Discussions By Condition: Immune conditions

help!!

Posted In: Immune conditions 4 Replies
  • Posted By: Anonymous
  • July 10, 2006
  • 06:34 AM

I wondered if anyone knows much about immune deficiency.... I am told my son age 5 may have an immune deficiency. His symptoms include: night sweats, anemia, blood in stool and urine, excessive bloody noses(actually had to have his nose packed once), poor dental health, pneumonia(3 times).. he has also had 1 blood infection, and he has asthma, allergies and eczema... When he was younger he also had recurrent fevers of unknown origin and lots of little infections (ie: ears, rotovirus)

He has been re-immunized several times (more than the normal doses) and his bloodwork keeps coming back to say that he is showing little titers to these... (This is the 3rd time they have immunized and tested)\

Honestly I am very frustrated... 3 doctors have told us it is not an immune deficiency, however I am inclined to think that this is the only explanation. His current dr. is referring his to an immunologist.... His IGM is consistently low along with his IGG and his IgG4.

Anyone have any ideas?

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4 Replies:

  • hello i ame frome quebéc sow mi english is kin ove scile hihih sory , i mi salve was born with S.C.I.D. i was born en 1971 /30/01/ end the docters told me i was the 1 girl to be born that way and the oldest survivore ove that genetic twister S.C.I.D. i ame 35 today end beside some problems i ame very happy to be alive sow i wonthed to shere this litol part ove mi live with you sow you can se the posetive side ove thise incase it hise S.C.I.D. its a long tripe ahed spesely 4 parents but if i say if it coms at it i was saved bi THE SHELDREN HOSPITOL OVE BOSTON en de reserch dipartman i was 2 month 1/2 ove birth wen i was operathed i had a S.C.I.D . WITH A BON MAROW DIFISHENSE SOW THACK GOOD CARE OVE YOU AND HOPE TO GET GOOD NUSE FROME QUEBÉC :)
    Anonymous 42789 Replies Flag this Response
  • My son has a primary immune deficiency. He was diagnosed this Jan. and has been on IVIG since then. We are in the middle of a second opinion right now. Your son sounds alot like my son. I would go to that immunologist. Your son probably would benefit from IVIG. We know when your son next dose is due. He starts to slow down and usually gets sick and/or is hospitalized. I feel your frustration because I have been through it and I am still dealing with it right now. I have found the immune deficiency foundation-(www.primaryimmune.org) helpful along with the primary immunodeficiency association (www.pia.org.uk). I wish you the best of luck.
    Anonymous 42789 Replies Flag this Response
  • I wondered if anyone knows much about immune deficiency.... I am told my son age 5 may have an immune deficiency. His symptoms include: night sweats, anemia, blood in stool and urine, excessive bloody noses(actually had to have his nose packed once), poor dental health, pneumonia(3 times).. he has also had 1 blood infection, and he has asthma, allergies and eczema... When he was younger he also had recurrent fevers of unknown origin and lots of little infections (ie: ears, rotovirus) He has been re-immunized several times (more than the normal doses) and his bloodwork keeps coming back to say that he is showing little titers to these... (This is the 3rd time they have immunized and tested)\ Honestly I am very frustrated... 3 doctors have told us it is not an immune deficiency, however I am inclined to think that this is the only explanation. His current dr. is referring his to an immunologist.... His IGM is consistently low along with his IGG and his IgG4. Anyone have any ideas?The immune system is such a confusing thing! I to have had low IGG counts, but when retested they are always changing! I go to a Infectious Disease Dr. and I feel that your Dr. is doing right by sending you to a specialist. Hang in there, remember, you are your childs activist he can't fight for proper or correct medical care. If your not happy with an answer, then keep looking for more. I have been to more doctors than I care to say. I politly ask my dr for a referal and let him know that I'd like to go see dr "x", and I have found that as long as I am polite and calm that he is not offended. Good luck!
    captwife38 8 Replies
    • October 30, 2006
    • 04:48 PM
    • 0
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  • My son had some blood work done because he keeps a snotty nose and sinus infection. His blood work came back that he doesn't show any immunity to having the DTAP shot, he is 3 and has 4 doses of this shot. On the Prevnar he shows immunity to 3 out of the 7 sub categories- Any ideas as to what causes this? His red, white and all of other blood work was good. HELP, I am scared to death. We are set to see a immunologist also. His immunie diff. test came back ok. He keeps a snotty nose and cough, what about you? Have you been to see the specialist yet?
    Anonymous 42789 Replies
    • February 1, 2007
    • 04:07 PM
    • 0
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