Discussions By Condition: I cannot get a diagnosis.

What is wrong with my tendons?

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: northportmiller
  • March 21, 2007
  • 01:55 PM

I am a 34 year old married father of one and I am unable to provide for my family right now due to my health condition. I would appreciate ANY helpful advice you may have!

Outside of IBS since a teen I was a healthy guy until age 26 when I fell victim to Guillain-Barre' Syndrome. This hit me particularly hard as I became 98% paralyzed and required ICU and a feeding tube. I fully recovered from the GBS after approximately one year.

However, since that time I have had minor issues turn into major issues that cripple me. I had my gall bladder and appendix removed and the surgeon found adhesions in my abdominal wall that she sliced open (standard procedure from what I am told). Those adhesions did not heal for two years and I tried working through the pain which took me to critical levels of pain. I ended up having to lay on my couch for 6 months before the pain started improving.

Next, I easily sprained the tendon in my right thumb. This became so painful that I was unable to use it for 6-8 months. Inflammation was not drastic but it was there.

A year later I was sprinting while teaching my nephew how to ride his bike and I sprained my left achilles tendon. I tried to work through it but it became so bad that I could not bear weight on it for 8 months. Shortly after spraining my left achilles tendon I then sprained my right achilles tendon.

Through the many doctors I have been told that it is likely ankylosing spondylitis even though the blood work doesn't show it. I am taking TNF blocking injections that seem to have a positive affect but are not knocking out the condition.

My tendons flare up very easily when used and I was wondering if anybody else has had to deal with something like this. Not sure if I am on the right track.

I also suffer from extreme fatigue.

Thank you for any help...

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