Discussions By Condition: I cannot get a diagnosis.

What could be wrong with her?

Posted In: I cannot get a diagnosis. 155 Replies
  • Posted By: Anonymous
  • January 5, 2007
  • 05:02 PM

Hello. My 13 year old daughter has been very sick for about a month. She has been to the doctors 4 times and they can't seem to find the problem. She is going back in 2 weeks or so because that is the only appointment available but she is in alot of pain. Just so everyone knows she is a vegetarian and has a panic disorder.

It first started in the end of November with very bad chest pain in the middle of her chest, and extreme fatigue.

-The doctors checked her for Mono and thyroid problems which all came back negative.

Than in the beginning of December she had slight chest pain, slight back pain, and a cough.

-Doctors checked for streph,bronchitis and did a chest x-ray which came back again negative.

-Also did bloodtest and found she had low cortisol level and calcium.

Now it was mid.December when she had again chest pain(hurt alittle more & with deep breath), somewhat painful back pain, swollen glands, cough.

-Doctor sent her to another doctor because he couldn't find the problem.

Other doctor in Mid December before Christmas break saw her. He did a full examination and came to the conclusion she had pertusis ( the whooping cough) without doing any test.

He recommended an Infectious Disease doctor.

She went through the break with very little pain.

Now she has terrible back and chest pain, usually leaves her crying and shaking and I asked her on a scale of 1-10 what would she rate it and she said an 8 or a 9. I got a bit worried, and when this happened last night was ready to take her to the hospital but she refused to go because she hates hospitals.

The Chest pain is on her breast and today went into her armpits halfway down her arm. On the left side & also on the right sometimes.

She has VERY bad ribcage pain below her breast and down mostly on the left side but occasionaly on the right.

The back pain in where her ribs are and sometimes lower and she said this hurts the most. She cries so much and tylenol doesn't help the pain whatsoever.

The pain is sometimes also in her shoulders.

We tried baking soda and water to see if it was acid reflux, after a half an hour with nothing going away I gave her an antiacid which didn't help.

She also has mild-moderate pain in her stomach below her ribs and near her hipbone.

Honestly, the pain just keeps increasing.

Any ideas as to what it could be and how I could help her until we go to the doctors?

Thanks so much.

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  • Hello~ I am a mommy of a 13 year old girl also. I can only imagine the pain and trauma you are experiencing right now. I am in tears just reading about it. I am glad you are staying proactive about the situation, and reaching out to others for assistance. My daughter also has a relatively poor diet, but no effects from this are apparent. (She's always been a picky eater). I have a few questions for you, and then perhaps some suggestions as well. First of all, like others have stated, pain is a way for the body to tell us something is wrong...but what? Since so many things can happen or go wrong, you should likely make a list of ALL the symptoms, dates, times, etc. when these incidents occur. A written documentation can greatly assist many health care professionals, and will give them something to read, reflect upon, and perhaps share with other professionals. (I think it also helps to establish a level of professionalism on your part, since often 'professionals' like to dismiss us 'laymen' as having little or no brains). SO here are some questions: Sometimes, things in the past, will catch up to us later, before we even start to see signs of it. So, what types of changes have occurred for your daughter in her lifetime? Changes of environment...homes or schools? Or changes WITHIN the same environment... new pets, loss of old one, new carpeting or paint, or any other building structures that have been disturbed? ANY LOSS...of friends, family members, etc? Do you live in a toxic environment? Lead-based paint or asbestos or radon or high levels of mold or bad water? You can have all of these things tested, as well as her if she has been exposed to these toxins in her lifetime. Was she breast fed as an infant, or did she suffer with chronic ear infections? Also, no one is mentioning her period, has this began or is it near? We all know this can cause many changes in us as we are growing...have her pituitary gland checked. You also mentioned that she has scoliosis- has she seen or does she see a regular chiropractor or acupuncturist? You may want to look into this.( I suffered during and after my second pregnancy due to a car accident I had after my first pregnancy, and the physical stress from the 2nd pregnancy just wore my body down.. I spent months in physical therapy, and this did not help at all. I then discoverd a chiropractor who does not practice manipulative therapy, (he doesn't crack your joints). He uses reflexology, a way to move your bones back into proper alignment without manipulation, He is also a nutritionalist, and uses the products manufactured by Standard Process. NO ONE has been able to help me more than this man. I have taken many of the Standard Process products, with only benefits, no side effects. ( I am 37 by the way, and have taken these products for over 10 years). I think others are 'onto something' when they mention the lack of nutrition in your daughter's body. Go to the Standard Process website, and read up. These nutritional products can only be given by a health care professional, so if you want them, you will need to get them that way. They are VERY affordable. Also, keep up the good work, your spirits, and YOUR health...and lastly, I think you need human comfort. Do you practice any religion? I am not a Jehovah's Witness, but I have never found any other religion that is truly caring and loving, nor any other that was able to answer all of my (sometimes cynical) questions about the Bible. If you need support, even for a a little while, these people will welcome you. Just find a local Kingdom Hall in your area. My prayers are with you and your daughter, and I truly truly hope you find the peace and assistance that you are seeking, and need!
    Anonymous 42789 Replies
    • January 8, 2007
    • 10:18 PM
    • 0
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  • Hello~ I am a mommy of a 13 year old girl also. I can only imagine the pain and trauma you are experiencing right now. I am in tears just reading about it. I am glad you are staying proactive about the situation, and reaching out to others for assistance. My daughter also has a relatively poor diet, but no effects from this are apparent. (She's always been a picky eater). I have a few questions for you, and then perhaps some suggestions as well. First of all, like others have stated, pain is a way for the body to tell us something is wrong...but what? Since so many things can happen or go wrong, you should likely make a list of ALL the symptoms, dates, times, etc. when these incidents occur. A written documentation can greatly assist many health care professionals, and will give them something to read, reflect upon, and perhaps share with other professionals. (I think it also helps to establish a level of professionalism on your part, since often 'professionals' like to dismiss us 'laymen' as having little or no brains). SO here are some questions: Sometimes, things in the past, will catch up to us later, before we even start to see signs of it. So, what types of changes have occurred for your daughter in her lifetime? Changes of environment...homes or schools? Or changes WITHIN the same environment... new pets, loss of old one, new carpeting or paint, or any other building structures that have been disturbed? ANY LOSS...of friends, family members, etc? Do you live in a toxic environment? Lead-based paint or asbestos or radon or high levels of mold or bad water? You can have all of these things tested, as well as her if she has been exposed to these toxins in her lifetime. Was she breast fed as an infant, or did she suffer with chronic ear infections? Also, no one is mentioning her period, has this began or is it near? We all know this can cause many changes in us as we are growing...have her pituitary gland checked. You also mentioned that she has scoliosis- has she seen or does she see a regular chiropractor or acupuncturist? You may want to look into this.( I suffered during and after my second pregnancy due to a car accident I had after my first pregnancy, and the physical stress from the 2nd pregnancy just wore my body down.. I spent months in physical therapy, and this did not help at all. I then discoverd a chiropractor who does not practice manipulative therapy, (he doesn't crack your joints). He uses reflexology, a way to move your bones back into proper alignment without manipulation, He is also a nutritionalist, and uses the products manufactured by Standard Process. NO ONE has been able to help me more than this man. I have taken many of the Standard Process products, with only benefits, no side effects. ( I am 37 by the way, and have taken these products for over 10 years). I think others are 'onto something' when they mention the lack of nutrition in your daughter's body. Go to the Standard Process website, and read up. These nutritional products can only be given by a health care professional, so if you want them, you will need to get them that way. They are VERY affordable. Also, keep up the good work, your spirits, and YOUR health...and lastly, I think you need human comfort. Do you practice any religion? I am not a Jehovah's Witness, but I have never found any other religion that is truly caring and loving, nor any other that was able to answer all of my (sometimes cynical) questions about the Bible. If you need support, even for a a little while, these people will welcome you. Just find a local Kingdom Hall in your area. My prayers are with you and your daughter, and I truly truly hope you find the peace and assistance that you are seeking, and need! Thank you soo much. I am telling her to write down everything. Symptoms at what time, changes in symptoms and things like that. There is no overall changes. However, about 2 months ago we lost our dog that we had for 13 years(her whole life). It was devastating, but eventually we got over it. Recently we purchased a new dog from a dog shelter. She was breast fed. She sees an orthepedic for her scoliosis, but he sees nothing to worry about. We're Christian, and pray to god every night to heal her. He'll work in time. Thank you for understanding. Hopefully they will find something in the test they ordered!
    amanda93 45 Replies
    • January 8, 2007
    • 11:09 PM
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  • Inhumane is child neglect.A child needs to eat the same food 36 times, before he/she acquire the taste for it. It is not up to a 13 year old to decide who she is going to end her life because she does not want to eat nutritious food.That little girl is just acting like that coz she has learned it from her mother.Her mother refuses to take the help from this board- just like the girl refuses to go to the ER.Amanda could call an ambulance to take her daughter to the ER.I think the moderator should check Amanda's IP and call Social Services.Just like it's not up to you to be judgemental and so damned opinionated that you think your methods and ideas are the best- even to the point of putting someone down and shoving your ideas down their throat. While you may actually care about the condition of this child, your methods leave much to be desired. I do not believe your way of dealing with things is reasonable or proper, and I would seriously hate to have you as my 'neighbor'.Have you ever checked the statistics on child death, sexual abuse, mental abuse, other physical abuses, INCLUDING neglect that thousands of children suffer from AFTER they are placed into so-called 'State Protective Services'. I say THANK GOD you cannot know who this child is, otherwise I am sure you'd be one of those anonymous little self-righteous extremists that love to believe they know what is best for someone else's child(ren)- and would likely over-exaggerate or even lie to rip a family apart before you even know the whole story!Now, while I agree with much of what you are attmepting to say- (a child cannot make the best choices for themselves, going to the hospital anyway due to the extreme pain)- but YOU have NO RIGHT to DECIDE what course of action a parent takes with regards to a child's upbringing, etc. Now, if my 13 year old was having this much trouble/ pain- I MAY force her to go to the ER- but maybe not. I myself cannot stand hospitals, most of Western Medicine/ Science is not truly helpful, and even I am reluctant to go to the hospital if I have a problem, because being there can cause me more EMOTIONAL and MENTAL stress. I think you aare forgetting that "Amanda" is/ was under the care of physicians before and during this set of incidences. I believe this is why her mother attempted to seek help here, as, she was not perhaps getting satisfying answers from ALL the other 'professionals' she was reaching out to. I was in the ER on January 1st of this year. They told me I had a Urinary Tract Infection. They prescribed, what can be, a very dangerous antibiotic. ( I have had a UTI before, and did not believe this was a correct diagnosis). THE NEXT DAY, I went to my regular doctor, and guess what? NO UTI! ( So what would happen to me if I took an antibiotic that was not right for me?)Humans are fallible, people-even 'professionals'- can be wrong. Let Amanda's mother live in peace, let her make her own mistakes. God so allows you to do so, so why can you not allow others to do the same?You may want to consider being more reasonable, less hasty and less judgemental. I think you have a good head, and even a good heart, as you DO seem to care about this child...but you are doing more harm than good here. If that is not your intent, than please try to consider how to better express your views, ( which you apparently feel strongly about), without putting other people's choices down. Thank you for your reply! : ^ )
    Anonymous 42789 Replies
    • January 10, 2007
    • 01:00 AM
    • 0
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  • this could be way off base so definetly keep up with the tests you are doing, but except for the swollen lymph nodes, my daughter has these sort of pains too. for 2 years she was thouroghly checked out, and nothing found. now- we know that she has fragile x, and her sub-disorders include sensory integration. with sensory integration- the brain misinterprets things like touch. a tickle can feel like fire, a hair on your arm-like barbed wire. does she dislike certain textures/colors/sounds? feel distress if she has to wear certain clothes or has things touch her? just a consideration. good luck
    kamsae 88 Replies
    • January 14, 2007
    • 05:51 PM
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  • Under diagnosed, and rarely tested for in anyone except the obvious at risk population (fair, forty, female and fat) is gallbldder dysfunction. It can cause all of those symptoms in young, thin people. Not always a "stone" or lithiasis issue, the gallbladder is inherently dysfunctional in some people. I personally dealt with this from childhood, until finally someone looked at it with sonogram! Also, I suggest an EKG and a TB test just to rule out as alternate diagnosis. Her potassium level should be checked as well. Low calcium and cortisol are suspect for adrenal fatigue at a minimum and should be treated. Adrenal glan dysfunction will cause inappropriate stress response to include CP, and we know she is deficient in cortisol. Calcium is needed for proper cardiac function, and a lack of can cause issues and may indicate underlying thyroid and parathyroid issues. When being sheffled around by doctors.. be assured that they are playing CYA. At her age, sex hormones are a factor in her develpment and growth and should be checked to rule out an imbalance.
    Anonymous 42789 Replies
    • January 14, 2007
    • 11:27 PM
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  • You may want to look into the possibility of fibromyalgia. I dated somone with this condition and she had very similar symptoms. The problem with fibromyalgia is that the person can appear completely healthy and it will not show up in tests at all. Often it is diagnosed after every other possibility has been researched. Some scarcely believe in the condition at all. Here is a related article you may find helpful:Fibromyalgia/chronic fatigue is a disease of exclusion. In other words, these patients have an array of symptoms and complaints, which mimic many illnesses. Physicians usually do very extensive workups only to find that everything appears pretty much normal. This disease used to be called "psychosomatic rheumatism." I fear that many physicians still believe this disease is simply in the patient's head. More and more doctors, however, are beginning to realize the seriousness of this disease and its tremendous affect on patients’ lives. Statistics estimate there are over 8 million people in the United States alone suffering with this disease. Eight out of nine are women. Fibromyalgia and chronic fatigue are considered by many to be different expressions of the same disease. All of these patients suffer from overwhelming and usually disabling fatigue. Fibromyalgia patients experience total body pain, unrestful sleep, mental confusion, and a myriad of other symptoms. Patients with chronic fatigue, on the other hand, have more swollen glands, recurrent fevers, and frequent infections. Fibromyalgia is diagnosed by excluding other possible diseases and then by doing tender point testing. By eliciting tenderness in at least 11 of 18 predetermined spots, a physician is able to diagnose the disease. Essentially all laboratory tests, X-rays, biopsies, and MRI's will come out negative. Chronic fatigue patients are diagnosed by eliminating all other possible causes of fatigue. Anyone who has suffered for more than six months with disabling fatigue essentially has chronic fatigue. The sad truth is that it usually takes approximately 6 to 8 years for these patients to finally be diagnosed by their physician with one of these diseases. Traditional medicine has no specific treatment for these diseases. With fibromyalgia, physicians typically place patients on a non-steroidal anti-inflammatory for pain, amitriptyline for sleep, perhaps a muscle relaxant, and anti-depressant and then they tell the patient to find a support group and learn to live with it. What is even more concerning is the frequency with which these patients are being treated with narcotic pain medication. Now, they not only have a horrible disease but are also hooked on narcotic pain medication.My wife has suffered with fibromyalgia for the past 18 years. During the first 12 years of our marriage she needed to be in bed before 8 P.M. She never had a restful night's sleep and would get up just as tired as when she went to bed. Living with this illness for the past 17 years has totally changed my perception on the seriousness of this disease. Early morning stiffness, mental fog, muscle spasms (my massage technique has certainly improved), fatigue, and pain were daily encounters with which she had to learn to live. My wife has always joked that she thought marrying a physician would allow her to improve her health. But I’m afraid I was not the answer. The frustration felt by a physician when he or she is unable to do anything for a patient cannot be overstated. And I now realize, first-handedly, the frustration patients with fibromyalgia and chronic fatigue have with their doctors. When my wife was struggling with the most difficult fatigue, she asked if she could try some nutritional supplements given to her by a friend. For 23 years, I would do most anything to get my patients off any kind of supplements. However, my response to her shocked even me. I told her she could certainly try since I had not been able to find anything to help her through traditional medicine.Within weeks she saw marked improvement and within months she was back to her normal self and off all medications. Over the next year she not only totally recovered, but felt more energetic than she had in years. She has added three to four hours to each of her days. She has significantly less pain and fewer muscle spasms, and her energy level has now surpassed mine. Obviously this caught my attention. Her recovery challenged me to try to understand what had happened. This was the beginning of my newly found interest in nutritional supplements.Shortly after this experience, I read a book by Kenneth Cooper, M.D., called "The Antioxidant Revolution." I have always admired Dr. Cooper, who started the exercise revolution back in the early 1970s. I became so intrigued with his book I researched his research. One part of the book especially caught my attention: at his aerobics clinic in Dallas, Dr. Cooper evaluated several athletes suffering from over-training syndrome. His theory was that oxidative stress was the cause. When people exercise mildly to moderately the body is able to handle the amount of free radicals produced. However, in cases of excessive exercise as in the training of professional athletes, the amount of free radicals goes up exponentially. It struck me that these athletes with over-training syndrome had the same symptoms as patients with fibromyalgia and chronic fatigue syndrome. I was baffled and wondered, Could it be possible that the root cause of fibromyalgia /chronic fatigue is oxidative stress?As we learn more and more about how oxidative stress can cause degenerative diseases, one has to wonder if this is the cause of the fibromyalgia/chronic fatigue syndromes. These syndromes are not high on the totem pole for research dollars. I have been unable to find any significant studies that have considered this as a possibility. I am hopeful more funds will be allocated toward these disabling diseases in the future.For the past ten years, I have been evaluating and treating a group of patients with the belief that the underlying cause is oxidative stress. Since these diseases are able to mimic many other diseases, I must first rule all other possibilities out. I then place these patients on a complete and balanced nutritional supplement program, which I have recommended below. I also recommend that my fibromyalgia patients exercise carefully every other day. Now when these patients exercise, they must be careful. Even mild or moderate exercise can set off an exacerbation of their illness. Therefore, I explain that they must execercise very carefully and be sure not to excersise two days in a row. Now it may simply be walking for 5 minutes and trying to slowly build up to walking 20 to 30 minutes every other day. Mild weight resistant training can also help; however, again this should not be done two days in a row.I have also noted that many of my fibromyalgia patients are very sensitive to sugar. They tend to eat sugar and what I refer to as high-glycemic carbohydrates and set off a roller coaster ride for their blood sugars. Now they may feel better for 10 to 15 minutes; however, their blood sugars will drop almost as fast as they went up and they drop into that hypoglycemic or low blood sugar range. Since we think on blood sugar, their mental confusion becomes worse and these low blood sugars stimulate the release of stress hormones, which set off what I refer to as a "Carbohydrate Addiction." I encourage all my chronic fatigue/fibromyalgia patients to become members of my behavioral modification web site located at www.releasingfat.com. Even if you do not need to lose weight, learning how to eat in such a way as to NOT spike your blood sugar can go a long way in improving your fatigue especially when you combine these healthy lifestyles with nutritional supplementation and a mild exercise program.I have observed a fairly consistent pattern of improvement in my patients. The most common response I get at the two-month follow-up exam is their thinking and focus is significantly improved. They feel they have come out of a mental fog. At the four-month exam, they are usually sleeping better and noticing some improvement in their energy level. The last things to improve are the pain, fever, and frequent infections. The decrease of infections and fevers is evidence that one’s immune system is definitely improving. Many of my patients comment, “I actually have my life back!”I have now been involved with over 1000 patients with fibromyalgia and chronic fatigue and have been able to achieve good to excellent results in over 70 to 75% of these patients. By bringing oxidative stress back under control, their disease has been captured.
    Anonymous 42789 Replies
    • February 7, 2007
    • 07:38 PM
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  • The majority will have significant improvement while using high-quality, complete and balanced nutritional supplements along with necessary optimizers. I have found that the optimizers must be varied or increased depending on the initial response of the patient or the severity of one’s disease. It often takes six months for these patients to be convinced of their improvement and they may still not be fully recovered at that point—but they know they are on the right track. Once I see a significant clinical response, I keep my patients at that level of optimizer (in this case, Grape Seed Extract or Proflavanol 90) that seems to give them the best response. Now this may be 2 per day or they may need to increase this to 3 or 4 per day. In fact, if they have not noted any improvement in the first couple of months, I will increase it to 3 Proflavanol 90 daily or sometimes even to 4 just to see if they can get a response. Patients with fibromyalgia /chronic fatigue have flare-ups and remissions. Therefore, I advise my patients who have had a great response and are now on a maintenance nutritional program that they will have flare-ups and some difficult days. When this happens, I simply have them increase the amount of Proflavanol 90 they are taking. They may need to stay at this increased level of antioxidants for 10 to 14 days or until they are feeling better, and then they slowly drop back to the maintenance level again. Now that we have the Ten X Blast energy and antioxidant bars, it may be wise to have one on those days we just do not seem to be doing as well.Everyone needs to review the web page on "Oxidative Stress" to learn what factors increase the amount of free radicals produced by the body. Patients do best who’ve learned to anticipate situations that cause more oxidative stress. This may include a highly stressful situation, a vigorous work out, or even exposure to an increased amount of toxins which otherwise cannot be avoided. By increasing the amount of antioxidants before a potential setback, it allows the patient a jumpstart and the possibility of even avoid the setback altogether.One other precaution. When I first started to deal with my fibromyalgia patients, many of them would try these recommendations for a month and not note any improvement and just quit. They would say, "Well, that didn't work for me." This is so sad because I have learned over the years that many of my patients will not even begin to note any improvements until the 5th or 6th month on these recommendations. Therefore, if you are not willing to commit a minimum of 6 months to these recommendations, I would not even start. I feel that 60 to 70% of my chronic fatigue and fibromyalgia patients will respond favorably to this approach. When you are dealing with a lifelong disease that usually ends up in total disability, it is so sad for me to see people not give it a fair trial. It is better to wait until your are truly willing to commit to this program for a minimum of 6 months. For those individuals with fibromyalgia, it is truly worth it.Hope this helps,Paul
    Anonymous 42789 Replies
    • February 7, 2007
    • 07:38 PM
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  • I am a 33yr old male with the same kind of symptoms back and chest pain armpits ribs and muscle fatigue. have been going to the doctor for 9 months. they have done multiple tests ct scan of abdomen showed inlarged spleen and fatty liver. blood work showed high feriten of 815, they scared me to death saying they thought i had lymphoma cancer. but then they said that i probably didnt now they say all of my pain and problems are just stress but I know that is not the case. dont give up you will get to the bottom of this.and I hope they will give me some answers soon also.
    hunter 13 Replies
    • February 7, 2007
    • 11:39 PM
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  • I am a 33yr old male with the same kind of symptoms back and chest pain armpits ribs and muscle fatigue. have been going to the doctor for 9 months. they have done multiple tests ct scan of abdomen showed inlarged spleen and fatty liver. blood work showed high feriten of 815, they scared me to death saying they thought i had lymphoma cancer. but then they said that i probably didnt now they say all of my pain and problems are just stress but I know that is not the case. dont give up you will get to the bottom of this.and I hope they will give me some answers soon also.Your liver is probably invading your spleen. Research on Liver Qi Stagnation.
    Anonymous 42789 Replies
    • February 9, 2007
    • 06:38 PM
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