Discussions By Condition: I cannot get a diagnosis.

What's wrong with my baby?

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: Anonymous
  • January 26, 2007
  • 04:29 AM

My nine month old son was thriving the first few months on breastmilk. He then started developing rashes, and then suddenly started refusing feedings, there was also mucus in his stools. They diagnosed him with reflux and food allergies, as well as torticollis. I went on an elimination diet, with no change in him. We then changed to an ellimental formula resulting in no change and now he is on neocate (the most ellimental there is). He has been hospitalized twice and has been through three upper GI's one with a small bowel follow through as well as a colonoscopy and endoscopy all showing he was normal with no internal rash. The mucus in stool has stopped but he still has trouble swallowing his bottles and refuses all solids. Sometimes I can get him to take a bottle while asleep, but now this is not happening as often as it was. He stopped sleeping through the night at four months and is now up every hour throughout the night. His RAST test showed he was allegric to peanuts and eggs (which are not in his diet) and he is on an adult dose of Prevacid for the reflux. They found enlarged lymph nodes in his neck (via MRI and sonogram) Blood work was done and everything is normal. He is reaching milestones. What could be wrong?

Reply Flag this Discussion

5 Replies:

  • "The mucus in stool has stopped but he still has trouble swallowing his bottles and refuses all solids."This could be a sign that the food he's got now is better than what he had before. Excessive mucus is a symptom of a non-functional digestive system, or a digestive system that is rejecting foods. It takes many months after birth before a child can tolerate solid foods, and every kid has a different development rate so there is no sure-fire time to introduce them. Too soon and the body is at risk for permanent intolerences as well as auto-immune disorders and nuerological mis-wiring. Wait too long, and they can develop an intolerence too because the body doesn't become accustomed to solids during the appropriate developmental phase. You didn't do anything wrong obviously, there are just a lot of things that medical science doesn't fully undersand and can't classify to specific ages because of the way children are unique individuals.But that's just statistical guess-work based on averages.. and obviously it doesn't help your son as much as I would like it to. Maybe its exactly what your doctor said when you started the elimination diet :DWhen it comes to foods though, trust him. He knows best what they can do to/for him. He wants the simple liquids? Give him simple liquids a while longer. Introduce solids one at a time and record his reactions. People generally have a keen sense of what foods make them feel good and which ones don't. Its extremely important to all aspects of health that we listen to our bodies and learn about the chemicals we put inside.
    Azaral 152 Replies
    • January 26, 2007
    • 05:05 AM
    • 0
    Flag this Response
  • Just found this info today while looking at the difference between an allergy and a digestive intolerence: -There is a transient intolerance to milk- and soy proteins in infants. It may start within 1-4 weeks on milk or soy containing formulas ... From unknown reason this intolerance is temporary only and most of the infants with cow-milk or soy protein intolerance are able to tolerate these proteins without any problem after two years of age. This suggests a temporary immaturity or dysfuction in their gut immune system.
    Azaral 152 Replies
    • January 26, 2007
    • 01:37 PM
    • 0
    Flag this Response
  • Could this have anything to do with his lymph nodes in his neck being enlarged? He also constantly pulls at his neck and gags or grimaces when he swallows.
    Anonymous 42789 Replies
    • January 26, 2007
    • 07:09 PM
    • 0
    Flag this Response
  • Yes the food reaction would cause the lymph nodes to go into overdrive. I'm not sure how it would connect to the torticollis but it seems like its all happening in the same spot. I read on a UK .gov medical website that sometimes it can be best to keep the kid on the elemental formula even as long as up to 2 years. Has there been any improvement?
    Azaral 152 Replies
    • January 28, 2007
    • 04:29 PM
    • 0
    Flag this Response
  • not sure if this is a good suggestion but it did work for us...we switched our daughter to ensure plus (drs suggestion )after the ellimental formula...she lived on that for at least a year while we introduced food...she was able to continue to gain weight, develop etc....we eventually found out she is gluten intolerant (try to find this out early)
    Anonymous 42789 Replies
    • January 28, 2007
    • 04:40 PM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.