:confused: I need help!!! My daughter, 17, has been diagnosed with autoimmune urticaria. She was postive on the skin ****k test and her igE (?) levels were through the roof. This diagnosis happened summer 2005. We tried inhibitors first, reactine, prednisone and the like. Not effective. Next we did IVIG therapy. This was done every 3wks, and she had the migraine symptoms, missing school for 3days every 3 weeks. This was discontinued as it was becoming less effective as time went on. Started with every 4-5 weeks, when done she had the hives after 2 1/2 week doing the treatment every 3 weeks. Christmas 2005 we heard from a Dr in Hamburg, Germany who recommened Hyroxychloriquine. This to date has been exceptional! The problem now is she is the "one in a million" type that is having retinal damage from the medication. We were told yesterday she must discontinue this medication or will be losing her central and perifferal vision. :( The doctors here admittedly dont know where to go with her, and I know her quality of life without meds is terrible. She was head to toe hives, even with them internally.
I have just heard of some kind of plasma transfusions, and the use of some kind of cancer drugs. Has anyone experienced the use of these for this immune problem? Any help, suggestions, referrals would be so greatly appreciated.