Discussions By Condition: I cannot get a diagnosis.

What the heck was/is wrong with me?!!!

Posted In: I cannot get a diagnosis. 10 Replies
  • Posted By: whatitis
  • March 11, 2008
  • 05:19 AM

Hi all,

I'm hoping someone can help me. It's kind of a long story...

Back in December '06 I came down with a bout of Strept throat. Then in February I came down with the worst illness of my life! fever up to 104 for 5 days, sore throat, exudates on tonsils, tonsils so swollen i couldn't breathe, headache, chills, night sweats, etc. Went to the ER after 5 days and they diagnosed me with pneumonia even though i had no cough and gave me levaquin. About 5 days later I developed what a neurologist diagnosed as post infectious neuropathy. Tingling in my fingers and toes, burning feelings throughout, etc. I was pretty much tested for everything including - influenza, strep throat, mono, B-12 deficiency, HIV, etc...all NEGATIVE! So, of course I was worried thinking about HIV ars and what not so I got tested again at 13 months via rapid test and it was NEGATIVE as well. No major exposures...made out with a stripper in Vegas 3 weeks before the illness but that was it...I'm heterosexual and 26 year old male. I had some lab work done at about 3 months post illness and my results were: HIV 1/2 - Neg/// mono test - neg/// Rpr- nonreactive/// EBV AB Panel - Anti VCA/IgG - pos, Anti VCA/IgM - neg, Anti EBNA - pos/// CMV serology test IgG, IgM - neg/// Parvo B19 IgG pos IgM neg/// Mycoplasma pneumonia IgG 1:40, IgM <1:10 - My doc told me the only thing that looked fishy that I may have had was the mycoplamsa bacterial infection. But she wasn't certain...so, I was never given a straight answer. For the past year now I'm always tired and it seems like I get sick a lot easier than I used to...I used to never get sick.

So, from what I see it looks like I was negative for pretty much the common illnesses. Any idea what might have been wrong with me? I keep getting sick ever since with little colds, fevers, sore throats, etc. - tired all the time, lethargic, etc. - Is this chronic fatigue syndrome - If so, is there anything to make it better? I am very active, play a lot of sports, workout, etc. - where should I go from here?

Thanks for any help.

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10 Replies:

  • If you are very active.. I doubt very much that it would be chronic fatigue syndrome. For that diagnoses to be made, the illness has be limiting someone quite a bit.. due to the fatigue/weakness/exhaustion. Ones with CFS struggle even just to work and recreation activities usually become nonexistant as all energy goes just into daily basic care and work. With CFS even just living a basic life, is hard and exercise usually makes one sicker. Most CFS people struggle to exercise due to that.
    Anonymous 42789 Replies Flag this Response
  • I keep getting sick ever since with little colds, fevers, sore throats, etc. - tired all the time, lethargic, etc. - Is this chronic fatigue syndrome - If so, is there anything to make it better? I am very active, play a lot of sports, workout, etc. - where should I go from here? Thanks for any help. I have CFS and doubt very much that you have it. Someone with CFS wouldnt be playing a lot of sport etc.. it's an extremely incapaciting illness and exercise usually makes it much worst. Half with CFS cant even work with 25% needing to be on disability. Could you just be running yourself into the ground a bit? or not eatting healthy enough?? If you are tired all the time... maybe you could have a sleep disorder esp if you are waking up tired? That could run your health down some etc.
    taniaaust1 2267 Replies Flag this Response
  • Go to a good nearby medical school and be seen in the infectious diseases department. I'd suggest looking into re-testing for diseases like aids, helatitis (all forms) CMV, EB, etc etc. I suspect you did catch something from the stripper.:( Tested for TB??? Hi all, I'm hoping someone can help me. It's kind of a long story... Back in December '06 I came down with a bout of Strept throat. Then in February I came down with the worst illness of my life! fever up to 104 for 5 days, sore throat, exudates on tonsils, tonsils so swollen i couldn't breathe, headache, chills, night sweats, etc. Went to the ER after 5 days and they diagnosed me with pneumonia even though i had no cough and gave me levaquin. About 5 days later I developed what a neurologist diagnosed as post infectious neuropathy. Tingling in my fingers and toes, burning feelings throughout, etc. I was pretty much tested for everything including - influenza, strep throat, mono, B-12 deficiency, HIV, etc...all NEGATIVE! So, of course I was worried thinking about HIV ars and what not so I got tested again at 13 months via rapid test and it was NEGATIVE as well. No major exposures...made out with a stripper in Vegas 3 weeks before the illness but that was it...I'm heterosexual and 26 year old male. I had some lab work done at about 3 months post illness and my results were: HIV 1/2 - Neg/// mono test - neg/// Rpr- nonreactive/// EBV AB Panel - Anti VCA/IgG - pos, Anti VCA/IgM - neg, Anti EBNA - pos/// CMV serology test IgG, IgM - neg/// Parvo B19 IgG pos IgM neg/// Mycoplasma pneumonia IgG 1:40, IgM So, from what I see it looks like I was negative for pretty much the common illnesses. Any idea what might have been wrong with me? I keep getting sick ever since with little colds, fevers, sore throats, etc. - tired all the time, lethargic, etc. - Is this chronic fatigue syndrome - If so, is there anything to make it better? I am very active, play a lot of sports, workout, etc. - where should I go from here? Thanks for any help.
    TaylorDeelwithit 382 Replies Flag this Response
  • Go to a good nearby medical school and be seen in the infectious diseases department. I'd suggest looking into re-testing for diseases like aids, helatitis (all forms) CMV, EB, etc etc. I suspect you did catch something from the stripper.:( Tested for TB???I've already tested for all of those...negative for HIV out to 13 months...so, I know I didn't catch that, pos for ebv at some point...I'm going to see an "internalist" tomorrow and hopefully they can get to the bottom of this. I guess the only thing I haven't tested for is TB. Hopefully, they will have some answers for me tomorrow.
    whatitis 3 Replies Flag this Response
  • I would think that TB testing would have been right off the bat/ your night sweats. I've already tested for all of those...negative for HIV out to 13 months...so, I know I didn't catch that, pos for ebv at some point...I'm going to see an "internalist" tomorrow and hopefully they can get to the bottom of this. I guess the only thing I haven't tested for is TB. Hopefully, they will have some answers for me tomorrow.
    TaylorDeelwithit 382 Replies Flag this Response
  • i don't know why they didn't consider TB. maybe because I never had a cough or anything...i don't know. I only had 2 nights of night sweats and it was when my fever broke...but, I've had the flu, etc and have sweated at night so I didn't think it was that uncommon...what do you think?
    whatitis 3 Replies Flag this Response
  • Ummm not really...Do you smoke?? Have you been EXPOSED to TB? Do you work in a plant that has a lot of chemicals ( like making plastics, tires, ect) TB is just not that common but it can never hurt to be tested. So obviously if you are getting sick all the time then guess what's not working in your defense??? Your immune system. SOOOO the person responsible in that department is an Endocrinologist and it could be Lupus, thombocytopedia (if you bruise easily), anemia, Thyroid disease, your sugar, and there are more but it you google "Auto-immune system disease's" you'll be able to look at them all and see what best fits your description. Oh and one more thing, do you have any swollen lymphnodes?? Usually you'll be able to feel them in your neck, groin, behind the ear, and near your collar bone. If you have one, then ALL of your symptoms fall into place for Hodgins or Non-Hodgins Lymphoma or Leukemia..either way it's always good to be checked out and doc's don't usually help a whole lot they just treat the symptoms, bandage you up and send ya home after they get your money and wait on you to come backand spend more money. Good luck
    cathy27 6 Replies Flag this Response
  • No TB would be longer nights of night sweats I believe i don't know why they didn't consider TB. maybe because I never had a cough or anything...i don't know. I only had 2 nights of night sweats and it was when my fever broke...but, I've had the flu, etc and have sweated at night so I didn't think it was that uncommon... what do you think?
    TaylorDeelwithit 382 Replies Flag this Response
  • ok...so an update. I went to an intenalist yesterday and he said I'm young to have anything serious wrong. That made me feel a little better I guess. He said he could test me for a bunch of stuff but it would just be a waste of money. He said there are billions of viruses out there and I just got a very bad one that just flat out kicked my butt. He said they can linger sometimes and that's why your body attacks itself and why I had post viral neuropathy. So, I guess I'm just gonna sit still for about 6 months and just see what happens. If I need to go back then I will. It isn't lyme because I haven't been anywhere where I could get lyme. Any thoughts?
    whatitis 3 Replies Flag this Response
  • The doc who said you were too young to have anything serious has obviously not ever been in a pediatric hospital!
    rad-skw 1605 Replies Flag this Response
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