Discussions By Condition: Immune conditions

stumped my dr, please help

Posted In: Immune conditions 1 Replies
  • Posted By: ebunny
  • April 14, 2010
  • 05:11 AM

Hi everyone,

I am 35 yrs old female, i have been sick for almost 3 yrs now and my doc's are stumped.

Symptoms: extreme fatigue sometimes so exhasted sleep for 24 hrs straight, diarriha 20 mins after eating, low-grade fever, white count eratic, chronic infections, joint swelling and pain, abdominal pain, vomiting, unable to eat without pain and/or vomiting, unexplainable weight gain,

i have had 4 upper scopes and 1 lower scope, CT's and MRI's,

al-pho has maintained at about 143 for last 2 yrs droped 2'xs for about a month and then goes right back up says coming 50% from each bone and liver, crp has stayed about 283 for 2yrs, white count keeps going up to 37,000 with alternating elevation in lympocyte and monocytes, but they are not both elevated at the same time, have been on antibotics for about 1 1/2 yrs if i go off i get sinus, respirtory, uti or vaginal infection and have to go right back on antibotics. now vitamin levels have all dropped because i can't keep any food in me.

Tested neg for hep., all tick born diseases, diabetise, willson disease, mono, hiv, throid, gi infections and many, many more. My doctor's have now come to the conclusion that i have some unknown infection, it may be migrating causing the other infections.

Only diagnosis's i have is vitamin deficenties because inability to eat,
GI-hiatial hernia, irregular z-line, ulcer that healed itself.

my dr hasn't given up yet, but I am misrable. please help, will take any lig suggestions. thanks

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1 Replies:

  • I went thru the same issue and now have a diagnosis after a four year battle. I have inflammatory disease, chrones disease, gastroparisis (cant eat) and neurapathy, and severe fibromyalgia. the list is so long because the inflammatory disease causes the others. I get an infusion at the hospital 1 month and on several other drugs. have you seen a RA specialist? if not get to one you may have rheumatoid arthritis. or one of the many that fall under it like me. hope this helps, sue
    squirrel47 1 Replies
    • February 15, 2014
    • 05:32 PM
    • 0
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