Discussions By Condition: Infectious diseases

HTLV new treatment

Posted In: Infectious diseases 8 Replies
  • Posted By: hamidroshani
  • February 17, 2007
  • 07:21 AM

I will appreciate it if someone tell my about new treatment of HTLV.

Reply Flag this Discussion

8 Replies:

  • I have htlv-1 and I take baclofen for it. Someday's are good with my walking and other's are bad. I wish there was something to take away the spascity
    Anonymous 42789 Replies Flag this Response
  • I have htlv-1 and I take baclofen for it. Someday's are good with my walking and other's are bad. I wish there was something to take away the spascitymy mom was diagnosis with htlv1 about 5yrs ago. she also has bad and good days, i would llove if she found someone that she could speak to that knew what she was going through...plz i would appreciate it...so if your interest plz reply back n i will give u the contact info....thanks again mayleen
    Anonymous 42789 Replies Flag this Response
  • my mom was diagnosis with htlv1 about 5yrs ago. she also has bad and good days, i would llove if she found someone that she could speak to that knew what she was going through...plz i would appreciate it...so if your interest plz reply back n i will give u the contact info....thanks again mayleenHi Mayleen, my name is Dean and my sister has just been diagnosed with HTLV1. I'm not sure what to make of it as i'm just starting to research the condition. It would be great to get in contact with you, as like myself, you have someone very close to you who is suffering from this illness. Also i'm sure my sister would appreciate being in contact with you mum who is on a similar path to herself. My next steps are to get in touch with a local hospital which specialises in "Tropical Diseases" and to go through this forum for any useful comments. I'm also well versed in hypnosis and life coaching etc so will be making the most of those tools too. Anyway, i'll keep it short for now. Let me know if you are contactable via facebook or something so we can share any useful information. Looking forward to being in contact soon. Dean
    Anonymous 42789 Replies
    • December 5, 2010
    • 11:25 PM
    • 0
    Flag this Response
  • Hi Mayleen, my name is Dean and my sister has just been diagnosed with HTLV1. I'm not sure what to make of it as i'm just starting to research the condition. It would be great to get in contact with you, as like myself, you have someone very close to you who is suffering from this illness. Also i'm sure my sister would appreciate being in contact with you mum who is on a similar path to herself. My next steps are to get in touch with a local hospital which specialises in "Tropical Diseases" and to go through this forum for any useful comments. I'm also well versed in hypnosis and life coaching etc so will be making the most of those tools too. Anyway, i'll keep it short for now. Let me know if you are contactable via facebook or something so we can share any useful information. Looking forward to being in contact soon. DeanHi I've been living with this for 15yrs it seems like it was yesterday when I was diagnosed. I would love to talk with your sister and encourage her (since I had know one to turn to I can understand the fear of this disease) give me an email address or if I can contact u on facebook that would be great...Tell your Sister to be encouraged..until
    Anonymous 42789 Replies
    • December 7, 2010
    • 06:49 PM
    • 0
    Flag this Response
  • I am 29yrs old and just recently started feeling numbness and weakness in the right side of my body. I been diagnosed with htlv2 12yrs ago. I'm scared and been having more and more panic attacks. Someone if they have any answers I would really appreciate it.
    Gertrude 1 Replies
    • October 12, 2011
    • 00:28 PM
    • 0
    Flag this Response
  • The best treatment so far is Vidaza (Azacytidine), which apparently cured a patient in Greece after 8 months. Please urge the doctors and the drug manufacturer to sponsor a clinical trial so that more people can be treated.
    AlvinBishop 36 Replies Flag this Response
  • Besides Vidaza (Azacytidine), Tofacitinib (Xeljanz) is also effective against HTLV and has been recently approved for arthritis (which can be a symptom of HTLV lol).
    AlvinBishop 36 Replies
    • February 8, 2013
    • 08:59 PM
    • 0
    Flag this Response
  • Besides Azacytidine (Vidaza), Tofacitinib (Xeljanz) is also effective against HTLV - a Rheumatologist would typically prescribe Xeljanz and a Hematologist would typically prescribe Vidaza.
    AlvinBishop 36 Replies
    • February 13, 2013
    • 05:03 PM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.