Discussions By Condition: Immune conditions

Lack of diagnosis

Posted In: Immune conditions 0 Replies
  • Posted By: Diane Sistern
  • January 30, 2007
  • 09:27 AM

I have been reading alot of the threads to do with immune conditions and it seems to me there is a severe lack of knowledge about immunodeficiency amongst the health professionals we rely on. should it be due to luck or by personal research that we discover these disorders that seem all to frequent, could it be that immunodeficiencies are on the increase due to the way we live and environmental effects, they still seem to be woefully underdiagnosed but i wonder if it is because the treatment needed, frequent infusions of immunoglobulins is so expensive that the health services would not cope if everyone that needed treatment got it. forgive me for being sceptical but it takes the average person with an immune deficiency 9 years to get a diagnosis by which time collosal damage has been caused to lung function, bowel funtion, sinuses to name but a few. I know this from experience my dad had cvid so did my sister, my cousin, and my self we all had difficuly getting diagnosed. But there is positivity i have a brilliant team of Drs / consultants in heamatology and immunology now looking after me and receiving regular infusions.

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