Where do I start!
Well let's see I went for a job related physical, and the PTH (parathyroid) lab results came back high, starting this long journey to what seemed like an easy diagnosis in the beginning. The first step was a referral to an Endocronologist who sent me for more lab work, since the calcium level results were normal. Once again, it came back normal. The next step was a Sestamibi scan, which also came back with normal results. The doc, seemed already confused because I have all the symptoms of hyperparathyroidism. kidney stones, fatigue,osteopenia,body aches,etc. So he orders more lab work (PTHR2) -- ultrsound/CT scan. Again those came back normal. By now he's really confused because without a high calcium lab result and negative scan readings, he could not diagnose hyperparathyroidism. So then he sent me for a full body (PET scan) thinking there could be an underlying condition like Lung Cancer. That too came back with a normal reading, but confirming kidney stones which we already new about. He then sent me to another Endo doctor, who doesn't have any answers either. The first doctor says that exploratory surgery would be unheard of since all scans have come back normal. So he calls the other doctor and now is talking of sending me to the university hospital to see the professor in hopes that they can come up with a diagnosis or find possible cancer or any underlying disorder. Is there anyone out there who has gone through this? I also have a few family members who have had glandular cancers and disorders. Hopefully they will figure this out real soon, this fatigue is sometimes unbearable.
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