Discussions By Condition: I cannot get a diagnosis.

What else could it be?

Posted In: I cannot get a diagnosis. 10 Replies
  • Posted By: Linda55
  • March 27, 2008
  • 06:29 PM

I have all the symptoms of Hypothyroidism but the blood tests come up negative. I DO have Hypoglycemia and that's all that can be proven. I'm so tired and depressed all the time. I know depression CAN cause aches and pains, But all the rest of it???? Come on What else could it be? None of the doctors I've seen seem to want to get to the bottom of it.
Please help!:(:confused:

Reply Flag this Discussion

10 Replies:

  • You didn't mention many symptoms, but if it is the basic hypo symptoms it still could be hypo....some doctors do not test it properly. At the very least, you need FT3, FT4, TSH AND the antibodies for Hashimotos disease...You may need to see an endocrinilogist. If you suspect hypo, go to Mary Shomon's site on thryoid...I myself have thryoid issues...and it is the best...the forums are great and many knowledgable folks to help you though it and EVEN TO make suggestions in the event it is not hypothryoidism....could be subclinical hypo as well and many do benefit with some thyroid supplement if it is..... some other possibilities if hypo is definitely ruled out include, vitamin b12 deficiency, iron/ferretin/ adrenal (cortisol problem), diabetes, candida, celiacs disease and perimenopause (can start for some from the mid to late thirities!), and depression....if it is depression, keep in mind that there are a LOT of antidepresents out there and some work for some folks but not for others so you may need to try a few and hang in there until you find the right one...unfortunately the docs can't tell which ones or combination of ones, will work or not until you try and for each trial you need to give 6-8 weeks...it is tough, I know, as my MIL is currently going through it but has finally found the right combination.....Joan
    Joan5555 316 Replies Flag this Response
  • blaze.. depression can in fact cause pain!! It is a well known fact.. depressed people may suffer from headaches, muscle aching, stomach aches etc. This fact is also why so many doctors sometimes misdiagnose CFS people as being just depressed. My own sister thought she was getting CFS due to muscle aches etc.. but it turned out she did only just have depression.. and the symptoms she had was due entirely to the depression. She was treated by SSRI drug and some vitamin support.. and is fine now. blaze.. i cant believe that you've just gone as far as you just have on this site.. Telling one that they are wrong and that their symptoms couldnt be something that they think they are, and in fact they could well be.. then trying to send that one to the lyme site. That tactic to get someone to go to the lyme site is so so low!!
    taniaaust1 2267 Replies Flag this Response
  • for blaze... just in case her post was an innocent mistake (but really if you dont know about something, you shouldnt comment on it in th way you did. (following from a mental health org.) please note the last symptom on this list. "Depression Signs and SymptomsFeelings of helplessness and hopelessnessA bleak outlook—nothing will ever get better and there’s nothing you can do to improve your situation. Loss of interest in dailly activitiesNo interest in or ability to enjoy former hobbies, pastimes, social activities, or sex. Appetite or weight changesSignificant weight loss or weight gain—a change of more than 5% of body weight in a month. Sleep changesEither insomnia or oversleeping (also known as hypersomnia). Psychomotor agitation or retardationEither feeling “keyed up” and restlessorsluggish and physically slowed down. Loss of energyFeeling fatigued and physically drained. Even small tasks are exhausting or take longer. Self-loathingStrong feelings of worthlessness or guilt. Harsh criticism of perceived faults and mistakes. Concentration problemsTrouble focusing, making decisions, or remembering things. Irritability Easily annoyed or frustrated. Lashing out in anger or snapping at others. Aches and painsNew or worse physical symptoms, including headaches, backaches, diarrhea or constipation, abdominal pain, and aching joints.
    taniaaust1 2267 Replies Flag this Response
  • Joan has given you a good list of things to be checked for.. low cortisol problems can sometimes cause low blood sugar tests and sometimes low sodium levels. ......... another problem which can cause very similar symptoms to hypothyroidism.. is chronic fatigue syndrome (i have over 80 different symptoms with that)........ maybe list all your symptoms here and people will have more of an idea of what could be wrong and what thing fits better.
    taniaaust1 2267 Replies Flag this Response
  • Did they check you for polycystic ovaries? Hypoglycemia is associated with this.
    aquila 1263 Replies Flag this Response
  • I thank you all for your suggestions. My symptoms include depression, trouble sleeping, fatty cysts, aching and swollen joints (all over), acne, hypoglycemia, chronic yeast/vaginosis, puffy feet in the morning, chronic fatigue, anxiety and endomitriosis. I also test high for cholesterol. Maybe this will make things a little more clear for someone.:o I have to agree about the Lyme's thing. My son would have had severe problems after being born if that were the case.
    Linda55 2 Replies Flag this Response
  • I had symptoms of hypothyroidism too, but my hormone levels were always okay. I also had neuro symptoms, which prompted repeat work-ups for MS and other neuro diseases. Eventually, I was diagnosed with something called Hashimoto's Encephalopathy, a rare complication of autoimmune thyroiditis. It's diagnosed by checking thyroid antibodies. After the diagnosis, I had an ultrasound of my thyroid done and found it was full of tiny nodules from the autoimmune destruction... The whole time I was ill, I had been reassured over and over that my thyroid gland was okay. In the meantime, I lost half my hair, my skin got drier and drier, I had elevated cholesterol and triglycerides, compression neuropathies, poor appetite, constipation, etc etc.While I don't think you have HE, if you think you have hypothyroid symptoms, I'd look into asking to have thyroid antibodies and perhaps and ultrasound checked. You might have thyroiditis. Doctors are trained not to order antibodies or ultrasounds unless your thyroid hormones are off first, or you have a goiter... I know all the literature out there says that if your TSH is okay, then your symptoms aren't from your thyroid, but my own personal experience has taught me otherwise.Not sure if this is helpful at all, but I do hope someone gets to the bottom of your symptoms so you can get treated for whatever it is.Take Care
    Anonymous 42789 Replies Flag this Response
  • high cholesterol is not uncommon with thryoid problems especially hypo...also seen often with menopausual issues or perimenopause....as others have suggested don't give up....I think you need serious talk with an endocrinologist and possibly a GYN as well....Joan
    Joan5555 316 Replies Flag this Response
  • I thank you all for your suggestions. My symptoms include depression, trouble sleeping, fatty cysts, aching and swollen joints (all over), acne, hypoglycemia, chronic yeast/vaginosis, puffy feet in the morning, chronic fatigue, anxiety and endomitriosis. I also test high for cholesterol. Maybe this will make things a little more clear for someone.:o I have to agree about the Lyme's thing. My son would have had severe problems after being born if that were the case.Have you had all the tests needed to determine whether you have thyroid disease? All tests normal doesn't mean much. I had thyroid disease for 30 years without a proper diagnosis. And the reason was no doctor ever did tests beyond a TSH and a Total T4. You need a TSH, FreeT3 and FreeT4 for starters. Also thyroid antibodies is a good test too. A thyroid scan might help in the diagnosis as well.On average, it takes five years before getting a proper diagnosis and treatment for autoimmune diseases.For more information about thyroid disease and a supportive forum:http://www.freewebs.com/thyroidAnd then you need to know what normal means for thyroid tests:http://www.thyroidmanager.org
    Anonymous 42789 Replies Flag this Response
  • What is a Goiter?:confused:
    Linda55 2 Replies Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.