Discussions By Condition: I cannot get a diagnosis.

Why haven't i been diagnosed with POTS?

Posted In: I cannot get a diagnosis. 6 Replies
  • Posted By: Anonymous
  • January 28, 2009
  • 07:46 PM

Hi i've been ill now for nearly 6 months with multiple symptoms including feeling faint, dizzy, severe fatigue, headaches, nausea, excercise intollerance and many more so i asked to be tested for POTS Syndrome.
So i had the tilt table test this morning and while laying down waiting for the test i felt fine just a little stomach pain and fatigue. But as soon as they raised the table i instantly felt dizzy and lightheaded and had nausea, headache and just felt terrible like i was gona collapse and i was sweating and my legs went weak. My heart rate went up from 90bpm to 150bpm and stayed at 150 for the whole test and i didn't even have the isuprel thats supposed to bring on symptoms. Yet after the test they told me they didn't believe it was POTS. How was i not diagnosed with POTS?

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6 Replies:

  • I have no idea, but if you're in doubt, ask for a copy of your test results & get a second opinion.
    aquila 1263 Replies
    • January 29, 2009
    • 05:19 PM
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  • Anyone? .
    Anonymous 42789 Replies
    • January 31, 2009
    • 10:21 PM
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  • If you or someone you care about has been diagnosed with POTS chances are its been a long road to actually get a diagnosis. So now your wondering, what is this mythical condition and what can I expect? Don’t expect allot of answers from doctor simply because it effects people so differently. Many doctors don’t even know what POTS is. POTS stands for postural orthostatic tachycardia syndrome. It is a form of dysautonomia. POTS symptoms can occur due to many different abnormalities in the body. Some disorders associated with POTS symptoms have been identified. Many of the causes of POTS still remain unknown. It can be difficult to distinguish between the causes and effects of this disorder, which further complicates matters.
    Anonymous 42789 Replies
    • February 1, 2009
    • 00:42 AM
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  • If you or someone you care about has been diagnosed with POTS chances are its been a long road to actually get a diagnosis. So now your wondering, what is this mythical condition and what can I expect? Don’t expect allot of answers from doctor simply because it effects people so differently. Many doctors don’t even know what POTS is. POTS stands for postural orthostatic tachycardia syndrome. It is a form of dysautonomia. POTS symptoms can occur due to many different abnormalities in the body. Some disorders associated with POTS symptoms have been identified. Many of the causes of POTS still remain unknown. It can be difficult to distinguish between the causes and effects of this disorder, which further complicates matters.
    Anonymous 42789 Replies
    • February 1, 2009
    • 00:44 AM
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  • Just to update the results got sent on to a specialist and they confirmed its POTS
    Anonymous 42789 Replies
    • February 18, 2009
    • 05:02 PM
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  • Just to update the results got sent on to a specialist and they confirmed its POTSJezz,I have been through the ringer myself, even being committed to a mental facility (voluntarily). I had a few replies to a video I posted on youtube in desperation. A video I had my Dad record of myself having one of my more extreme symptoms. The one thing that kept coming up was POTS. The diagnosis seems to fit more than anything else I have researched. I know that I am not meant to self diagnose however I am at the point of applying to go to Med School. And right now, even if I get a diagnosis, I am still going to go to Med School if I can, as I am very intrigued.http://www.youtube.com/watch?v=X1d1HIh7yoE-Amanda
    flutterby82 2 Replies
    • February 23, 2010
    • 07:32 AM
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