I have had chronic B12 deficiency since I was 12, and anemia since I was 4. It comes and goes my levels tend to bounce.
In the past 6 years I have been very ill.
I lost 35lbs, and I hover around 100lbs now.
Nausea is horrible, diarrhea often accompanies it.
I get these attacks where I get dizzy, start dry heaving and have to use the bathroom. I start shaking, sweating, and I have a hard time walking. I can't stand up straight. The pain is around my belly button (it swells) as well as all the way through to my back.
I have muscle aches, to the point I can't walk. The rheum. doctor says I have inflammation but my blood work is negative. When I wake up in the morning I can barely move.
The doctor also said that I have extreme weakness on my right (dominant) side.
I faint easily even when my b12 levels are normal, I've gone years with normal b12 levels.
All they know is I have HLAb27 gene, and problems with my RBC and B12. that's it. I take supplements and have a very good diet. I've gone to three gastros who have done colonoscopys and endoscopys with no results.
I don't know what to do. i can't function anymore and no one seems to know what the problem is :(
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