I'll try to be brief. Me - 50yr female with 18 yr old daughter. When she was 1 I developed 3 DVTs in 3 deep veins in left leg, extreme shortness of breath. Hospitalized for 3 weeks - Heparin drip followed by 6 months on coumadin. Slowly developed the following symptoms: episodes of chest pain and down left arm, confusion, memory loss, blurred vision, low BP. All cardio tests were okay but then Docs put me on treadmill - collapsed with 138 pulse. HR/BP sudden drop, incoherant. Given atropine and taken for cardiac cath - nothing showed. Symptoms continued with occasions also of sudden fast HR (180) during rest and other symptoms. Failed TTT with drop in HR/BP. Daughter developed symptoms - first showed up when she was about 10 and swimming competively. Got more frequent around age 15 to complete collapse and same symptoms as me. She failed TTT - HR/BP drop. Symtoms are always there at some level along with fatigue. Family history: grandfather with "thick blood" (blood taken regularly as treatment), mother with autoimmune disease (sojgrens), dad with MS. Only diagnosis we get is NCS but we never faint except on TTT - wondering if it could be Hughes (APS) or other blood disorder. Any input would be great....I would love you if you could point us in the right direction!Reply Follow This Thread Stop Following This Thread Flag this Discussion
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