Discussions By Condition: I cannot get a diagnosis.

Wilson's Disease

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: susan84peace
  • September 9, 2008
  • 11:07 PM

I keep having these symtoms that my doctor can't explain, I get this acid like feeling all over my body. It's like a rush of acid being poured all over my mucsles. He says I have Wilson's Disease, but he still can not explain that feeling I get.Oh and my side starts hurting,as well..please help:confused:

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5 Replies:

  • I need more info, does it hurt, tingle, go numb, what do you mean by acid being poured on you?
    qwertyuiop123 453 Replies
    • September 9, 2008
    • 11:08 PM
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  • It's like a tingling feeling with a slight burning sensation, and my blood vesels become more visable, along with goose bumps. It feels like acid running through my body.
    susan84peace 2 Replies
    • September 9, 2008
    • 11:18 PM
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  • how were you diagnosed with wilson's, did you already know you had that, or did you find that while trying to explain the acid feeling or what??
    qwertyuiop123 453 Replies
    • September 9, 2008
    • 11:23 PM
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  • The copper test that they took confirmed that I had High amounts of copper in my system, and I also Have Acute cirroses of the liver. I have had the symtoms before but my doctor hasn't been able to explain why. It started really acting up after I started taking my medication to remove the copper then I stopped taking the medication for a day and the symtoms sopped. Yet todaty it is acting up again. It also tend to happen alot when I'm active. DO you think it might be lactic acid?
    susan84peace 2 Replies
    • September 10, 2008
    • 00:18 AM
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  • It sounds like the med could be the problem. Ask your doctor if there is something else s/he could switch you to.
    aquila 1263 Replies
    • September 10, 2008
    • 05:12 PM
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