I am in my late 30's and have had severe fatigue since college. I am fine on a light schedule for a few days and then I "crash" and need to sleep longer than usual and will have a hard time waking up. Like 12-13 hours. I also have "fevers" nearly every day that are around 99.3-99.9. With these "fevers" my face and neck get very hot, but I do not get very flushed (turn bright red). I do not think it is hot flashes.
One Dr. 8 years ago thought I had mixed connective tissue disease. I saw one Dr. wrote a dx of fibromyalgia on a billing sheet, but never told me I had it. I had chronic appendicitis (the pain localized and became worse over a period of months) 10 years ago, had appendectomy. A year later I started getting kidney stones at a regular pace ever since (calcium oxalate). I am also overweight (220/ 5'4"), have "regularly occuring" kidney stones (calcium oxalate), extreme fatique, and joint pain. I just found out I have a fatty liver while getting an u/s for my kidneys. I can't say the weight is the problem (though it is not good), because I started feeling crappy and then gained the weight (was normal size, now gained 100 pounds since college).
My lab work is nearly perfect. My Thyroid is always in normal range, though one dermatologist thought for sure I had cushings, but the tests did not prove it. I have perfect cholesterol, triglycerides and sugar. I even passed all of the lab work for getting life insurance. The only abnormal lab tests have been an ANA (1:320 or 1:160 and once 1:80) and a sedimentation rate in the 20's. My B12 was tested a few months ago and it came in low at 287 (normal 200-1100 though anything under 400 is treated). I am now taking B12 shots. I am negative for RA and all of the tests for lupus, scleroderma as of 4 years ago.
I also had low progesterone levels and took prog. supplements to become pregnant. Didn't take them during pregnancy. Had 2 healthy children.
The facial/neck hotness bothers me and I FEEL feverish when this happens. It seems to happen nearly every day now. No one has any explanation, especially since the temp is not above 100.5. I am in pain somewhere in my body every single day. I also have L4, L5 herniations, though that pain has improved. I have also gotten pneumonitis 3 times this year and have had 2 sinus infections with it. My latest malady aside from the pneumonitis is that my thumbs hurt! Not in the joints where my thumb meets the palm, but in the digits. They became swollen and it hurt to hold a pen and affected my handwriting. I had 3 episodes of the thumb swelling/pain this last year. Now, my right thumb clicks when I bend it (end of digit). I also have a lot of flank pain that I know could be from the kidney stones, but now I wonder if it is my liver since it is usually on the right side. Sometimes my tongue gets swollen. My Dr. can not figure that one out. When I was pregnant, my joint pain became severe in my last trimester, but faded somewhat after birth. I have had 2 normal EKG's. I had migraines (with the aura or zig zags in vision) for a year, but for some reason, I have not had one for almost a year.
Are these just scattered symptoms or do I have one disorder? I have not had a lyme disease test nor EBV test. Could anyone recommend any tests I should have done? I don't feel depressed (well, only when I miss an activity because of fatigue), but do take a light dose of zoloft (30 mg) for anxiety since childbirth 2 years ago.
Any suggestions for any of the above would be greatly appreciated!
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