Discussions By Condition: Immune conditions

daily headaches, nausea, malaise, light-headed, unknown illness

Posted In: Immune conditions 6 Replies
  • Posted By: Anonymous
  • January 29, 2008
  • 04:43 PM

Hi All,

I've been ill since October 2007. My lymph nodes were swollen but tests for Mono were negative. My EBV came back >750 (normal range is <18) and so my physician had me undergo a lymph node biopsy (from back of neck). This came back negative for lymphoma or cancer cells.

I continue to feel ill. Fatigue, Malaise,(the lymph nodes have gone down some but are still swollen). I have daily headaches (I hardly ever had headaches in all my life - I'm 48). The headaches more often than not are accompanied by nausea (I do not vomit but feel very bad). I even get light-headedness.

I run very low or no fevers. I went to the doctor yesterday and my CBC/bloodwork came back normal today.

I have autoimmune Thyroiditis and take Synthroid which regulates it. It took 2 years for my physician to figure out that I had Hashimotos and during that time I was very stiff, muscle spasms, fatigue, cold all the time, back pain. It was ME who figured out what was going on by doing loads of research online and finally requesting a thyroid antibody test. Although my TSH was often 3.5 or higher, this was considered normal (less than 5) so I suffered. The thyroid antibody came back through the roof and that is when they started treatment.

I also have herpes and occasionally have an outbreak but very few and far between.

I'm at my wits end on what to do to feel better. I cannot seem to find out what is going on by researching on the internet. My doc admits that SOMETHING is going on (because of the reactive lymph nodes and high EBV) but he does not know WHAT is going on. I am to the point where I don't even want to go to the docs anymore, since I am throwing money away and not getting a diagnosis. He now wants me to have a CAT Scan of my head this week - because he said it is not normal to have daily headaches when you never had a history of them. So, here goes more money down the drain but I doubt this will show anything since my lab tests are normal.

I FEEL SICK (like I have a virus) or like i do when my herpes is playing up. I wonder if anyone thinks this sounds like something?

Thanks in advance for your help.

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6 Replies:

  • Going for CAT Scan in the morning. You can add ringing ears to my symptoms and spacey feeling light-headedness.Sure wish someone would give me their opinion.
    Anonymous 42789 Replies
    • January 30, 2008
    • 10:37 PM
    • 0
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  • Well, just came in from CAT Scan and shopping before the winter storm. I have been feeling nausea, light-headed, ringing in my ears and headache. I have just heard from my physician that the CAT Scan was negative. I know I should be happy, but I burst into tears. I guess this is the ***l I'm going to have to live from now on. I can't get a diagnosis and I'm to the point where I'm ready to give up. No diagnosis means no treatment and no treatment means I have to push myself through life feeling sick.I just don't know how much more I can take. I work 8.75 hrs tomorrow and 15.5 hours on both Saturday and Sunday. It's no fun working with headaches and nausea. I hate our healthcare system. You pay and pay and get no help. It sucks.
    Anonymous 42789 Replies
    • January 31, 2008
    • 09:06 PM
    • 0
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  • Have you been tested for Rocky Mountain Spotted Fever? Well, just came in from CAT Scan and shopping before the winter storm. I have been feeling nausea, light-headed, ringing in my ears and headache. I have just heard from my physician that the CAT Scan was negative. I know I should be happy, but I burst into tears. I guess this is the ***l I'm going to have to live from now on. I can't get a diagnosis and I'm to the point where I'm ready to give up. No diagnosis means no treatment and no treatment means I have to push myself through life feeling sick.I just don't know how much more I can take. I work 8.75 hrs tomorrow and 15.5 hours on both Saturday and Sunday. It's no fun working with headaches and nausea. I hate our healthcare system. You pay and pay and get no help. It sucks.
    Anonymous 42789 Replies
    • January 26, 2011
    • 03:36 AM
    • 0
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  • You are not alone. Ask your doctor if you could have lupus. I am also 48. Female. Have herpes and work double shifts. Same symptoms. After 8 months at least I now know why.
    Anonymous 42789 Replies Flag this Response
  • I wonder if you are still ill now, from what I think you have.. I suspect you still are and quite possibly have even more symptoms now. The symptoms you described are very common Chronic fatigue immunity dysfunction symptoms also known as ME/CFS. ME/CFS commonly presents as viral like symptoms. Swollen glands/lymph nodes arent uncommon and neither is it uncommon to have high EBV tiers. In fact ME/CFS was once thought to be caused by EBV as there is a high relationship with that issue with this illness. Those with ME/CFS unfortunately often have high tiers of all kinds of things as they suffer from viral reactivations... and that is what it sounds like is going on with your EBV. Anti virals may help you some.
    taniaaust1 2267 Replies Flag this Response
  • I realize its been years since this message was posted but taking a chance to see if there is a response. I have the same issues and want to see if you received any answers??
    gaunyc 1 Replies
    • November 8, 2013
    • 06:41 PM
    • 0
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