Discussions By Condition: I cannot get a diagnosis.

WHAT can I DO to help figure this out??

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: ethican
  • March 12, 2007
  • 06:18 PM

i cannot get a diagnosis and it's taking too much away from my life. i need to get back
to living. please help me figure it out!

about me...
- 6'0"
- 230lbs
- 32 y/o male
- former athlete/sport build/large thighs+calves (185-190lbs in excellent shape)
- currently sedentary at 12-16 hours/day on a computer at work and home
- been sendentary for about 1 year

i get/have the following symptoms now...
- moderate chin numbness that comes and goes but stays a while when it happens
- tingling of the lower lip about 10-20 times per day for 5 seconds
- tingling in the right eyeball about 1-2 times per day for 5 seconds
- sharp pins in forearms 5-10 times per day for 5 seconds
- sharp pins in torso/stomach skin/surface a few times per day
- tingling in hands throughout the day, but not constant
- tingling in toes and feet 5-10 times per day
- wake up with feet moderately asleep each morning, but not numb
- sharp pins in throat 3-5 times per day
- tingling in scalp several times per day
- feel dizzy sometimes for a few seconds when i turn quickly and focus on something
else, but never had this happen before
- need glasses now but prescription is not strong
- generally tired and need to nap but used to be 6 hour/night sleep and always energetic
- sore neck and back muscles but no strong pain
- other things i'm sure i'm forgetting here
- when i sweat mildly like when you need to take a sweatshirt off because the room is
too warm, i get the pins and needles all over as the sweat glands kick on.
- conscious of heart beat when lying down
- seeing stars sometimes. if i stare at something white, i can see a few stars.

this is how i got to this point...
january week 1
+ had been feeling intestinal cramps for months
+ saw gi doc and he suspected nothing but ordered colonoscopy
+ sent me to get ct scan with contrast
+ i had allergic reaction to iodine with hives and itching

january week 2
+ had colonoscopy and was 100% normal
+ while eating sunflower seeds that i've been eating every day for 5 years, my throat
suddenly swelled up and i felt like i'd pass out. i had to go to er
+ gave me benadryl and prednisone at hospital
+ throat swelling went away but chest pressure was awful

january week 3
+ stopped prenisone and chest pressure subsided
+ blood pressure and heart rate all out of wack
+ exhibited symptoms of hyperthyroidism
+ test for hyperthyroidism was negative
+ having lightheadedness off and on
+ battery of tests done at quest diagnostics, all negative

january week 4
+ tingling starts but no pain
+ headaches in top left of head
+ also feels like someone is pulling out my hair

february week 1
+ tingling mixes with numbness
+ headaches worse but always in top left

february week 2
+ brain scan mri done - negative for ms indicators
+ lyme disease test negative
+ other tests negative

february week 3
+ daily headaches go away by now but still get some, but not in same place all the time.
this is only interesting because i never get headaches ever.
+ stress giving me heartburn or acid reflux...started taking pepcid ac (works)

february week 4
+ echo done on heart due to disrythmia (which i've always had) but looked fine

march week 1
+ went to ER with strong nerve pain like sharp electrical shocks all over, gave neck x-ray,
found nothing, sent me home. nurse said they would do mri if x-ray negative, but
physician's assistant overruled before looking at x-ray.
+ legs felt heavy one night while walking down hallway and felt like i might pass out
for about 30 seconds.
+ echo with stress done on heart and disrythmia disappears when heart rate is elevated.

march week 2
+ sharp pins in abdomen
+ tingling in cheeks when i touch them
+ numbness in chin
+ certain sleeping positions seem to aggrevate or alleviate sharp pains when i get them.
basically if i feel pain and move into a different position, it seems to subside.
+ yesterday, i noticed if i sat in a particular chair, i got paresthesias right away,
but when i got up, they stopped immediately. i did it twice and had the same results.
the chair was a soft lazy-boy.

going for cervical spine mri, but wondering, is this a waste of time?

Reply Flag this Discussion

4 Replies:

  • Since you mentioned lyme disease...I just wanted you to know that there are 3-4 different tests for lyme disease. Most doctors don't run all the tests and therefore miss the disease. I recommend you research what tests are available and find a reputable doctor that knows about the different tests and is willing to run them.
    Anonymous 42,789 Replies Flag this Response
  • Sounds like a lead. In the meantime, is there anything I can do myself to narrow the options? :eek:
    ethican 2 Replies Flag this Response
  • This may be difficult to accept, but all of the symptoms you list could be due to stress - our brain can sometimes develop the habit of converting emotional distress into physical symptoms to distract concious awareness from some psychological pain. It is a vicious cycle of symptoms creating stress, stress increasing symptoms. Since you have been thoroughly checked out and the doctors can find nothing wrong, why not give it this challenge: completely ignore the symptoms as much as possible, do not allow them to induce more stress, re-interpret them as nothing serious. Exercise reasonably, take a multi vitamin and practice stress reduction techniques like deep breathing, meditating, journaling, etc. I have suffered for years from a mystery malady with similar traits and it was stress - neurotransmitters out of whack. A trial of antidepressants might be worth a try.
    Anonymous 42,789 Replies Flag this Response
  • turns out i have a bulging disc in my neck. i also have sciatica. could these two things be causing all these other side affects apart from the paresthesias?
    ethican 2 Replies Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.

Signs of a Psoriasis Flare

Know the five types of psoriasis and how to spot flares.

How Diabetes Medications Affect Your Appetite

Newer diabetes treatments can suppress appetite and aid weight loss.

What to Do For Dry Mouth

Try these tips to get your salivary glands back into action.

The Painkiller – Constipation Connection

Constipation is a common side effect of opioid and narcotic pain medicines.

9 Signs of Sensitive Skin

Is it sensitive skin or something else?