Discussions By Condition: I cannot get a diagnosis.

What the heck is wrong with me??

Posted In: I cannot get a diagnosis. 9 Replies
  • Posted By: Anonymous
  • January 29, 2009
  • 08:23 PM

I decided to come ask here because googling my symptoms was just making me paranoid.

Ok, here is some background.

In June08 i went to the ER because i was having excruciating right shoulder pain. I couldn't move or breath it hurt so bad. They did a CT scan and said that part of my intestine was inflamed and that was likely causing the problem. They gave me some pain killers and antibiotics and sent me on my way. It took about 4-5 days before i actually felt any better. Since then i've had a constant pain on my right side just under my ribs. It was more or less annoying so i never had it checked out. It was always just there. Then it started to get worse and would wake me up at night. I always had a dull pain but sometimes (usually after eating) it would get worse and the pain would radiate to my back and right shoulder. Sometimes during a "flare" up the pain would actually be below my sternum and it was very tender and sent shooting pain down my stomach when palpated. At the same time i was experiencing strange bowel symptoms. I'd have diarrhea for 2 days, then not be able to go for a week, then have diarrhea for a few days etc etc. Plus lots of painful bloating. At some point this all became too much and i finally went to see my Dr. She suspected my gallbladder and sent me for an ultrasound. That was normal so i had a HIDA scan last Thursday and am still awaiting the results of that test. My problem is that since initially going to see her 2 weeks ago my symptoms have become worse and i'm experiencing some new alarming symptoms and i'm not sure if i should call and let her know. I have no idea if they are even related.

For one, the bloating has been a lot worse so has the constant URQ pain. I've been extremely nauseated to the point i cant eat sometimes. Its pretty much all the time. Also my stomach always feels like its in my throat if that makes any sense. Almost like i'm so full my food is up to my throat, even after only a few bites of food or none at all. Another way to describe it is the nausea/fullness that you get when you drink too much water in one sitting. I've never had back problems but i've had off and on bad lower back pain as well.

So, my question is this could all of this be related? Should i call and let her know or am i just being paranoid? What does this all sound like? If my HIDA scan was normal she said the next step would be an endoscope and colonoscopy. Should i be asking for something else? I have insurance but it doesn't have the greatest coverage for diagnostic tests so i'd like to figure this out with as few tests as possible.

Sorry this turned into a novel, any input or advice would be greatly appreciate.

I guess i should mention that i'm a 23yr old otherwise healthy female

Thanks!!

Bethany

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9 Replies:

  • Okay, I've read your posting. When you say that your physicians stated that part of the intestine was inflamed, precisely what did they say to you? This is typically not a formal diagnosis. Early satiety with nausea, pain in the distribution mentioned that radiates to the right scapula should be evaluated for the presence of cholelithiasis, particularly a calculi or stone in the common duct. It's best to always report a change in symptoms to the treating physician and your HIDA scan or endoscopy should locate the problem. The sensation of pressure in the throat is actually trapped gas that is causing pressure against the valve at the esophageal sphincter. Belching typically relieves the sensation. It's also important to remain vigilent to the symptoms in the event the pain begins to predominately manifest in the lower right quadrant. Otherwise, I would suggest waiting until all of the pending tests have been performed, which will very likely identify the cause. It would also be wise to refrain from consuming any foods that are high in saturated fats. Best regards, J Cottle
    JCottleMD 580 Replies
    • January 30, 2009
    • 03:17 AM
    • 0
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  • Your RUQ Pain sounds like biliary colic.The early satiety could be from gastroparesis or gastric outlet obstruction.
    richard wayne2b 1232 Replies
    • January 30, 2009
    • 01:49 PM
    • 0
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  • Oh, biliary colic often radiates to the right back in the place yours does.
    richard wayne2b 1232 Replies
    • January 30, 2009
    • 01:50 PM
    • 0
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  • I love these net docs (Wayne & Cottle!) and they often have great insight about medicine, :D but sometimes they speak "medicalese" when you just need plain speaking & common sense. Translation of above advice: maybe a stone (cholelithiasis) or pain in your bile ducts, whcih are the tubes that go from your gall bladder to your liver (biliary colic); maybe too long in digesting food (gastroparesis); maybe something blocking your digestive tract (gastric outlet obstruction). Yes, you should absolutely call your doctor if the pain is worse. Pronto.
    aquila 1263 Replies
    • January 30, 2009
    • 05:36 PM
    • 0
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  • what is the result of the hida scanit is probably a bad gallbladder the hida scan will tell for sure my daughter vomited for weeks and weeks and suffered a lot before they did the hida scan i suffered for years and they kept telling me it was not my gallbladderit could be attached to something like mine was i had excruciating rib pain
    jojo100 10 Replies
    • January 30, 2009
    • 09:17 PM
    • 0
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  • gallbladder problems are not always showing up on CT scans. I had what is called a Non-Functioning gallbladder and did not know it for many years. Had the same symptoms as you. Finally after all those years (17 years) of pain, a Doctor ordered a GAMMA Scan of my gallbladder to see if it was emptying correctly. It was not. Had the gallbladder out in the morning as an outpatient, was home and eating dinner that evening. I told the Dr. when I had my follow-up visit that I have not felt this good in 17 years. My gallbladder did not have any stones, but did have some stretched out pockets from the overfilling and not being able to release the bile. You may want to ask about that test. I decided to come ask here because googling my symptoms was just making me paranoid. Ok, here is some background. In June08 i went to the ER because i was having excruciating right shoulder pain. I couldn't move or breath it hurt so bad. They did a CT scan and said that part of my intestine was inflamed and that was likely causing the problem. They gave me some pain killers and antibiotics and sent me on my way. It took about 4-5 days before i actually felt any better. Since then i've had a constant pain on my right side just under my ribs. It was more or less annoying so i never had it checked out. It was always just there. Then it started to get worse and would wake me up at night. I always had a dull pain but sometimes (usually after eating) it would get worse and the pain would radiate to my back and right shoulder. Sometimes during a "flare" up the pain would actually be below my sternum and it was very tender and sent shooting pain down my stomach when palpated. At the same time i was experiencing strange bowel symptoms. I'd have diarrhea for 2 days, then not be able to go for a week, then have diarrhea for a few days etc etc. Plus lots of painful bloating. At some point this all became too much and i finally went to see my Dr. She suspected my gallbladder and sent me for an ultrasound. That was normal so i had a HIDA scan last Thursday and am still awaiting the results of that test. My problem is that since initially going to see her 2 weeks ago my symptoms have become worse and i'm experiencing some new alarming symptoms and i'm not sure if i should call and let her know. I have no idea if they are even related. For one, the bloating has been a lot worse so has the constant URQ pain. I've been extremely nauseated to the point i cant eat sometimes. Its pretty much all the time. Also my stomach always feels like its in my throat if that makes any sense. Almost like i'm so full my food is up to my throat, even after only a few bites of food or none at all. Another way to describe it is the nausea/fullness that you get when you drink too much water in one sitting. I've never had back problems but i've had off and on bad lower back pain as well.So, my question is this could all of this be related? Should i call and let her know or am i just being paranoid? What does this all sound like? If my HIDA scan was normal she said the next step would be an endoscope and colonoscopy. Should i be asking for something else? I have insurance but it doesn't have the greatest coverage for diagnostic tests so i'd like to figure this out with as few tests as possible. Sorry this turned into a novel, any input or advice would be greatly appreciate. I guess i should mention that i'm a 23yr old otherwise healthy femaleThanks!!Bethany
    Anonymous 42789 Replies
    • January 31, 2009
    • 04:40 AM
    • 0
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  • Thanks for all the reply's. I called the Dr to check on my results and report my symptoms but she wasn't in last Thrusday or Friday. So i will call again today. I still haven't recieved the results of my HIDA scan so we will see. I'm not sure if this is related, but i've been trying to lose weight for over a year without any success no matter what i try. I don't gain, but i dont lose either. I've done Weight Watchers, South Beach Diet, Body for life and the Burn the Fat feed the muscle programs. All to no avail. I workout everyday and eat healthy. I've got about 40lbs to lose. Anyway, I've noticed the last couple weeks i've actually started gaining! To my horror about 4lbs a week! Despite no dietary changes. In fact, the last week i've been eating less because i feel nauseated 24/7.Could this be related?Thanks again, hopefully i will hear something today
    Anonymous 42789 Replies
    • February 2, 2009
    • 02:51 PM
    • 0
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  • nausated yes is probably the gall bladderi had extreme rib pain but my gallbladder had attached to my back wall and ribs had a lot of scar tissue from former surgery that was adhered to my gallbladder. he nearly had to do the real opening instead of the lap version because he could not get it away from the wall where it had adhered even though drs told me for 20 years there was nothing wrong with my gallbladder he said he could tell from looking at it that i had had some major attacks from the scaring.i remember the attack that made me have the surgery i was vomiting for 2 days could hold nothing down went to the emergency room because i was so sick. i remember when the vomiting was over my right side of my back near my kidneys hurt so bad i was shocked.of course i had it out 3 days later my daughter was constant vomiting and diahrea but her dr immediatly did the hida scan and got it out of her but the bad thing is after you have it out no more bacon or things like that they go right thru you
    jojo100 10 Replies
    • February 3, 2009
    • 01:00 PM
    • 0
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  • Could you possibly have Gastroparesis? That's when the stomach is very delayed in emptying which happens when nerves to the stomach are damaged or stop working. the vegus nerve controls the movement of food through the digestive tract. If the vagus nerve is damaged, the muscles and intestines do work normally, and the movement of food is slowed or stopped. It results in many + more symptoms you have described. I.e vomiting, flu like symptoms, chills and JOINT AChes (i have really painful back aches) nausea,, fullness, getting full after a few bites ets. I have been told by a registered dietition not to eat any fiber i.e. brown carbs. only white carbs. No fruits & veggies because they have too much fiber. Fiber causes a condition called bezoars which makes gastroparesis worse. Go to an endochronigest and a dietition if your dr cn't help. Don't wait! If you have this stuff it's NOT curable but it won't kill you either. You can manage it with diet mostly. GOOD luck - hope this helps.julie
    millersj123 2 Replies
    • February 3, 2009
    • 07:48 PM
    • 0
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