Discussions By Condition: I cannot get a diagnosis.

What Does This Mean

Posted In: I cannot get a diagnosis. 10 Replies
  • Posted By: jomomma430
  • April 9, 2008
  • 01:10 PM

I am 32/f . 5 ft 3 110-115 lbs. When I was 19 I was diagnosed with EBV and I also had a lymph node biopsied that came back normal. Fast forward 13 yrs --For the past year now I suffer from intolerable night sweats, weight loss, intolerance to the cold, fatigue and body aches and severe body pain all over. I was tested for Lymes, Thyroid function, RA and Lupus/ANA. All came back negative and or normal except RA.

Since this past saturday I have been unable to get off the couch or out of bed due to the sever aches and pains throughout my body. I took the prescribed percocet and didn't help at all. Last night I went to the ER because I was in excruciating pain. ((This was the second time in my in my adult life I cried tears of pain; first was before my epidoral while delivering my son 3 years ago.))

The ER doc gave me Dilaudid in my IV for pain which worked nicely. He also did the following blood tests. I had to ask for a copy.

HCG Qual - Negitive
CMP - Normal except CL- slightly elevated
CPK - Normal
Sed Rate - Normal

CBC - RBC - Low /// MCH - High /// % Neutrophiles - High /// % Lymphs - Low /// Absolute Neutro - High /// ABS Basos - None 0.0
MDIFF - Bands - High at 12 ** was 7 on 11/8/04 while I was in ER for vertigo at 7 months pregnant** /// Lymphs - Low


The ER Doc told me labs were ok and to follow up with Rheumatologist. And sent me on my way. What does all of this mean??

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10 Replies:

  • Any input from someone who knows anything about hemotology would be great. I can't live day to day in this kind of pain.:confused::confused::confused:
    jomomma430 21 Replies Flag this Response
  • Im thinking parasite. the body aches, joint pain its all explained by parasites. the only problem is WHAT TYPE of parasite so: have you been out of the country? and where do you live? do you eat uncooked meat ever? do you or have you ever eatten uncooked fish? if you have been out of the country, where did you go? what type of food did you eat there? (if you can recall) did you go swimming there? what type of places did you visit (forest ect)
    Eyes, Ears 24 Replies Flag this Response
  • Have you looked into the possibility of Chronic Fatigue Syndrome or Fibromyalgia? Your symptoms sounds similar.
    Beth56 272 Replies Flag this Response
  • Im thinking parasite. the body aches, joint pain its all explained by parasites. the only problem is WHAT TYPE of parasite so: have you been out of the country? do you eat uncooked meat ever? do you or have you ever eatten uncooked fish? if you have been out of the country, where did you go? what type of food did you eat there? (if you can recall) I have to answer None of the Above:(
    jomomma430 21 Replies Flag this Response
  • I have to answer None of the Above:( ah ok. so thats not an option. ill check back later, but i think you may have CFS or Fibro as another person said
    Eyes, Ears 24 Replies Flag this Response
  • :mad:Ahhh there it is......Fibromyalgia. The "We don't know what is wrong with you" / misc diagnosis.
    jomomma430 21 Replies Flag this Response
  • Have you looked into the possibility of Chronic Fatigue Syndrome or Fibromyalgia? Your symptoms sounds similar. I tested positive 13 yrs ago with Ebstein-Barr Virus.
    jomomma430 21 Replies Flag this Response
  • I'm trying to be helpful, I don't have an answer for you.Anything here sound familiar?http://candidapage.com/cccomp.shtmlRheumatoid Arthritis is serious and painful. Perhaps this is the cause of your pain.http://www.rheumatology.org/public/factsheets/ra_new.asp
    Beth56 272 Replies Flag this Response
  • I'm trying to be helpful, I don't have an answer for you. Anything here sound familiar? http://candidapage.com/cccomp.shtml Rheumatoid Arthritis is serious and painful. Perhaps this is the cause of your pain.http://www.rheumatology.org/public/factsheets/ra_new.asp Thanks....I will check it out.
    jomomma430 21 Replies Flag this Response
  • :mad:Ahhh there it is......Fibromyalgia. The "We don't know what is wrong with you" / misc diagnosis. so the CDC made a page on Fibro for no reason? there are groups raising funds for fibro for no reason? they get doctor and government support... for no reason these fibro groups get support so they can get doctors to learn to diagnose it properly. instead of diagnosing somebody with JRA when its really fibro fibro exists. im not saying that you said it doesnt, im saying that its NOT a quick fix. if anything its a hard diagnosis. a quick fix diagnosis is JRA or anxiety
    Eyes, Ears 24 Replies Flag this Response
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