Hi, I'm new to this site and hope to get some constructive advise on where I should turn to straighten out my health.
6 yrs ago I had swollen knees w/fluid on them and blanching, freezing feet and hands (Raynaud's). I came up positive on my ANA and was told I had MCTD and put on Plaquenil. After a year I took myself off that since it didn't make anything better and is a high risk med, and I've been off it ever since. Since then my activity level has steadily declined, I've also tested positive for Hashimoto's Thyroiditis, Migraine Syndrome, and severe osteoarthritis. I feel crappy most of the time but have young kids so I have to keep moving. I've gained tons of weight since I was a collegiate athlete, avid runner, and now can barely go up and down a flight of steps. When I began the Hashimoto's, they thought I was haveing panic attacks so they put me on Lexapro and Wellbutrin, which I'm afraid to stop and have now been on for 3 years. I get a pretty severe headache at least once a week but keep going through it. I no longer work, and wonder if I could hold a job. I turned 46 in November and feel 20 - no 30 years older. I might be slightly peri-menopausal, but for the most part have no menopause symptoms yet. I've been told I have Avascular Necrosis in both my ankles and had surgery on one 2 years ago, only to be told that the surgery didn't work. I'm sort of waiting to have my right ankle collapse, since that's what the surgeons told me would happen, at which point I'll have to have it fused or let them try an experimental bone grafting procedure. I ache all the time and have days where I just can't see to even get the energy to get dressed. I find myself falling asleep in the chair mid afternoons, which is the worst part of the day for me. I'm usually fairly good to go until about 1-2pm and then I run outa steam.
I go to a new internal med doc tomorrow because my old guy didn't seem to think there was anything wrong with me. My rheumatologist is a nice guy and just tells me to be happy I have mixed connective tissue instead of Lupus, RA, Scleroderma, or something worse. I take thyroid meds, prilosec for esophageal stricture, the Lexapro and Wellbutrin b/c they tell me I need it. 4 meds and I'm only 46!!
I wonder if anyone has any advice on questions or tests they could run, based on your own experience. I'm frustrated, tired of feeling crappy and old, and I miss my old life terribly.