hi my name is casie, i'm 17 years old && about four years ago i started getting some strange symptoms. My mother has tried her hardest to get me some help but no doctor seems to be able to tell us what is wrong. i will list the symptoms in the order they occured && hopefully somone will be able to help. thank you && god bless.
growing up i complained of leg cramps all the time. not the usual growing pains, i literally carried a heating pad with me wherever i went from the time i was about 4-11. if i could not get to a heating pad, nothing would help, i would be in excruciating pain.
at age 13 i develpoed a small bump (under the skin) in the lower left quadrant of my abdomen. at first it caused no pain, except when i ran. being an active cheerleader and dancer, i eventually had to quit due to the fact that i could not move that way anymore without being in a lot of pain. also, i realized about 5 months after finding the mass, that when i was stressed pain would radiate from my lower abdomen, down my leg and up my back. the pain became so bad i began sleeping much more than normal and also began missing many days of school. i was started on anti-depressants and tried changing my diet but nothing helped.
around this time is when we first started to visit doctors. endometriosis and celiac disease run in my family on the maternal side. i was tested for celiac && then had an upper endoscopy. the results were negative. in april of 2005 at 15 years old i underwent exploratory surgery. the gynocologist found a small amount of endometriosis but not enough to be causing the pain.
i should also note that i have been seeing a chiropractor since i was around 8 years old due to the fact that my muscles do not hold and my neck and back are always out of place, causing a lot of pain. i now see him about every 2 weeks and cannot go much longer than that without getting a very bad headache.
about a year and a half ago i started noticing that my knee's hurt a lot. i was given and x-ray and the doctor noticed that i had way to little cartilage for a person my age. i was then given an MRI which showed nothing was wrong.... i attribute the different diagnosis' to the fact that during the x-ray i was standing and during the MRI there was no pressure on the joints. along with knee pain, i started having pain in my other joints, including my hips, ankles, shoulders and lately my elbows.
my muscles are always sore and i was told by one person that my lymph nodes are very inflamed.
within the last year i have had two new symptoms both of which scare me alot. first came the memory loss. it started with just forgetting simple things, like leaving books at home which i knew i must take to school every day. it then turned to problems reading. i will read a page but it is as if i am just looking, not taking in any information. also, i would be talking and completely forget what i am talking about. this evetually lead to my dropping out of high school because i could no longer read or understand what we were supposed to be learning.
my last symptom occurs when i do not go pee. for instance if i am driving or sleeping, my back starts to hurt really bad, but when i go, everything returns to normal. i have also had 2 urinary tract infections in the past.
sorry it was so long, but any kind of help will be greatly appreciated!!!