Discussions By Condition: I cannot get a diagnosis.

What is the best treatment for this?

Posted In: I cannot get a diagnosis. 10 Replies
  • Posted By: Jeanne
  • October 7, 2007
  • 04:00 PM

I am 54 and was just diagnosed with the rare autoimmune disease of "Autoimmune Hepatitis." Who has experience with this? Who can tell me of alternative treatment(s) to the AWFUL Prednisone? So far my only significant symptoms are itching, fatigue, and bouncing Liver enzymes. I'm having my first Liver biopsy next week. I want to do everything to avoid Prednisone.
Thank you so much. I'm very devastated by this awful disease.

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  • Hi,I am new to the site, and the only reason I am here because I want people to know about some diagnostic testing that the health industry does not talk about to their patients. I started diagnostic Electro Dermal Screening Analysis from a clinic near Atlanta, GA last February. I am now vibrant again! I have about 2-3 more months of toxicity detox, but it has been worth every dime. My 3 small children (under 5 years of age) have their mom back again! I plan on typing my story on the main "Tell Your Story Screen" for hope to others. I cannot promote any certain clinics, but maybe you can do a search on the screening process and find some help. In Summary: This test determines what bodily functions and organs are NOT working properly due to the environmental elements, heavy metals from preservative vaccinations and toxic elements as well as genetic issues. When ONE thing goes wrong, it is a domino effect over the many years of life. Best wishes...there is hope and if I can struggle through it and make it, we all can!
    mellie 4 Replies
    • October 8, 2007
    • 05:53 PM
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  • I am 54 and was just diagnosed with the rare autoimmune disease of "Autoimmune Hepatitis." Who has experience with this? Who can tell me of alternative treatment(s) to the AWFUL Prednisone? So far my only significant symptoms are itching, fatigue, and bouncing Liver enzymes. I'm having my first Liver biopsy next week. I want to do everything to avoid Prednisone.Thank you so much. I'm very devastated by this awful disease. I believe they will label you autoimmune hepatitis if they cannot pinpoint exactly what hepatitis you have - correct me if I am wrong on this. Do you have a history of taking any drugs, or medications? Have they tested you for Hep C more than once? Please consider trying acupuncture and Chinese Medicine to help with this. There has been a lot of recent studies on Chinese herbal medicine and Hepatitis. I would think autoimmune hepatitis would be helped by this form of medicine as well. I have a few Hep C patients who are keeping their liver enzymes within normal range with acupuncture and herbs. It can really help! Try to find a practitioner who is NCCAOM certified in Chinese herbology as well as acupuncture and oriental medicine. Misha Ruth Cohen, OMD, is at the forefront of researching Hep C... You are right, prednisone is awful. I would avoid it at all cost, and try to find a doc who is open to your trying alternative approaches as well as Western allopathic approaches to dealing with this disease. Best wishesDOM
    acuann 3080 Replies
    • October 8, 2007
    • 07:51 PM
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  • I believe they will label you autoimmune hepatitis if they cannot pinpoint exactly what hepatitis you have - correct me if I am wrong on this. Do you have a history of taking any drugs, or medications? Have they tested you for Hep C more than once? Please consider trying acupuncture and Chinese Medicine to help with this. There has been a lot of recent studies on Chinese herbal medicine and Hepatitis. I would think autoimmune hepatitis would be helped by this form of medicine as well. I have a few Hep C patients who are keeping their liver enzymes within normal range with acupuncture and herbs. It can really help! Try to find a practitioner who is NCCAOM certified in Chinese herbology as well as acupuncture and oriental medicine. Misha Ruth Cohen, OMD, is at the forefront of researching Hep C... You are right, prednisone is awful. I would avoid it at all cost, and try to find a doc who is open to your trying alternative approaches as well as Western allopathic approaches to dealing with this disease. Best wishesDOMAcuann, I bet this is a bug that they never found doing all the 'autoimmune'.Some liver patients can't eat meat because they won't process the ammonia and it will go up to their brain and kill them.We are talking pathogen cleansing, enzyme NAET therapy, and that possible intolerance to B complex, yeast, sugar, and parasites with NAET.I myself had this autoimmune liver disease- I could not process a single type of protein. Everything started with parasites, strep and an entero virus that traveled to my liver and brain.By the time the virus was done with me- I could not process proteins.There is hope. A good DOM that practices NAET and of course get some herbs!Best.
    Eatafruit78 960 Replies
    • October 8, 2007
    • 08:37 PM
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  • The Myth of Autoimmune Diseases By Heidi Hawkins, MAc, LAc Autoimmune diseases are commonly understood as a process whereby a person's immune system attacks his or her own body. It is sometimes seen as an allergic response, in which the body is allergic to some part of itself. http://open23.mpamedia.com/www/delivery/lg.php?bannerid=45&campaignid=45&zoneid=84&channel_ids=,&loc=http%3A%2F%2Fwww.acupuncturetoday.com%2Fmpacms%2Fat%2Farticle.php%3Fid%3D27738&referer=http%3A%2F%2Fwww.acupuncturetoday.com%2Fmpacms%2Fat%2Ftopic.php%3Fid%3D29&cb=dbfeb30ce5document.context='YTowOnt9'; http://open23.mpamedia.com/www/delivery/avw.php?zoneid=84&n=adf77ccd Often, the organs (such as the brain in multiple sclerosis), or the joints (as in rheumatoid arthritis) are attacked. There are a multitude of autoimmune diseases, affecting millions of people. However, I don't believe the body is making a mistake. I don't believe it is actually attacking itself, or is allergic to itself. My understanding of autoimmune diseases is that they are not a case of the body mistakenly attacking itself, but rather an attack of the immune system on a lingering pathogenic factor (LPF). In a nutshell, LPFs are often a virus or other infection that lingers in the body, causing a low-level chronic infection. Such chronic conditions tend to do a lot of damage slowly over a period of many years, leading to all kinds of serious diseases and ultimately to death. LPFs usually have a presence in a particular location in the body, such as an organ or part of the brain, or in the blood. The immune system attacks, but is unable to eliminate the pathogen. When the immune system attacks an LPF in the thyroid, for example, it creates a constant festering in that organ. The same is true of any location in the body. LPFs don't always show up on Western medical tests. I discussed LPFs in two previous columns in Acupuncture Today. Please refer to the web site for more background on LPFs. I use an energetic testing method to detect the presence of LPFs in the body. This sort of testing can also tell me where in the body the pathogen is located, by using the pulse. (See my previous article, "Allergy and Medical Divination" in the October 2000 issue.) With this method, it is also possible to detect when the LPF is leaving the body.http://www.acupuncturetoday.com/mpacms/at/article.php?id=27738
    Eatafruit78 960 Replies
    • October 8, 2007
    • 08:38 PM
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  • I believe they will label you autoimmune hepatitis if they cannot pinpoint exactly what hepatitis you have - correct me if I am wrong on this.Risk factors Autoimmune hepatitis is uncommon. Having one or more risk factors for the disease doesn't mean that you'll develop it — only that you may be more susceptible than someone without these risk factors:Your sex. Although both men and women can develop autoimmune hepatitis, the disease is far more common in women than it is in men.Age. Type 1 autoimmune hepatitis can occur in older adults, but it's most common in women between the ages of 15 and 40. Type 2 primarily affects young girls.A history of certain viral infections. Autoimmune hepatitis may develop after a viral infection, especially hepatitis A or B, measles, or infection with the Epstein-Barr virus.Use of certain medications. The high blood pressure drug methyldopa/hydrochlorothiazide (Aldoril), the anti-inflammatory diclofenac, the antibiotics minocycline and nitrofurantoin, and perhaps atorvastatin (Lipitor) may trigger autoimmune hepatitis in some people.Heredity. Certain genetic defects increase the risk of autoimmune hepatitis. Please consider trying acupuncture and Chinese Medicine to help with this. There has been a lot of recent studies on Chinese herbal medicine and Hepatitis. I would think autoimmune hepatitis would be helped by this form of medicine as well. Try to find a practitioner who is NCCAOM certified in Chinese herbology as well as acupuncture and oriental medicine. Misha Ruth Cohen, OMD, is at the forefront of researching Hep C. Best wishesDOMDOM,Has there been any success treating pericarditis with Chinese herbology, acupuncture and/or oriental medicine? I am currently on high-dose Ibuprofen and am interested in alternatives.What is the cost for treatment? And how long is the course of treatment?Thanks.
    Anonymous 42789 Replies
    • October 9, 2007
    • 00:25 AM
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  • Risk factors Autoimmune hepatitis is uncommon. Having one or more risk factors for the disease doesn't mean that you'll develop it — only that you may be more susceptible than someone without these risk factors:Your sex. Although both men and women can develop autoimmune hepatitis, the disease is far more common in women than it is in men.Age. Type 1 autoimmune hepatitis can occur in older adults, but it's most common in women between the ages of 15 and 40. Type 2 primarily affects young girls.A history of certain viral infections. Autoimmune hepatitis may develop after a viral infection, especially hepatitis A or B, measles, or infection with the Epstein-Barr virus.Use of certain medications. The high blood pressure drug methyldopa/hydrochlorothiazide (Aldoril), the anti-inflammatory diclofenac, the antibiotics minocycline and nitrofurantoin, and perhaps atorvastatin (Lipitor) may trigger autoimmune hepatitis in some people.Heredity. Certain genetic defects increase the risk of autoimmune hepatitis. DOM,Has there been any success treating pericarditis with Chinese herbology, acupuncture and/or oriental medicine? I am currently on high-dose Ibuprofen and am interested in alternatives.What is the cost for treatment? And how long is the course of treatment?Thanks.Traditional Oriental Medicine does not go by 'pericarditis'- it will diagnose your body, no the condition. After that, the doctor will give you an assessment of how many treatments you might need and also he has to see how you respond to the herbs. In other words, 2 people with the same Western diagnosis goes to the DOM and they get told that they have two different 'patterns of disharmony'. Every person is different.The herbs/tonics precribed are not part of a multimilllion dollar ad campaign- there is no big Pharma behind the herbs- so basically the doctor will attempt to prescribe you the herb that is going to really cure you.As far as Ibuprofen- I think that is really bad for spleen, liver, kidneys, and immune system. If you need anti-inflammatories there are many found in food/nature and a Naturopath should be able to find the right for you: quercetin, bromelain, luteolin- etc, which you can consume by consuming the foods or by taking a supplement capsule.If you have an inflammation anywhere, you most likely have an 'infection'.The moment the pathogenic factor or any allergenic factors get remove from your system, the body start moving towards balance.Make sure you tell the Acupuncturist about the Ibuprofen, as you might be enlarging your spleen. An enlarged spleen is delicate.Of course the makers of Ibuprofen don't mind to talk about it on the label.Take Care!
    Eatafruit78 960 Replies
    • October 9, 2007
    • 04:35 PM
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  • Traditional Oriental Medicine does not go by 'pericarditis'- it will diagnose your body, no the condition. After that, the doctor will give you an assessment of how many treatments you might need and also he has to see how you respond to the herbs. In other words, 2 people with the same Western diagnosis goes to the DOM and they get told that they have two different 'patterns of disharmony'. Every person is different.The herbs/tonics precribed are not part of a multimilllion dollar ad campaign- there is no big Pharma behind the herbs- so basically the doctor will attempt to prescribe you the herb that is going to really cure you.As far as Ibuprofen- I think that is really bad for spleen, liver, kidneys, and immune system. If you need anti-inflammatories there are many found in food/nature and a Naturopath should be able to find the right for you: quercetin, bromelain, luteolin- etc, which you can consume by consuming the foods or by taking a supplement capsule.If you have an inflammation anywhere, you most likely have an 'infection'.The moment the pathogenic factor or any allergenic factors get remove from your system, the body start moving towards balance. Make sure you tell the Acupuncturist about the Ibuprofen, as you might be enlarging your spleen. An enlarged spleen is delicate.Of course the makers of Ibuprofen don't mind to talk about it on the label. Take Care! Great advice, Mar! I would add to visit www.nccaom.org or www.acufinder.com to find a licensed acupuncturist in your area. Make sure they are NCCAOM certified in BOTH acupuncture and Chinese herbology. Stay away from physicians who do acupuncture - most have only received 150 hours of training...DOM's and lic. acu. receive over 2,000 hours. Acupuncture and Chinese medicine can be so incredibly helpful - I love what I do!:) Best wishesDOM
    acuann 3080 Replies
    • October 9, 2007
    • 05:39 PM
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  • Any time the liver is strained, some helpful supplements are B vitamins (B6, B12, Folic Acid), Glutathione, and minerals including magnesium, zinc, molybdenum, and selenium. Those are all needed for liver function.These disorders run in my family as well. Other things which will aggravate it are heavy metal poisoning, celiac disease, other liver problems, undiagnosed food intolerance, homocystinuria or other metabolic disorder.
    nomore 4 Replies
    • October 10, 2007
    • 04:08 PM
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  • Hi- I am so sorry you are sick. PLEASE ask the doc who gave you this diagnosis for a thorough explanation of how he/she knows you have autoimmune hepatitis. If you are seeing a reasonably qualified MD or DO, they are very unlikely to be "guessing" that it is auto-immune, as suggested by other posters. This is not one of those diagnoses given when the truth is we just don't know (I don't deny there are MANY of these- but autoimmune hepatitis is usually not one of them.) Prednisone can have unpleasant side effects but PLEASE talk about risks vs. benefits with your doc. I would make an appointment- this shouldn't be done over the phone. If you feel rushed or not taken seriously you owe it to yourself to get another opinion... ask for copies of all of your records and take them elsewhere. A good doctor can give you the information you need for you to decide whether to take a drug (in your case, prednisone). Good luck.
    Anonymous 42789 Replies
    • October 12, 2007
    • 05:35 AM
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  • Mellie - you are hitting the nail on the head. EDS can provide very accurate information. I perform it on patients of many ages. The accuracy of it on different types of infectious agents is stunning, IMO. To the original poster, Systemic Formulas of Ogden UT have the best liver support supplements I have ever used myself and for patients. The liver has many functions and Systemic has specific formulas to support each lobe. The formulas can be combined with other formulas to work with bacterial, fungal or viral problems in the liver or other organs with formulas specific for those other organs. I am raving, but when the liver gets healthier, the "bugs" will not express themselves. Typical medical treatment does not address improving the health of the liver so that it becomes a less friendly place for the virus.
    Anonymous 42789 Replies
    • October 13, 2007
    • 09:37 PM
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