the use of a calculator, my relationship with my kids and husband has suffered as "Mommy is always tired or in the bed". Or the pain medication makes me, not so much a zombie, but clouded, but without the pain medication I couldn't function. It is a terrible catch 22 situation. However, I must say, my current neuro treats me with a triptan as a prophalactic, I also have muscle relaxants to keep my stress level down, the usual migraine meds Axert or something similar, then when the pain is super bad, she has me take Fentanyl or something with codeine in it. Only thing that helps sometimes is just taking to my bed. My knee swells up sometimes, various aches and pains for no good reason. It is just depressing as ***l to think I am stuck like this for life all because of a little tick no bigger than a speck of dirt.Anyhoo, does anyone else suffer like me? Can you offer some helpful hints?I would so very much appreciate any ideas/suggestions to keep these migraines at bay, clear up the brain fog,ThanksAn "Inner City" Lyme Disease Suffering Girl (LOL)
    Anonymous 42789 Replies Flag this Response
  • Lyme and Coinfections are spread by fleas,misquitos. flies, and more. Birds, mice, squirrels and more can carry ticks & fleas. More than one type of tick also carry the infections. So you never have to set foot in the woods or have had a deer in your yard to get Lyme or the other tick born infections. Your cat or dog may bring them in.The tests aren't all reliable, and its also dx'd clinically, by signs & symptoms.The east coast is an epidemic area for it.....esp NJ, NY & Pa."Inner City" Lyme Disease Suffering Girl, your not alone!! They do have birds, etc., in Essex Co. The pavement may get hot, but you still have them.There is a good site for support , info, treatment info and much more.They can point you to the best drs around the country for treating people with Lyme when other drs, throw in the towel and say live with it. Lyme Literate MD's they are called. There are many protocols to treat, some with only antiboitics and others with herbs, supps and detoxing.Having Lyme for a long time undx'd can deplete the body of many things, sometimes vits and supplements can help in those areas.Join us at www.lymenet.org . Its based in NJ. You can learn alot here, hopefully to improve your health & life.Take care~~~JerseyLymie
    Anonymous 42789 Replies Flag this Response
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  • I was diagnosed with lyme last october. I did a round and 1/2 of antibiotics but was getting sick from them. and the blood tests came back negative for lyme. I have to admit I feel better, but still feel LOUSY. My joints hurt, but especially my knees. They BURN. No relief. I had 17 different blood tests with no other bacteria showing up. Has anyone else had burning joints. Also weight gain, bloating....fatigue..
    Anonymous 42789 Replies
    • November 12, 2009
    • 07:02 PM
    • 0
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  • Dear All,Once you have lyme disease do you always have it, does it go dormant, or will it go away with antibiotics. I am on my second round of amoxicillan and still extremely fatigued and have a host of other syptoms I have never experienced in my life. Including excessive sweating. No I"M not menopausal, rapid heart and others please help. Yes, once you have lyme disease, you always have it. But if you catch it soon enough and take antibiotics for a while the symptoms go away and you are considered healthy. My mom has chronic, late stage lyme disease. Believe me, it gets much much worse before it gets better. And it can stay bad for a very long time. If you ever get a tick bite just get tested because the consequences are awful. When you get tested, there are these things called bands, if just one band is positive, you could have lyme disease. many people will say you're crazy or dillusional. but you have to find the right person.
    Anonymous 42789 Replies Flag this Response
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