Discussions By Condition: I cannot get a diagnosis.

Whats wrong with me? PLEASE help.

Posted In: I cannot get a diagnosis. 6 Replies
  • Posted By: RLee2007
  • October 6, 2009
  • 10:05 PM

I am a 25 year old female. Healthy my whole life, normal weight range, have one 3 year old son. For 2 years now I have been experiencing these weird symptoms. It happened out of nowhere one night for the first time while I was just laying down watching TV. I had just had an abnormal pap smear and had to go back for further testing which came back negative. I experienced a strange sensation in my arm. Like needles poking. Then I stood up and felt dizzy and faint. I called my sister who lived with me at the time and she called an ambulance. I thought I was dying. They took my BP which was high but going down by the minute. They said I was having a panic attack and no need to go to the ER.

Well ever since that day I have been having "episodes" of these symptoms. Some days I am 100 percent fine. No symptoms at all. I can go with no symptoms for weeks even a few months and I will think they are never coming back. But then out of no where again, the symptoms come back and they last for days or sometimes WEEKS.

Here are my symptoms:
-Weird headaches like a pressure or my head feels like it's going to blow up.
-weird chest pains. sometimes shooting pains sometimes a dull achy pain.
-feeling of "out of my body" like I'm not me or like I'm somewhere else
-dizziness
-fatigue
-shortness of breath. I feel like i have to breathe deeply to get air.
-just a strange panic like feeling. like i'm dying at any minute.
-a "jittery" feeling all over my body. Sometimes you can even see my hands shaking.

Now when the symptoms are not there, I don't feel the anxiety. I have been to MANY doctors. All say it's anxiety. I have tried several medications. xanex is all that seems to help but only for a short time and the symptoms come back. I have been to a cardiologist, a neurologist, and my regular doctor. Not to mention the many times my husband has taken me to the ER for this. And had many tests including blood work, CAT scan, MRI, Chest xrays, ekgs, etc. NOTHING has shown in any tests that there is anything at all wrong with me. All my docs say I'm perfectly healthy and these symptoms are simply anxiety and panic related and i need to calm down. Well its hard to calm down when I feel like I'm dying. So basically I'm not sure if the symptoms are causing the anxiety or the anxiety is causing the symptoms. I am scared to death that I have a horrible physical problem no doctor has discovered yet and that I will die if I continue on this way. Are all these symptoms "normal" for just an anxiety disorder? And if not, why are all my tests and doctors saying I'm healthy? The symptoms seem to have no rhyme or reason. They come and go. I am so tired of this. PLEASE help me!

Reply Flag this Discussion

6 Replies:

  • Look at the symptoms for Neurally Mediated Hypotension aka vaso-vagal syncope aka Chronic Orthostatic Intolerance aka Postural Orthostatic Tachycardia. I had a body scan done around your age 4years ago and the doctor of internal medicine looked at my symptoms (the list you have plus many additional symptoms including high blood pressure) and my scans and said go to a cardiologist you have NMH. I did all of the cardiology tests and everything looked fine, but the cardiologist is in his late 30s and said well something isn't right and you fit all of the symptoms and gave me a beta-blocker to stop the fainting and reduce some of the other inconveniences.http://www.healthy-holistic-living.com/high-pulse-low-blood-pressure.htmlAfter a pregnancy many years back, I started with PCOS and anemia, which went undiagnosed until recently. I don't know that either are effecting you, but I can tell you that pregnancy/child birth are traumatic events for your body at least from a hormonal and blood chemistry perspective.So, I strongly suggest having your blood levels checked to make sure your vitamins, electrolytes, and hormones like B12, iron, DHEA, and cortisol levels are in safe ranges because that can add other symptoms over time. I wish you well.
    Anonymous 42789 Replies
    • October 8, 2009
    • 02:45 AM
    • 0
    Flag this Response
  • I am a 25 year old female. Healthy my whole life, normal weight range, have one 3 year old son. For 2 years now I have been experiencing these weird symptoms. It happened out of nowhere one night for the first time while I was just laying down watching TV. I had just had an abnormal pap smear and had to go back for further testing which came back negative. I experienced a strange sensation in my arm. Like needles poking. Then I stood up and felt dizzy and faint. I called my sister who lived with me at the time and she called an ambulance. I thought I was dying. They took my BP which was high but going down by the minute. They said I was having a panic attack and no need to go to the ER. Well ever since that day I have been having "episodes" of these symptoms. Some days I am 100 percent fine. No symptoms at all. I can go with no symptoms for weeks even a few months and I will think they are never coming back. But then out of no where again, the symptoms come back and they last for days or sometimes WEEKS. Here are my symptoms:-Weird headaches like a pressure or my head feels like it's going to blow up.-weird chest pains. sometimes shooting pains sometimes a dull achy pain.-feeling of "out of my body" like I'm not me or like I'm somewhere else-dizziness-fatigue-shortness of breath. I feel like i have to breathe deeply to get air. -just a strange panic like feeling. like i'm dying at any minute.-a "jittery" feeling all over my body. Sometimes you can even see my hands shaking. Now when the symptoms are not there, I don't feel the anxiety. I have been to MANY doctors. All say it's anxiety. I have tried several medications. xanex is all that seems to help but only for a short time and the symptoms come back. I have been to a cardiologist, a neurologist, and my regular doctor. Not to mention the many times my husband has taken me to the ER for this. And had many tests including blood work, CAT scan, MRI, Chest xrays, ekgs, etc. NOTHING has shown in any tests that there is anything at all wrong with me. All my docs say I'm perfectly healthy and these symptoms are simply anxiety and panic related and i need to calm down. Well its hard to calm down when I feel like I'm dying. So basically I'm not sure if the symptoms are causing the anxiety or the anxiety is causing the symptoms. I am scared to death that I have a horrible physical problem no doctor has discovered yet and that I will die if I continue on this way. Are all these symptoms "normal" for just an anxiety disorder? And if not, why are all my tests and doctors saying I'm healthy? The symptoms seem to have no rhyme or reason. They come and go. I am so tired of this. PLEASE help me!Sounds like it could very well be Lyme disease. Ask a doctor to look into that.
    Anonymous 42789 Replies
    • October 8, 2009
    • 02:45 AM
    • 0
    Flag this Response
  • I am a 25 year old female. Healthy my whole life, normal weight range, have one 3 year old son. For 2 years now I have been experiencing these weird symptoms. It happened out of nowhere one night for the first time while I was just laying down watching TV. I had just had an abnormal pap smear and had to go back for further testing which came back negative. I experienced a strange sensation in my arm. Like needles poking. Then I stood up and felt dizzy and faint. I called my sister who lived with me at the time and she called an ambulance. I thought I was dying. They took my BP which was high but going down by the minute. They said I was having a panic attack and no need to go to the ER. Well ever since that day I have been having "episodes" of these symptoms. Some days I am 100 percent fine. No symptoms at all. I can go with no symptoms for weeks even a few months and I will think they are never coming back. But then out of no where again, the symptoms come back and they last for days or sometimes WEEKS. Here are my symptoms:-Weird headaches like a pressure or my head feels like it's going to blow up.-weird chest pains. sometimes shooting pains sometimes a dull achy pain.-feeling of "out of my body" like I'm not me or like I'm somewhere else-dizziness-fatigue-shortness of breath. I feel like i have to breathe deeply to get air. -just a strange panic like feeling. like i'm dying at any minute.-a "jittery" feeling all over my body. Sometimes you can even see my hands shaking. Now when the symptoms are not there, I don't feel the anxiety. I have been to MANY doctors. All say it's anxiety. I have tried several medications. xanex is all that seems to help but only for a short time and the symptoms come back. I have been to a cardiologist, a neurologist, and my regular doctor. Not to mention the many times my husband has taken me to the ER for this. And had many tests including blood work, CAT scan, MRI, Chest xrays, ekgs, etc. NOTHING has shown in any tests that there is anything at all wrong with me. All my docs say I'm perfectly healthy and these symptoms are simply anxiety and panic related and i need to calm down. Well its hard to calm down when I feel like I'm dying. So basically I'm not sure if the symptoms are causing the anxiety or the anxiety is causing the symptoms. I am scared to death that I have a horrible physical problem no doctor has discovered yet and that I will die if I continue on this way. Are all these symptoms "normal" for just an anxiety disorder? And if not, why are all my tests and doctors saying I'm healthy? The symptoms seem to have no rhyme or reason. They come and go. I am so tired of this. PLEASE help me!This is textbook panic disorder. I would recommend a extended release form of xanax, of perhaps an SSRI.
    SWaterstradt 6 Replies
    • October 8, 2009
    • 11:13 AM
    • 0
    Flag this Response
  • This is textbook panic disorder. I would recommend a extended release form of xanax, of perhaps an SSRI.Thank you for the input. I'm sorry but I'm not familiar with SSRI. What is that? I try not to take the Xanex because I'm scared I'm going to become dependent on it. I hate medications but it seems to be all that helps me. Not to mention I'm trying to get pregnant and obviously I can't be taking Xanex then.So you really think this could all be panic related? I always seemed to think that anxiety attacks didn't last for weeks at a time. These symptoms dont just go away that quick. I can feel them for weeks at a time although some minutes are much worse than others.Thanks again. I really appreciate the replies.
    Anonymous 42789 Replies
    • October 9, 2009
    • 06:19 AM
    • 0
    Flag this Response
  • This is textbook panic disorder. I would recommend a extended release form of xanax, of perhaps an SSRI.Oh and for whoever posted about the NMH, I have never heard of this but it's good to know that this has been the only thing other than panic disorder that matches my symptoms so well. I will bring this to my doctors attention. The only thing I'm confused about is that it mainly seems to be triggered by low blood pressure and high pulse. Well I don't have either of these. I wonder if that makes a difference. Thanks again for the information and I may now have a lead. Oh and a few questions, does this disorder have any long term effects and could it cause me from having another child? I really want to have one more baby and my husband and I are trying now actually.
    Anonymous 42789 Replies
    • October 9, 2009
    • 06:30 AM
    • 0
    Flag this Response
  • Oh and for whoever posted about the NMH, I have never heard of this but it's good to know that this has been the only thing other than panic disorder that matches my symptoms so well. I will bring this to my doctors attention. The only thing I'm confused about is that it mainly seems to be triggered by low blood pressure and high pulse. Well I don't have either of these. I wonder if that makes a difference. Thanks again for the information and I may now have a lead. Oh and a few questions, does this disorder have any long term effects and could it cause me from having another child? I really want to have one more baby and my husband and I are trying now actually. Has your blood sugar been tested while having an attack?
    Anonymous 42789 Replies
    • October 20, 2009
    • 07:31 PM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.