Discussions By Condition: I cannot get a diagnosis.

What is wrong with me?

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: stephisill
  • December 9, 2006
  • 04:54 PM

So here it goes. I have a ton of symptoms and the doctors can find nothing wrong. The whole mess started in September. I started getting dizzy at work. I also noticed I was having time speaking at times. It was like I would constantly forget the word I was needing to finish my sentances or I would slur my words together. Then one day I went completely numb on my right side. I couldn't move my right arm or leg and my face felt numb like it was asleep. I went to the ER and they admitted me and did an MRI (5 hours long), a CT scan, and a blood workup. All came back normal with no signs of stroke which is what we were worried about. I left with a referral to see a Neurologist. I saw the Neurologist who put me on Neurontin and said I was having complicated migraines. In the weeks after that my whole body went downhill. There are days when I have so much pain in my legs that I can't walk. They feel like they are asleep and sometimes I get Shock like pain. Some times I lose feeling in my arms and hands or dexterity in my fingers. Sometime it feels like my legs are on fire they burn so bad. My neurologist told me to see a psychatrist (SP). I think he thinks that I am making the whole thing up. I am missing time at work and my life has pretty much shut down because I wake up and don't know if my legs are going to work from one day to the next. The numbness and shock pains have recently started in my upper back as well. Anyone had anything like this before?
Thanks, Steph

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5 Replies:

  • Hi. How old are you and what is your gender? I'm not asking you this to scare you, but has your neurologist ruled out MS? My sister-in-law was diagnosed with it a couple of years ago and she was experiencing some of the same symptoms which could also be symptoms of a zillion other things. Don't start fretting about it, but it might be worth checking into just for peace of mind, if nothing else.
    Anonymous 42789 Replies
    • December 10, 2006
    • 02:00 AM
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  • I have read that in 5% of cases no abnormality is picked up for MS on the MRI. I recently had a MRI to make sure I dont have MS or anything major like that going. I also got put throu a heap of other tests at the time to make sure I didnt have MS, they didnt just do the MRI. I have had many of the symptoms you have there (slurring speach, numbness in body parts, forgetting words, pain in body, loosing my ability to control body parts well, weakness in body parts etc). The problem I have thou is CFS/ME which from what you've said I dont think you have cause you havent mentioned tiredness or post exertional tiredness. You obviously thou do have some thing affecting your central nervous system. Im sorry to hear that your doctor accused you of faking it. Go to another doctor, you do need to work out what is causing symptoms like that. " I saw the Neurologist who put me on Neurontin and said I was having complicated migraines. In the weeks after that my whole body went downhill." Could the medication have instead make your condition actually worst?? Im wary about medications esp when given to one where the cause of the condition isnt really known. Maybe you should consider stopping it to see if your condition stops worsening as quick as it is or whether it then improves, maybe the medication didnt help and made it worst???. The only way to really know would be to stop it to see if it is helping in anyway or not. (please talk to your doctor first about that rather than just stopping)
    taniaaust1 2267 Replies
    • December 10, 2006
    • 03:32 AM
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  • I has some very awful pains like this. One morning I work up and I could not stand on my legs I felt shooting pain down my legs. I could not put my weight on them and had to crawl to the shower because they hurt so much. I know at that time I had some really stressful famioly problems and now I think it was stress. I did at that time go to the chiropractor he put some suction cup type things on my back with some gell I think it was some kind of electrode. It did help. But, about three years later this happened again only to my arm. My new husband thought I was making it up until I started crying. This time I took the day off and the pain slowly went away on its own. Let me know what you think about the fact that it could be stress?
    Anonymous 42789 Replies
    • December 12, 2006
    • 02:05 AM
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  • My manager had the exact same thing happen to her. She went numb on her upper left side one day. We made her go to the emergency room. They too ruled out a stroke. She has since then been to a nerologist, and they found out they her spine is closing. They did an eeg? on her muscles and found out that the closing spine wasn't part of the numbness. She has had about 5 or 6 different mri's done since them middle of Sept. They have just finally found out that it is actually 2 hurniated discs, causing numbness in her leg, and they think that a shoulder is tense. She has to take a muscle relaxer, ibprofen, and go to physical therapy once a week. Also do some exercises at home. She has been doing this for about 2 weeks now and the numbness in her upper body is better, but she still has it. I don't know what else they are planning to do for her, but I do know that you are on the right direction. Stick with the doctors, go get a massage, and try some shoulder exercises. I could ask my manager what she does for exercise, if you would like. I truly hope you find something out soon, I hate the waiting part. I don't know how you sleep, or if you try anything to sleep, but maybe you should check out tylenol pm. That has helped me trmendously. Again I hope you find something out soon.
    Anonymous 42789 Replies
    • December 12, 2006
    • 06:04 AM
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  • For the past 6 years, on my 6 months check up with my neurologists, he ALWAYS asks me how my migraines are, I say I've never had a migraine. I'm being treated for narcolepsy. Just saying, neurologists seem fixed on migraines. I got nerve shocks on bottom of one foot & turned out to be Mortins Neuroma I saw a foot doctor for. I would see a spine doctor if I were you and get checked for arthritis.
    Anonymous 1 Replies Flag this Response
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