Discussions By Condition: Infant conditions

My baby has neonatal lupus

Posted In: Infant conditions 7 Replies
  • Posted By: Anonymous
  • July 25, 2006
  • 05:54 PM

I have a daughter that was born 6-26-06 that has neonatal lupus. I was just looking to chat with any other parent who has or has had a child with it.

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7 Replies:

  • Hi, I have a baby boy, born on 29/6/2006, who also has NLE. Shall we talk ?
    venusko 2 Replies
    • January 15, 2007
    • 01:31 PM
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  • HelloMy baby girl also have neonatal lupus.Please contact me so we can chat about this.
    Anonymous 42789 Replies Flag this Response
  • HelloMy baby girl also have neonatal lupus.Please contact me so we can chat about this.Hi. My name is Venus. I'm from H.K. Since my son was abt 2 months, his face appeared nle symbol with 6 affected area. one is on his chest. I brought him to see doctor and took some medcine. he recovered and until now, he was 11 months old. no same symbol appeared.
    Anonymous 42789 Replies Flag this Response
  • Please can anyone tell me more about this virus? Thanks
    Anonymous 42789 Replies Flag this Response
  • hi, my baby girl is born with neonatal lupus in dec 07. any parents with similar experiences to share? will the rash and scaly skin on her face disappear? also, she has some depressed marks on her forehead. any of your child with nnl has this symptom? will it go away? baby is otherwise healthy. please share. thanks,
    Anonymous 42789 Replies
    • December 29, 2007
    • 11:51 PM
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  • I know this is a very old thread, I have a 8 week old baby girl with a severe neonatal lupus rash, I was hoping that maybe someone could share the experience with me of how long the rash took to disappear and were there any scars left behind?
    Anonymous 42789 Replies
    • August 25, 2010
    • 06:37 AM
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  • I know this is a very old thread, I have a 8 week old baby girl with a severe neonatal lupus rash, I was hoping that maybe someone could share the experience with me of how long the rash took to disappear and were there any scars left behind?Both my sons had it too and they are teens now and perfectly fine the rash leaves no scars and is gone before they are one year old- i have sjogrens syndrome with hardly any symptoms and have had it since i was sixteen so that is why they had the rash. DONT WORRY!!! I was really scared about it for no reason. it's just another thing the doctors dont know much about but my kids are fine in fact they seem healthier than other kids.
    Anonymous 42789 Replies
    • December 13, 2010
    • 06:13 PM
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