I am 27 female. My problems started shortly after the birth of my first child (8 years ago).. My hips were very painfull. It took three years to be referred to a rheamatologist as they kept telling me that it was nothing and that I was too young to have any form of arthritis. (my mother was hospitalized when pregnant with me and my twin sister with what was thought to be osteo arthritis) Now she has SLE and RA)My twin also has many problems including: fibromyalga, epilepsy and complex pain syndrome.I have been under my rheumy for 4 years and have been tested for many conditions but still yet to have a formal diagnosis.Here are my symptoms: severe pelvic pain which comes and goes I was told it is synthesis, camptadactly, clinadaytly which I have had since birth but has now got very bad.(My hands are always hurting especially when doing anything repetitive).Tiredness from the moment I wake up yet this does not improve even if I have 12 hours + sleep.My ankles and heels of feet always hurt so much , I can not wear heeled shoes at all without severe pain they always feel as I am walking on glass, heels seem to make this worse. My pain seems to move around my body, one day my foot the next it could be my back.
Severe lower back pains that seem to move up wards within a couple of days to the base of my neck and inbetween my shoulder blades. If I am sitting and turn my back clicks at the bottom. It feels as though my legs are not positioned in my pelvis properly, my right leg seems shorter than the left and my trousers drag on the floor on my right leg but do not my left.
I feel weak like there is not enough power in my arms and legs and as though I have no stamina -even something as minor as changing bed sheets can really take it out of me.I am also quite forgetful and cant seem to work out simple number problems that even my 8 year old son finds very easy. I can easily lose track of my thoughts and also conversations which can be very embarrassing. I also have Lots of spider veins popping up all over my face, chest and arms,but I only drink very, very rarely with major consequences( feeling very ill and weak for days afterwords). I have dark pigmentation patches on my arms and face. The sun makes me feel very weary and also give me hives at times even if I do not go outside. I have very frequent headaches at the top of my head and over my right eye ( when it is severe I can not say the words that I am thinking) and an almost constant sore throat.
My rhemy has tested me for Addison's but the test was negative also my RA is always negative. My vitamin D is low as is my PTH, and my blood pressure is never more than 90/50.
It seems that my symptoms are quite random so don't know if they are all caused by one particular disease or illness. I take LODINE 600mg daily and Plaquenill 200mg twice a day , codeine when needed but the codeine makes my memory much worse so I try not to take it wherever possible, neither seem to do anything for my pain. My pains always get worse when I am resting and in the evenings , if i do too much in the daytime I really pay for it after wards either the same day or the next days after.yet if I do not do much it is very bad also.
If anyone has any indication what this could be I would be very great full as I have 4 young sons to care for and feel that I am wasting my life (and theirs)away as I am in so much pain and struggling to do the normal day to day activities with them. hope that someone who reads this can help.
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