Discussions By Condition: I cannot get a diagnosis.

What could be wrong with her?

Posted In: I cannot get a diagnosis. 155 Replies
  • Posted By: Anonymous
  • January 5, 2007
  • 05:02 PM

Hello. My 13 year old daughter has been very sick for about a month. She has been to the doctors 4 times and they can't seem to find the problem. She is going back in 2 weeks or so because that is the only appointment available but she is in alot of pain. Just so everyone knows she is a vegetarian and has a panic disorder.

It first started in the end of November with very bad chest pain in the middle of her chest, and extreme fatigue.

-The doctors checked her for Mono and thyroid problems which all came back negative.

Than in the beginning of December she had slight chest pain, slight back pain, and a cough.

-Doctors checked for streph,bronchitis and did a chest x-ray which came back again negative.

-Also did bloodtest and found she had low cortisol level and calcium.

Now it was mid.December when she had again chest pain(hurt alittle more & with deep breath), somewhat painful back pain, swollen glands, cough.

-Doctor sent her to another doctor because he couldn't find the problem.

Other doctor in Mid December before Christmas break saw her. He did a full examination and came to the conclusion she had pertusis ( the whooping cough) without doing any test.

He recommended an Infectious Disease doctor.

She went through the break with very little pain.

Now she has terrible back and chest pain, usually leaves her crying and shaking and I asked her on a scale of 1-10 what would she rate it and she said an 8 or a 9. I got a bit worried, and when this happened last night was ready to take her to the hospital but she refused to go because she hates hospitals.

The Chest pain is on her breast and today went into her armpits halfway down her arm. On the left side & also on the right sometimes.

She has VERY bad ribcage pain below her breast and down mostly on the left side but occasionaly on the right.

The back pain in where her ribs are and sometimes lower and she said this hurts the most. She cries so much and tylenol doesn't help the pain whatsoever.

The pain is sometimes also in her shoulders.

We tried baking soda and water to see if it was acid reflux, after a half an hour with nothing going away I gave her an antiacid which didn't help.

She also has mild-moderate pain in her stomach below her ribs and near her hipbone.

Honestly, the pain just keeps increasing.

Any ideas as to what it could be and how I could help her until we go to the doctors?

Thanks so much.

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  • Hi,Just read something that some people CANNOT be vegetarian. I believe it was in the new Christine Northrup book, Menopause for Woman.Also, don't want to scare you, but with pain sometimes comes cancer. I would check this immediately.
    Anonymous 42789 Replies
    • January 5, 2007
    • 05:26 PM
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  • How does she supplies herself with Vitamin D, B-12, and Calcium? Is she taking a fatty acid complex?Does she have constipation or internal gas?
    Anonymous 42789 Replies
    • January 5, 2007
    • 05:28 PM
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  • Thanks for replying. She has been a vegetarian for about 8-9 years and I do understand she lacks alot of things from her diet. No, she is not taking any vitamins.And I did do some research on cancer, which I am very afraid of. Thanks again. Anyone else?
    Anonymous 42789 Replies
    • January 5, 2007
    • 05:32 PM
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  • Oh and I forgot no consitipation or internal gas. That problem, however did affect her when she was about 4 or 5 with extreme stomach pain but nothing like this.
    Anonymous 42789 Replies
    • January 5, 2007
    • 05:33 PM
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  • Well her panic or anxiety might not be anything occurring in her "brain". She could be intoxicated internally because her body does not have the nutrients to push out its waste at the molecular level. Most of the nutrients we consume are used by our molecules to break down the toxins our body produce as normal metabolic operations.Our cells build their cellular membranes with the good fatty acids (omega 3)- if she does not take supplement of these, her cells have bad membranes and can be easily invaded by toxins and killed.Also she is at risk of intestinal permeability- but I don't think she is showing any symptoms right now.As far as vitamin D and Calcium- she can't get vitamin D in vegetables, she needs eggs, fish and specially oil fish. Vitamin D is vital for her bones.It is not surprise if she is feeling sick all over.If she eats lots of rise, breads and pasta with a little bit of veggies on the side, the is just killing herself slowly. Mom- you are already in "dr. mom mode", I know you are going to make sure she gets the nutrients.Run an inventory of each vitamin, mineral, trace element, flavonoid and phytonutrient and make sure she is getting it in her food.Take Care.I hope she gets better soon.
    Anonymous 42789 Replies
    • January 5, 2007
    • 05:42 PM
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  • Have you looked into Lyme disease?
    galpaltristen 3 Replies
    • January 5, 2007
    • 05:54 PM
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  • Thanks. For some reason the doctor isn't bringing that up, but I understand what you are saying. She refuses to eat something that was living. She won't eat eggs, fish, chicken & ANY meat product. I will have to take her to a nutritionalist & get her on some good vitamins. I have looked at lyme disease but she doesn't have rashes? Is that possible. Over the summer she did go to a bike trail (We live in NY) and it appeared that a tick(if it was) was later in our house. I don't know if she was bit, but she does show the symptoms. Thanks.
    Anonymous 42789 Replies
    • January 5, 2007
    • 06:01 PM
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  • Also, this is probably related to her horrible diet. When she sits down she gets up and sees black and gets dizzy often.
    Anonymous 42789 Replies
    • January 5, 2007
    • 06:03 PM
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  • & I forgot something else. She has mild scoliosis. Could all the horrible pain be contributing to this? The doctor doesn't think soo but?
    Anonymous 42789 Replies
    • January 5, 2007
    • 06:06 PM
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  • Thanks. For some reason the doctor isn't bringing that up, but I understand what you are saying. She refuses to eat something that was living. She won't eat eggs, fish, chicken & ANY meat product. I will have to take her to a nutritionalist & get her on some good vitamins. I have looked at lyme disease but she doesn't have rashes? Is that possible. Over the summer she did go to a bike trail (We live in NY) and it appeared that a tick(if it was) was later in our house. I don't know if she was bit, but she does show the symptoms. Thanks.She has to take flax seed oil asap and high quality vitamins with lots of vitamin D which you can rush and get for her at the organic store. I am sorry to sound harsh, but she is waisting away. Scoliosis is brought by lack nourishment. There are vegetarian types of supplements- go and shop for them- she needs nutrients real bad.I myself am against animal torture, cloning, and I believe milk is poison.But God/nature gave us the Animals- and we can respectfully 'borrow' those nourishments that they provide us. That's by the Native Americans knew that animals are sacred.When there were no vitamin supplements only animals could give us life- without them, we would not be here. So I understand your daughter, but she can still take vitamin D in pills.Hopefully she will do okay in her next doctor appointment. No cancer, nothing serious. God Bless.
    Anonymous 42789 Replies
    • January 5, 2007
    • 06:45 PM
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  • Ok, thanks again. You seem very smart. We are Christian and she understands that god put animals for us to eat but she just won't. I will get her on a good vitamin. Thanks SO much. Amanda
    Anonymous 42789 Replies
    • January 5, 2007
    • 06:52 PM
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  • Hi Amanda, severe pain will often affect our judgement, I experience chronic pain that at times is severe. When it is severe, the last thing I would want to do is leave my home to go anywhere, especially to a hospital. Usually pain is an indicator that something is wrong. Your daughter has not had this pain for years, it is new. I really think that if it is as intense as it appears to be that you would be wise to take her to the hospital. She will probably get help alot sooner from specialists if she is hospitalized. Doctors will also probably take your concern even more seriously. I would not 'wait it out'. Blessings, PJJ ps, mild scoliosis does not cause this type of pain.
    Anonymous 42789 Replies
    • January 5, 2007
    • 08:20 PM
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  • Thanks so much. You are right. I came to the conclusion that if the pain gets as bad as it was last night I am taking her to the hospital. Thanks again!-Amanda
    Anonymous 42789 Replies
    • January 5, 2007
    • 09:02 PM
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  • How is her digestion? Is she constipated? Does she have diarrhea/loose stools? How is her urination? How often a day? Does she have pain while urinating? Does she have any urgency or dark urine?Does she have pain with a bowel movement? Is she taking medications? For how long?
    acuann 3080 Replies
    • January 6, 2007
    • 04:03 AM
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  • In over 75% of Lyme's Diseases cases, patients do no experience the classic rash.
    Anonymous 42789 Replies
    • January 6, 2007
    • 04:54 AM
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  • Well her bowel is fine. As is her urine. I thought maybe she had a UTI but she said it doesn't hurt. Although she did say it was yellow I didn't think much about it. I am starting to consider Lyme Disease. What test do they have for that? Thanks everyone.Anyone else?I hate waiting until the 16th and seeing her in pain.
    amanda93 45 Replies
    • January 6, 2007
    • 01:48 PM
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  • She is also very pale and has a low grade fever. But I was wondering, she had the mono test done on November 30th, when her symptoms weren't so bad, but her cousin also had mono. Is It possible that mono didn't show than but may show now? Also the pain in her upper back is getting very severe and it appears to be on her left lung. Any ideas?
    amanda93 45 Replies
    • January 6, 2007
    • 06:50 PM
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  • Have any of the Dr's told you about chostrocondritis? This is a painful condition that effects the chest and surronding areas. Panic disorder also causes severe chest pain and shaking. As for the other symptoms I would have to look at some patient files and see. What type of Dr. will she be seeing on the 16th?
    Anonymous 42789 Replies
    • January 6, 2007
    • 07:08 PM
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  • I have looked into that, but wouldn't the chest x-ray show that? I can't understand why she is having severe pain in her left lung. She has had chest pain do to her Panic Disorder, but this is a different kind of pain that never really goes away for over a month. Thanks!
    amanda93 45 Replies
    • January 6, 2007
    • 07:11 PM
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  • & she is seeing a regular pediatrician. I don't think she can wait that long and if the pain is severe, I will take her to the hospital.
    amanda93 45 Replies
    • January 6, 2007
    • 07:12 PM
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