Discussions By Condition: I cannot get a diagnosis.

White brain matter, Stomach, Mouth pain

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: firefly9
  • April 2, 2009
  • 00:53 AM

Hi I am new to this site and looking for my dx. I have been very sick for the last 8 months and have gone to many different doctors. I had right tonsil soft pallet cancer 5 years ago and a pet scan 1 year ago..it came out fine. I do have Poly Neuropathy, Fatty Liver, 2 swollen lympnodes in left lung, lichen planus, Vulvodynia and mouth pain that burns my entire gums. My tongue is beet red and has cracks up and down, it's very hard to eat.

When this all first started the pain in my stomach, mouth and vagina BURNED for 3 months and stayed in the same place. I was fine until my monthly cycle (period) started then the pain started as well and was worse than it was before. The stomach pain was only on my left side directly under the bottom of my left rib cage and in my back on the same side directly in line with the stomach pain. for the next 5 months the pain only returned when my period came and left when it left. It also started to jump around my stomach. Some times it would be on the lower left others on the upper right. This month my period left and the pain stayed and has not let up.

I have had 4 MRI's, 3 Cat Scans, Colonscopy, Endoscopy and numerous blood test. I do take narcotics to control the pain as best possible. I had a Brain MRI done on me about a month ago and it showed white matter on my brain. My doc thinks I may have MS but that is still up in the air. He also had a T-Spine back MRI and it was ok. I'm not sure if I have lesions in my spine at this point. One doctor doesn't think my stomach is related to my Brain, another one thinks it is related. I don't have a clue :~( !!

Does any one have any idea what could be wrong with me?? I do have appts to see all my docotrs in the next month so if you even think I may have something please tell me so I can tell my docotrs. I have a 10 year old daughter that I want to watch grow up and right now I'm not sure if I will make it to Christmas!!

Thanks for reading my post...hugs, V

Reply Flag this Discussion
Thanks! A moderator will review your post and it will be live within the next 24 hours.