Discussions By Condition: Infectious diseases

Chronic Mono?????

Posted In: Infectious diseases 0 Replies
  • Posted By: pixiepony
  • September 5, 2008
  • 01:45 AM

I have had alot of medical issues the past year. I am undiagnosed, of course. However, my most recent "suggestion" was that I had "Chronic Mono". My EBV past exposure/infection was high. In fact it went from in the 500's to over 1600. I have tested negative on both tests ( a few mo apart) for the current active virus.

My neurologist ran out of suggstions and ideas (the he did very few tests to even try and figure this out) and just said he guessed it was Chronic Mono. His guess was that I had a bad case of mono and I am just still suffering from symptoms. GRANTED, prior to my flare up in Jan I felt fine. My flare did not start out me feeling sick. It started out with neuro symptoms. So If it was mono prior to that, I would have known it, right??? I mean you can't have a bad case of mono and feel great, correct.

From what I saw on Chronic mono by a few web searches it said that it was recurring mono. I have never known I had even one case. If I did, it was extremly mild. So if I have not even had one documented case, how can I have had more than one to say it is chronic??

To me it sounds more of a cop out as in "we don't know and don't feel like doing more tests, so let's just pick this." It just doesn't make sense to me.

I am hoping someone has some answers and suggestions... maybe you know more about this???

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