Discussions By Condition: Immune conditions

hiv? cvid?

Posted In: Immune conditions 6 Replies
  • Posted By: carneirt
  • May 11, 2007
  • 03:50 PM

My brother has a low platelet count and he often gets sick, bronchitis, pneumonia, chicken pox (x2), shingles. She seems in pretty good health except for her yearly pneumonia or bronchitis. She was adopted as a child and is now 22 years old and not sexually active. Recently a blood test came back saying she was hiv+. Is it possible that hiv can appear after 22 years? could this be cvid?

Thanks

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  • also...when stressed he gets canker like sores in his mouth THanks
    carneirt 3 Replies Flag this Response
  • Carniert I am confused, you say your brother but then you call him "She" and say "she" was adopted. Are you saying your brother adopted a girl? If so what country did she come from, and had she in the past been tested for HIV? When was the last test before this positive? My understanding with HIV testing it can take up to a year after infection to be postive but even a little longer. Cala
    Cala1234 57 Replies Flag this Response
  • sorry...my brother adopted a girl from Mexico. She has had many blood tests throughout her life, but never has she been diagnosed with hiv until now, 20 years later. Before this most recent blood test, she had a blood test done I think 5 years ago. She has not been sexually active either, therefore, I suspect that either she got it at birth or it's not hiv but another immune deficiency. Is this possible?
    carneirt 3 Replies Flag this Response
  • Carniert 1st I must say I know nothing about CVID. So maybe I shouldn't have responded. I do know that your local CDC should be able to help with your questions. Have they done a second test, with a complete different lab and did they do both tests? I think it's western and elisa? Because if I recall there are 2 test and one has a false positive rate. Sorry if I am not much help.
    Cala1234 57 Replies Flag this Response
  • well CVID and HIV are almost the same disease essentially they both have low immune systems i myself have CVID and get monthly infusions to help build my immune system up but im still sick and still get infections etc etc but ya to answer ur question they can be confused with one and another
    olseahorse 3 Replies
    • November 4, 2010
    • 08:04 AM
    • 0
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  • well CVID and HIV are almost the same disease essentially they both have low immune systems i myself have CVID and get monthly infusions to help build my immune system up but im still sick and still get infections etc etc but ya to answer ur question they can be confused with one and anotherHIV and CVID are not even close to being "the same disease". HIV is caused by a virus (CVID is not), the labs test HIV by antigen or antibody. I believe testing for antibodies first. If they get a positive result it goes through repeat testing, then if that comes positive again use a more sensitive by testing for antigen of the actual virus (for HIV).People who have CVID will not usually make enough antibodies to be detectable and therefore most be tested for HIV by antigen. Once people start IVIG or SubQ IgG the antibodies which are detected are actually from the infusions of IgG... these antibodies are NOT formed by the patients with CVID themselves.If her HIV test was positive then she is HIV positive. Yes she could have harbored the virus for years... but there are many ways to be exposed to HIV besides sex. Yes HIV does cause issues with the immune system but there are MANY parts to the immune system that do not necessarily correlate to the issues of CVID. People with HIV DO make antibodies, but specific types of leukocytes and specific types of complement (another part of the immune system) are effected. On the side to olseahorse (I've read a couple of your threads).... IgG levels of 4000 are way to high. Normal is about 600-800. Yes 300 is low but you only want to infuse to about 1000-1100. Unfortunately because of the half life of IVIG, you lose about half by the end of the month. You may want to switch to SubQ IgG (Vivaglobulin product name) It goes in below the skin and not in the veins. It is absorbed slowly and keeps the IgG levels more stable instead of the excessive High and Low peaks. Also (sorry), any physician who told you that you would die in a year from CVID needs to be dumped, and find someone who knows what their talking about (hard to do). But, I can completely relate to being sick all the time. It got better when they leveled out the IgG infusions. Good luck
    Anonymous 42789 Replies
    • November 10, 2010
    • 03:17 AM
    • 0
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