Discussions By Condition: I cannot get a diagnosis.

what is the best treatment for kaposiform heamangio endothelioma

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: shadow55
  • July 21, 2008
  • 06:50 AM

as title,I hope someone can give me some suggestion about this disease.
due to I know which hospital is good at this subject ,so information what you apply to me is appreciated,thanks!

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  • as title,I hope someone can give me some suggestion about this disease. due to I know which hospital is good at this subject ,so information what you apply to me is appreciated,thanks!Has anyone ever posted anything? My daughter has one of these tumors in her left arm. She was diagnois with it at about 9 yrs old (she is 24 now). She has tried Vincristine, Intron A, Taxol and another one. And she has been doing pain nerve block shots sine the begining of the year. In the beginning seem like they were working, but not lasting that anymore. She is going in for her 3rd set of 3 in a week. I am so tired of her being in so much pain.
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