I was first diagnosed with low IgA, IgG, and IgM immunoglobins when I was hospitalized with pneumonia when I was 27 years old. Over the next three years I was referred to three different immunologists who all expressed concern about my continuing low levels and my frequent sinus and other infections, yet they all just recomended frequent antibiotics. I was never given an actual diagnosis. I finally stopped seeing the immunologists because one by one there was nothing they could really do for me.
Two years ago (at age 45) I developed Psitticosis from my new (now dead) pet parakeet. My family practice doctor was so used to my frequent respiratory infections that he didn't seem alarmed at first by my symptoms and the Psitticosis lingered for months. I was finally hospitalized when it invaded my nervous system. Fortunatly I recovered.
I am now seeing one of the immunologists again and my IgG and IgA levels are still very low. (My IgM has now improved to low normal.) My IgG subclasses 2 and 3 are almost absent. My IgA subclass 2 is zero. I have had sinus surgery, more sinus infections, frequent bronchitis, swollen hands etc... It seems that I am on antibiotics 2 to 3 times per month or more.
I must continue working (I'm an R.N.) or I will loose my health insurance. I have never smoked. I do not drink alcohol. I am usually a cheerful optomist, yet I am now feeling depressed, frustrated and exhausted. I still don't even have a diagnosis. My own research has brought me to the CVID diagnosis. My immunologist is a really nice man but when I mentioned CVID to him he didn't respond directly. He just said I should start allergy shots and take lots of antibiotics. Shouldn't I be getting Gamma Globulin?
My father was a clinical professer of eye plastic surgery at UCSF Medical Center, yet he died years ago. None of his old friends know anything about immunology. Does anyone have any advice for me? Any similar experiences? I am now 47 years old and my youngest child is only 5. I would really like to be healthy enough to raise her.
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