Discussions By Condition: I cannot get a diagnosis.

What's wrong with me?

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: Anonymous
  • October 17, 2006
  • 01:40 PM

I have had the same problem for the last 5-and-a-half years, but nobody seems to be able to diagnose me. It comes and goes with varying degrees of severity, but I never know when it going to happen or how I can prevent/ help it.
Here's the problem: Sometimes, for no apparent reason, I get really dizzy and unstable - I feel really faint and more often than not 'fall' into the nearest wall or tall object to try to balance myself (or just to lean against until I feel better). There also seems to be a general weakness, both of body and spirit. My mood also changes - if I feel REALLY dizzy, I get really quiet and withdrawn, barely responding to the people around me, but sometimes I can be pretty stubborn if anyone tries to help me (I ignore their offers of help and attempt to walk off in a straight line... except that doesn't normally work out very well!) Duration of my problem can be anywhere from a few seconds to a good twelve hours, but the average is maybe an hour or so. I'm not dizzy exactly for an hour, maybe just 30 mins, but I still have the other (mood) symptoms after that.
I've noticed that there are several triggers; bright lights (including the sun), flashing lights (strobes are the worst, but they don't even have to be flashing that fast. The last time I encountered these lights a colleague was able to tell me that my eyes were rolling in different directions, and she didn't need to ask if I was feeling better yet 'cos she could see I wasn't!), and physical exertion. Even if I drink loads of water and have eaten properly, nine times out of ten I will have problems after playing football, running or doing karate or whatever. I'm always fine as long as I keep going, it's when I stop that the problems start!!
However, I have also experienced problems without any of these triggers - just by walking across a room or sitting at a desk.
The whole thing is getting out of hand. It can be so dehabilitating at it's worst, and just plain annoying at it's best. I REALLY don't want to stop doing sports, and having to avoid flashing lights is a pain, especially when where I live the police cars all have white strobes rather than red-and-blues, and the lights where I work are never switched on and flicker for an insane amount of time before they settle down. It also stops me from going out places I'd like to go (that I know have flashing lights), just because I don't want to risk having to depend on my friends/ colleagues to scrape me up off the floor and get me home...! It's not fair on them.
Please, if anyone has any ideas on what might be causing this, or any suggestions that may help me deal with it, they would be greatly appreciated. I have been to a couple of doctors over the years, and they don't seem to know. The most anyone commited to saying was first Meniere's (which was then ruled out by another physician), then epilepsy (which was never followed through). Its really hard having to explain to people whats wrong with me when there's no diagnosis!
Thank you in anticipation, and for taking the time to read through this essay...!

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5 Replies:

  • Your probably having sezures, those are triggered by flashing lights, but can also happen durring stress, extreem emotions, or just anywhere..
    Anonymous 42789 Replies
    • October 17, 2006
    • 07:38 PM
    • 0
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  • I agree, you are having seizures. Do a search, read up on it and you will see how much in common you have with seizure sufferers... and go see an MD.
    Anonymous 42789 Replies
    • October 20, 2006
    • 07:56 PM
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  • Seizures DO seem the most obvious explanation. But I've had all sorts of tests, including an MRI and the doc said they were all normal. Surely something would show up? (I've seen several different docs over the years, so it's not like one of them is missing something, else surely another would have picked it up?!). The only thing I can think of is that I've never been tested during an 'episode/ seizure'... might that make a difference?Thanks for your suggestions guys- Dizzy and fed up of it (thread-poster).
    Anonymous 42789 Replies
    • October 21, 2006
    • 00:38 PM
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  • Unfortunately there is no investigation which can refute or confirm that these are seizures. I'd imagine the investigations you've had are probably to find out why you're having them
    Anonymous 42789 Replies
    • October 21, 2006
    • 09:38 PM
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  • Your "episodes" sound just like mine!!!! Dizzy....problems with flashing lights...."normal" tests!!! I'm a 34 yo female. Mine started in Oct. 2001. I blacked out at work (was an ER nurse at the time). When I came to I felt like I had drank a 6-pack...I was soooo dizzy and had this awful headache (I still have a daily headache which fluctuates in intensity since that day). I have problems with falshing lights/strobe lights too. I've been tested for seizures..but the DR's said they were not seizures. My speech would get garbled, my eyes seem to "roam around"...not foll back, but just zip around in all directions haphazardly, my hands would clench up and curl up along with my arms. My legs get weak and can sometimes ***k or spasm up. The "episodes" can be "minor" (just a little garbled speech or weak hand grasp) to "severe" (with all the symptoms I've described). They can last from a few hours to several days. I've had a few "atypical" tests...my Vitamin B12 is very high...1600 (normal is 300-900) and they found a 2mm "spot" in my right midbrain and something else in the parrahippocampal area in the brain. I've got slightly enlarged lymph nodes in my neck (seen on a scan), I've been lactating since this all started (no BCP's/ not preg), and nodules on my thyroid. All of this stuff may or may not be related...not sure. The only thing that seems to "help" is Benadryl, which seems to cause "shocks" throughout my body to "reset" the nervous system when I do get an "episode". Also, with the MRI's I have problems with the gadalidium contrast...it triggers off "episodes" too. If you have any thoughts regarding this, I'd love to hear them, since this is getting "old" really quick...been going on for 5 years for no reason. I was fine before all of this. It just came on. UGGH! LabSci2@aol.com
    Anonymous 42789 Replies
    • October 23, 2006
    • 04:59 AM
    • 0
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