Discussions By Condition: I cannot get a diagnosis.

worried about my daughter

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: irislovingirl
  • May 12, 2008
  • 02:34 PM

My daughter is 5 years old. She was born with fluid in her ears and spent the first couples years of her life deaf. She had jaundice when she was born. I didnt think much of it then. The doctors did several surgeries to repair her hearing. She also had her tonsils removed. Recently, she has gotten a cyst on her chin. The doctors claim it is throglossum duct cyst, yet when she did a ct scan nothing was showing up. Growing up she always gets bloody noses when shes swimming. Lately, she will get them before storms. She is a very high spritited little girl and doesnt let anything slow her down. When her cyst is inflammed it makes her face get flushed. The doctors recommended I bring her back to see them when it inflames again. I constantly worry it is worse than they are telling me. If it was the thryoglossum cyst wouldnt it have showed up on the ct scan? What could be causing her to have frequent nose bleeds related to water? :confused:

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  • First of all, I'm so sorry to hear what your daughter is going through. :( In regards to the nosebleeds, it is not uncommon for your daugther to have sinus-sensitivities if she has had difficulties with her ears in the past. Both swimming and storms are common triggers of nose bleeds. Any water that may enter her sinus cavity, the chemicals in the pool, and the change in pressure when you swim can all cause blood vessels to rupture. The same is true for storms due to the change in barometric pressure. Individuals who do not suffer sinus sensitivities are not likely to notice the changes in pressure, but it may be significant enough to affect your daughter (similar to how individuals with arthritis and pets can predict/feel storms coming). In terms of the cysts on her chin, frankly, I don't know much about those type of cysts, but I have heard that ultrasounds tend to be better at imaging cysts than CT scans are. You may want to speak with your doctor about the possibility of scheduling an ultrasound. Best of luck to you both. I truly hope your daughter feels better soon.
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