Discussions By Condition: I cannot get a diagnosis.

What can I do?

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: Anonymous
  • February 21, 2007
  • 09:42 AM

I know the odds of getting an idea of what's wrong with me from posting on the internet are slim to nill, but by now, I've seen so many doctors who have no idea that I feel it can't hurt to try.

For the last month, I've been more or less unable to live my life normally because I simply don't have the energy to. Some days I wake up okay and get tired, others I wake up tired and stay that way. The longer I'm awake, the worse it gets, so I take a lot of mid-day naps. If I don't, I can't lift my legs when I walk, I can't lift my arms higher than my waist because my upper arms are too tired, and my stomach swells out. On the really bad days, I start to have cognitive troubles too; I've had times when I couldn't figure out what someone was saying to me, or who my sister was, or whether or not I wanted to use a certain colour of paint in a painting. Recently, I'm having joint pain, trouble concentrating and reading, and a lot of discomfort on my right side, just below my ribs. I don't know if it's because I can't exercise or because I can't eat, but before all this, I competed in a sport that gave me a lot of thigh muscle, and it's all gone. None of my pants fit anymore. My skin is breaking out all over my body, and instead of healing properly, it turns brown. My biggest concern at the moment is that I'm also having trouble breathing. My breathing is shallow at all times of the day, but I've been waking up at night needing to take asthma medicine for it. I do have asthma, but only when I exercise.

This is not the first time I've felt this way. I had a similar episode last year, which lasted this way for two months, although it took another three to feel perfectly myself again. In both cases, I started to feel ill very quickly, over the course of an hour or so, although this time, I noticed a few warning signs for a few weeks beforehand, as well.

I've been to five doctors so far. I saw my two family doctors, the first of whom told me I had a virus, the second of whom decided immediately that (based on the fact that I'm a teenage girl) I was depressed, and based on that conclusion, that my sister who has had Guillan Barre Syndrome is also depressed. The third was a naturopath, who was able to help with the more severe symptoms. The fourth told me I didn't have bronchitis. The fifth was the most helpful; he ordered a long list of blood tests, which apparently came back completely normal. He's got me an appointment with an internist, but that won't be for three more weeks.

If there's anyone here who's been through this kind of trouble and has any ideas on what I should say to the specialist when I go see him, I would be incredibly grateful. I'm normally bright and well-spoken, but lately I've been told that I come across as kind of dim, just because I'm so tired, so I really feel like I need to know what to tell this guy that'll make him take me seriously. I know that it's likely that since this all went away by itself last year, it will do so again this time, but I've now lost four months of my life to some illness, and I fear that I may lose more in the years to come. I just want to be well again.

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