Hello ! I decided to write because I'm some incredible case , and so far no one could diagnose me. In January 2013 i got pregnant (for nine months I've had several times hemoptysis) .My doughter was born in September2013 and October I had the first X-ray was totally fine , but I was getting worse. I had night sweats , and later began to bone and joint pain which resolved after a month , spit blood from time to time , I had a continuous phlegm , my fingers are wrinkled and changed the shape ,nails also (clubbing fingers and toes)My hands go numb , still coated tongue , swollen hands, stiffnes, numbness, phlegm all the time, restless legs , increase in lymph nodes, chest pain. I am very weak . On the skin have strange red spots that appear and disappear. Besides, I often have erythema like lupus on my face ( but ANA, ANCA its negative). I was hospitalized four times. Gastroscopy was performed (biopsy of the esophagus - the result of chronic inflammation) and CT ( two times) and X-ray ( five times by the last year ), PET/CT. Nothing!!! But why I am feeling so bad? HRTC suggested chronic bronchitis that’s all, four times bronchoscopy ( hemosiderin that’s all what they found).
I have cought from time to time, no fever .I already don’t ask for help but maybe someone can advice what else I can do? Cause all doctors says that they can’t help me. I visited perhaps a hundred doctors and no one can help me. My condition is worse day by day. I don’t know what to do . I don’t know where to look and what direction to go.
My grandma had vasculitis, but she died on lung cancer. Her father never smoke, he also died on a lung cancer.
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