I had a little girl on July 4th last year. I had no complications with the pregnancy other than preterm labor, however she was delivered at 38 weeks. She was immediately rushed to the nursery with distressed breathing (later found out it was transient tachypnea of the newborn). two days later she was rushed to the NICU with a collapsed lung. We later found out she had a hole in her heart (PFO), and pulmonary stenosis, and hypertension. They also came back and said it was pneumonia but i don't think it would clear up in a days time.
When she came home she was doing great with the occasional grasping spells but she has never turned colors. now she is 11 months old and considered a failure to thrive baby. She weighs about 13.6 pounds and can only sit up and roll over nothing else. She babbles a little and can only say about three words. No matter how much she eats we are not able to make her gain weight. When you watch her interact she seems normal but has days that she will sleep about 21 hours out of a day and some days she cries unconsolablely for hours. I have also noticed that her joints hyperextend and she does not sweat.
We have been to see several doctors and everything comes back clean so they are dragging their feet on finding out whats wrong. Anyone have any ideas on what could be happening???