Discussions By Condition: I cannot get a diagnosis.

Where Do I Begin

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: bellewun
  • July 12, 2007
  • 08:29 AM

I first started out with thousands of polyps in my stomach,large intestine, and some in small bowel. they first said Pertz yegar syndrome :confused: these polyps are like fine carpet completley covering my intestines. I did have giardia and had treatment. I have a persistant cough more at night and I have to sleep sitting up at times as if i dont take my stomach tablets everything comes back up and I almost choke. I now have had a biopsy and they said I have hypogammaglobulinemia :confused: i have to have Iron infusions as I get quite tired almost everyday I eat normally but have gone off white bread tomatoes and have a sugar fettish which im worried about. I just need to know what else can I do, this low blood makes me not only tired but depressed and vague foggyness :confused: of the brain im too young for all of this, I also have a lymph node that is constantly up in the groin.
well that says it all anyone know anything that can help me to ask my doctor test ect that can help thankyou:confused:

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2 Replies:

  • Google it...physical therapy is recommended to drain your lungs, etc. Sorry, it look rather genetic. Keep your immune system up by eating organic foods. Probably will need something to elevate you, like yoga, meditation or hypnosis.
    Monsterlove 2,921 Replies Flag this Response
  • Check out www.peutz-jeghers.com. Your doctor may need to refer you to a gastroenterologist (doctor for the digestive tract). This is a genetic disease (other members of your family are probably also affected), so it wouldn't be something you're 'too young for.' Peutz-Jeghers is manageable, but if that's what they say you've got, you should educate yourself about it.Good luck.
    Anonymous 42,789 Replies Flag this Response
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