Discussions By Condition: I cannot get a diagnosis.

what did he have???

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: jleeillies
  • January 31, 2007
  • 01:40 AM

my dad just past away in Oct. We were lead to believe he had CJD but just got the autopsy report back and that wasn't it. We have been doing research on the internet and are wondering about GSS which is an extremely rare prion disease and would like to know how we can find out if this is what he had or what else would it be? If this would be the right disease, it's hereditary and only fatal. My whole family sits on the edge to know.

Reply Flag this Discussion

1 Replies:

  • Did the autopsy say what it was or was it inconclusive. I am not sure what GSS is. Would this have been a disease that is detectable on autopsy? I wouldn't get too upset before I had more information. If it does turn out to be GSS, referral to a genetics specialist might help.
    Anonymous 42789 Replies
    • January 31, 2007
    • 02:34 AM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.