Discussions By Condition: I cannot get a diagnosis.

your thoughts and suggestions would be highly appreciated

Posted In: I cannot get a diagnosis. 10 Replies
  • Posted By: Anonymous
  • February 24, 2007
  • 06:49 AM

Heres my info below and alot of this is going to sound completely random but im lost so take a look. Thanks

Sex : Male
Age : 21
Height : 6'4
Weight : 171
Smoke/ Drink : Ive never had any nicotine or alcohol in my life at all
Profession : Professional cyclist

Heres some quick background of my lifestyle. For 6 years I was a professional BMX racer. Then I raced Mountain bikes for 2 years and am now road cycling at a professional level just not riding for a team right now. While not injured I average about 300 miles a week. Sense 8th grade non stop Ive obviously been riding a bike but I played basketball, soccer. Ran track and cross country all through highschool and every other day I swim a mile Ive been swimming at that pace for for about two years now. Up until Jan. 06 my only problems ever had been broken bones. But thats a given being on a bicycle that much. Your bound to crash eventually :)

Here are my symptoms

Jan 06:
for two months I could barely swallow and had extreme ear pain
Apr :
Found an absess tonsil. Had my tonsils and adnoids removed.
Apr- Jun:
still could barely swallow. Had to focus to swallow and ear pain got much worse. They found a bacteria but they eventually had to take me off the antibiotics because I was on them too long. The pain has become manageable now. Ive really just gotten used to it because of all my other problems to come.
July: There were about two weeks where my entire body hurt. And it was completely random. I would wake up, sit on the end of my bed and wait for a new pain to come. Within two hours that pain would be gone and now for instance my left leg would be throbbing. Then it would move again from side to side and up to my shoulder. That subsided eventually randomly.
August: For another two weeks somehow I could not move my neck at all. I didnt want to look either way. But once again that just went away. So rhe neck wasnt that big of a deal.
Oct. : SUCKED! So I was riding my bike. Felt like I got a really bad cramp in my back. I just kept going thinking it would go away.. well it got worse and worse until I eventually fell over riding in the middle of the road. It was kidney stones. Ambulance had to come :) all I can do is laugh at that one. It took me two weeks to pass five calcium stones. And I also get plantar fasciates in my left heel. But that didnt bother me to much. They told me I cant really damage the plantar any worse so I just ride with the pain. It takes alot to get me off a bike. The kidney stones worked :)
Nov. : It felt like I was completely new to cycling because I was having every problem new cyclist have. Wrist, IT BAND, back, shoulders.

Ok so this is where it gets interesting. In Dec driving home one night I felt this small cramp like feeling in my abdominal area. Went to sleep hoping it would go away. Woke up with it feeling pretty bad, got into a doctor that day, did a urine sample. found out that afternoon everything looked fine. The next day I wake up to it hurting extremely bad. Decide to go into the ER. They didnt know. Well the next day. So three days from the start of the pain the pain is a little better but my left testicle has swollen to about triple its normal size. Go back into the ER. They do an ultra sound and a urine and blood test. Everything looks fine but they say its Epididymitis. Which I didnt understand because theres no infection. So I go see a urologist. He doesnt even bother to look at me. Just gives me doxycline. So I go get a second opinion. He says its prostatitis and not epididymitis. Which I do understand run together. Ok so now about two weeks after that first pain my left big toe starts hurting. Im sitting on the coach and out of no where my big toe is throbbing. go to a podiatrist. He gives me a cortisone shot. The next morning I literally wake up to all my toes on both pain including that big toe feeling like they had been smashed with a hammer.

Its now into Jan. The toes, and prostate and testicles have not gotten better at all. And now just for fun I cant extent my arms fully. Like the inner part of elbow hurts so bad. Im also noticing my vision feels blurred/ doubled and my eye lids shutter from time to time.

Now my latest problem while swimming my thumbs startedhurting extremely bad and now wont go away. Have no idea how that happened. Im also getting these shooting pains from my tail bone to my penis. Im also getting random bruisings on my body that I know are not from injury.

During the summer I saw a rheumatologist for those random pains. With blood tests and examaination he said everything looked fine. Sense December I have seen Urologists, rhuematologists, nueralogist, endocrinologist, sports orthopedics and with blood and urine test, EMG test and an MRI of my lower back they have found nothing.

The only thing one rheumatologist suggested. He said "im just making a guess" is that I have raynoids disease and thats the toe pain but my toes dont feel cold, to me or to the touch. They just feel like pins and needles and numb along with the pain. So I tried nyfidipine (sp) for that and it didnt do anything. A sports ortho Ive been seeing has me on gabapenton but I thought the EMG ruled out nueropathy? The nueralogist didnt think it was that because of the test results also. The gabapenton doesnt help either. I just feel like a ***n zombie on that stuff.

Im pretty much losing my mind. I havnt been a bike sense Dec. 24th. Thats a long time for me. It feels like I cant do anything now without getting hurt. I mean I swim and thumbs are killing me. Its not like im new to swimming either. Over the years of competing ive become very familiar with my body and pains from overuse problems, like muscle strains and what not. All these pains ive been experiancing ive never felt before.

I know alot of this seems random but ever sense January 06 its been one thing after another from the previous 20 years of my life really not having one thing wrong with me at all.

One thing Im continually asked is if Ive made any life style changes this last year. I know my diet hasnt changed. If anything my excercise has gone done a little. especially these last three months. I did travel to France and China this year but came home feeling fine. The only thing I can think of thats changed is in Dec. of 05 I bought my first home. Before that I had lived with my parents for 20 years in the same house my entire life. But during the summer with that ear and throat pain I was tested for allergies and everything was fine. The only test that has ever shown anything which really wasnt even a test was the Kidney stones. But thats pretty obvious.

So thats my story. Any advice would be amazing. Because im completely lost. Its extremely frustrating when you make a living from your athletic ability and it feels like those have been taken away from you.

Thank You very much

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10 Replies:

  • It could be Lyme related. Check out www.lymenet.org. Lyme undx'd depletes the body of lots of minerals and messes with the whole body and head too. You could have been bitten in the head and never known it, since thats when most of this seemed to have started. Best wishes.
    Anonymous 42789 Replies
    • February 24, 2007
    • 11:27 AM
    • 0
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  • Have you been tested for lyme? I understand it is hard to get a positive test for this - try to research this. Do you take any supplements? Any meds? Is the pain constant? Does massage help or make it worse? Is the pain worse or better in the morning? After exertion? Is there a burning sensation? Please consider acupuncture to help you with your pain and other symptoms. It works wonders. Chinese medicine looks at the whole body, and an acupuncturist will be able to diagnose your disorder according to Chinese medicine. It is a great adjunct to Western diagnostics. To find out more info and find a practitioner near you please visit www.acufinder.com. Best wishes.DOM
    acuann 3080 Replies
    • February 25, 2007
    • 03:31 AM
    • 0
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  • I will look into the acupuncture. I am also going to research lyme desease. I know that hasnt been brought up before. Thank You for your response.Right now what im taking daily is four 800 ibuprofen, Septra twice daily and Im taking some Prostate vitamin thing for the Prostatitis. An Ortho has me taking four 300 gabapenton for the toe pains which he thinks is nerve related. And I have always taken a multi pack of vitamins, trace mineral drops and cod oil daily for years. Other than my vitamins I have been on all this for almost two months and I would say the symptoms have gotten worse. No where near feeling better from the drugs.The shooting pain from my tail bone to my penis is extremely hurtful and sharp. When ever it happens I freeze up. I would say it happens once daily.The prostatitis is uncomfortable while driving or seated. It has gotten better when Im standing. I wouldnt think of getting on a bike. And trust me, I think about it. ALOT:) But Im thinking its something different than prostatitis because the pain isnt the same nor in the same area as when I was diagnosed with prostatitis. I was examined by a urologist at first and he felt the prostate and thought it felt slightly inlarged. Later a myofascial massage theropist felt the prostate and thought it was not swollen at all. And around that time is when the pain moved. The best way I could describe it is up higher, more on the outside than so deep? and much sharper than the dull ache feeling. I dont have any of the prostatitis symptoms. No problem with flow urinating, no burning, no problem with ejaculation. And I dont always feel like I need to urinate.The toes are severe. Right now I am limited to swimming at a low dose because even the prostate area hurts while swimming. When I swim I flip turn at each end. Put my feet up to catch myself and then go back without pushing off. If I get out of bed I have to put my shoes on each time. Even just to walk to other end of the room.Those are main my three issues right now. The prostate, toes and that shooting pain. The bruising, blurred vision and thumbs are torrible. The bruises only hurt when touched. One thing I noticed is last Fri. two days ago I was given another blood test. Im sorry I dont remember what it was for. But where they took the blood has now turned into a bruise. And thats never happened before. I used to give blood all the time. Another thing Ive been noticing is my toes seem to hurt more when my knees are bent. Say if im driving or in a chair. And Im making sure my feet are flat on the ground. They sometimes hurt more seated than actually walking.I see a myofascial massage theropist once weekly for about a month now I ive gotten no relief out of that. My feet feel a little better if I put them in a Hot tub but I cant get in all the way because my prostate area will feel worse afterLike I mentioned before over the years of competing Ive become very close with my body and none of these pains from this last year come close to anything Ive ever felt. I also have a very high tolerance of pain. I think that comes from the endurance activities I do. It really does take alot to bring me to a stop. And these problems have really brought my life to a stand still.
    Anonymous 42789 Replies
    • February 25, 2007
    • 05:39 AM
    • 0
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  • quick question.When I saw a sports ortho on Fri. (three days ago) he said that if I get any types of rashes or bumps on my body to call him asap. He talked about some condition but I didnt really fit it because I showed nothing on my skin. I guess thats the key sign.Anyways I scratched my arm because I felt an itch and found this lump that I guess looks like a wart on the outside of my wrist. Where the arm meets the wrist kind of underneath. I would say its half the size of a key on a key board. When I scratched my arm I cut it and for about a half an hour this puss like stuff came out and wouldnt really stop. But no blood came out. It hasnt really gone down or anything. I dont know if this is just random and now im thinking about it but it feels like my hand is now asleep after noticing it. I know it wasnt there several days ago because I shave my arms for swimming and I would have noticed it for sure.I wish I knew what the doctor was talking about. Im going to have to call him on mon.
    Anonymous 42789 Replies
    • February 25, 2007
    • 09:30 AM
    • 0
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  • It might be that you are trying to connect unconnected problems. Cycling can cause a lot of genito-urinary problems. It is possible that you might have a varicocele which is a varicose vein in the scrotum (it usually affects the left testicle). Ultra-sound and a proper examination should have picked something like that up though. There is a range of other problems cycling can cause and you should make it clear to the doctor the amount of cycling you have been doing. The pain from your tailbone to your penis is almost certainly related to whatever it is. The sore throat you had might have been glandular fever (mono). If so it can take an age to clear your system. It is related to chronic fatigue and MS, so jumping straight back on your bike might not have been the wisest thing to do in retrospect. It is caused by the Epstein Barr virus and there is a test for that. Having said that, a positive result is not uncommon even in healthy people. This might still be the cause of your aches and pains, alternatively they might be down to displaced pain from your testicular discomfort. Just my opinion though!
    Anonymous 42789 Replies
    • February 25, 2007
    • 00:12 PM
    • 0
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  • Interesting. Thank you for your thoughts and suggestions.I do question if this can all be related. Its just to random for it all to fit together I think sometimes. I guess my concern is it just seems like I cant do anything anymore without getting hurt or something new showing up. With the throat it never really was sore. Its more that I have to focus to swallow. Like Ive almost forgotten how to swallow. I guess I would say its just not as smooth. But it doesnt feel sore at all. And I would say my ears are more a problem than the throat.As for that wart thing I mentioned a couple posts earlier Ive got five different spots that now have these bump looking things on both my arms. Ten hours ago they wernt there. And the big one on my wrist has turned orange.I know I havnt been around poison oak or anything and Ive never gotten it anyways. I can actually grab the stuff and not get anything. not that i do all the time but I have before:)Thanks again for your thoughts
    Anonymous 42789 Replies
    • February 25, 2007
    • 07:01 PM
    • 0
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  • Have to say it sounds lke you might have been bitten by something since the lumps came up pretty fast (the wrist is warm and flies home in on it). It sounds like the one on your wrist might have gone septic if you have. You should get it checked. A very long shot and an unlikely one, but look at Xanthoma. The reason I have mentioned it is because you appear to be having a lot of pain in your tendons (as well as these lumps).
    Anonymous 42789 Replies
    • February 25, 2007
    • 07:54 PM
    • 0
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  • You are young and male but fibromyalgia can be a real strange thing. I have been poked, prodded, mri'd emt'd bloodworked, nothing ever shows up. The thing in the rear to groin is extremely painful, all yoou can do is breath and walk(for me) and pray that it leaves immediately. the pain is then constan for a day or two after that in the groin area. Kidney issues according to drs. and back spasms. Every professional that has ever seen me says the same thing no matter what I am seeing them for. Hmmm. This is weird. This is unusual. I've never seen this before. Fibro is very random in its pain and everywhere that you have had an injury will act up with a vengeance on occasion. Good Luck.Find a doctor that does not tell what it is right away. One that says I don't know is willing to look and help.That has been my experience and I have had alot in my 50 yrs. Once you know, then you can cope alot easier.
    Anonymous 42789 Replies Flag this Response
  • Ken is making a lot of sense to me. I am wondering about your new house, however. Is this a new house? Does it have mold or could it be sitting on a radon leak? How about the ventilation; is it dirty? You might want to try homeopathy since you are not getting any relief.
    Monsterlove 2921 Replies Flag this Response
  • Check out the symptoms for Dercum's Disease.
    Anonymous 42789 Replies Flag this Response
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