Discussions By Condition: Immune conditions

Multiple Blood Complement Deficiencies

Posted In: Immune conditions 2 Replies
  • Posted By: S. Marie
  • August 20, 2008
  • 04:46 AM

I posted this in another thread, but since Complement Deficiencies are congenial immune disorders, I figured I would post this on here as well. Any help or similar stories would be greatly appreciated!

A new doctor I'm seeing was looking through past medical records, and noticed that blood tests from when I was younger (I'm 18 now) showed that all of my complement levels were low. He's repeating the tests to see if they're still low, and said that if that's the case then I have a congenial complement disorder.

My question is this: After doing some research, everything I've found about complement deficiencies seems to be about specific complements that are low (C3 deficiency, C2 deficiency, etc.). What does it mean when all of the complements are low? Would it just be that I possibly have multiple complement deficiencies? Or is there a separate name and disorder when all of the complement levels are low?

I hope I'll get the results from the blood test pretty soon and then I can talk to my doctor, but I really would like to know information ASAP.

Help?

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2 Replies:

  • To all those who have immune compliment disorder have heart.I also have this disorder long with my sisters. It is passed on through gentics and a very hard lion to tame. I have found that it is absolute to take care of ones body. Pump up the immune system with all the things we are low in. This includes a life altering committment to how you eat. People who have this disorder need to bump up their systems with live fruits and vegtables. Need to stay away from the processed food as much as possible as they create issues. Processed food is for preserving foods so what do you think they do to our bodies?My particular Blood Compliment Disorder is linked to only people of Moracian-Jewish decent. For all of the negatives I at least get the satisfaction of knowing that my family heritage dates back to Africa. It is also found in the computer that there are only less than 20-people known on the face of the earth that have what I have. There are no known medical records that exsist for what I have except mine. I have a great General Practioner that has been great. The hospital does not like to even touch me unless it is a life or death situation. She medicates me through listening to my symptoms and then taking a shot at medications. Sometimes we loose as I am highly allergic to foods as well as medicatiions. I also can't be on antibiotics for long periods of time as it make me more ill than to do without. We save them for emergencies.I have compiled all of my medical records in one place so that I have documentation for others that might have this medical condition. I have kept one Physician for many years and I am in my 50's and with age the disorder seems to worsen.Should any of you have any thing that you might want to add or have questions, send my e-mauil address is adventure2befree820@yahoo.com.Linda
    Anonymous 42789 Replies
    • August 25, 2008
    • 05:25 PM
    • 0
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  • Linda, Thank you so much for sharing your story. I was wondering, if you don't mind me asking, are all of your compliment levels low? I think it's probably impossible for me to have the same immune disorder you do, since I do not share your heritage. Perhaps, though, it's similar. I'm still waiting for my blood test results, and it's been over a week. As far as I know, no one else in my family has complement disorders. My mother has Lupus, but her complement levels fluctuate. The tests from when I was younger showed that my levels were always low, except one time the C3 complement was relatively normal. The rarity of your complement disorder, and complement disorders in general, is clearly the reason my google searches never really helped me get any solid information. Do you know any sites I can look into for people with multiple compliment deficiencies? Or are they really just too rare to be on the internet (I know you said you're one out of 20!). Good luck with your health and thank you again for you response. When I get my blood test results back, there's a good chance you'll be getting an e-mail from me.
    S. Marie 2 Replies
    • August 26, 2008
    • 08:11 PM
    • 0
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